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Good news

Well, I went to my neurologist this morning and after doing lots of talking and lots of neurological tests on me, he feels this is not neurologically related. He said he can't rule ms out 100 percent but he really feels this is not the problem. He said he wishes they would have done the mri of the nerve bundle that sits at the very bottom of the spine. He is thinking that something, whether it be a mass, or endometriosis, or even inflammation of something, is pressing against that nerve bundle and it is causing the symptoms I have. He wants me to get another MRI done so we can see if there is anything going on there. Thanks everyone for the comments, suggestions and support..I sure do appreciate it! I'll post results when we figure it all out! Oh, and for the pain, he wants me to increase the neurontin. He said I can take up to 2400 mg a day if I need to? I might talk to my GP about it before I start going too high. Thanks again,
Chanelle
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572651 tn?1530999357
that is great news Chanelle.  Congratulations (I think that's appropriate to use here!).  I can't answer about the dosage on the neurontin, perhaps someone else will be able to help.

I'm glad he is working this through for you in a methodical way.

Now that you've learned more about this MiSerable disease, we will count you among our friends and hope that you'll help us to spread the word and push for more research too!

stay well,
Lulu
Helpful - 0
751951 tn?1406632863
Chanelle, that sounds about right for the Neurontin dosage, from what this old preacher recalls.  (Translation: I'm not a doctor; I don't even play one on TV).  You might check for online referfences on that dosage.  Be very careful, though, to ramp up the dosage gradually.  I think I've written about this a good bit recently.  Quix's Health Page on pain meds explains this pretty thoroughly, too.

Plug: Speaking of Health Pages, I recently posted one titled "Acceptance -- A Journey," which is really an anthology edited down (some) from the long thread we had a month or two ago, begun by PatHC.  Anyone working on this topic (and don't we all, sometimes?) might want to check it out.  Caveat: It's still long.  It will take you a while to get through it all, so maybe you want to do it over a couple visits.

We'll pray the docs get to the bottom of whatever's causing these problems for you.
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Avatar universal
Lulu- Thank you so much. I am honored to be considered a friend here. I definitely want to help spread the word and push for more research! Even without being diagnosed with this horrible disease, I am touched personally by it. Unfortunately, my brother-in-law is a member of the MS "club". I am going to suggest this website to my sister so she can pass it on. I think this is a wonderful group of friends, a fantastic resource and source of encouragement, and a place I am honored to be a part of.

PastorDan, I will Take a look at Quix's page, and take heed of your warning about increasing too fast! I know how this medicine affected me when I first started it, and I am nervous about it happening again!

Thank you both so much for your continued help, thoughts and prayers. Both of you, as well as everyone here, are in my thoughts and prayers as well.

Chanelle
Helpful - 0
Avatar universal
I believe the condition your neuro is referring to is called Cauda Equina Syndrome. Equina means horse. It comes from the shape of the nerve bundle, which looks like a horses' tail. If you go to Spine-health *******, it has a wealth of information about it. Just enter it in the search box. There are good pictures of the nerve bundle, and explainations of how it is dx, symptoms, and treatments.

I have a lot of spinal problems, and I use this website a lot. They have forums like here, and also Chat rooms to share with others what is going on. Good luck. If I can be of any other assistance, please pm or e-mail me.

Maggie
Helpful - 0
410281 tn?1254229064
Great news! I hope that this doc is able to help you find what helps you feel better. Stick around, though, OK???
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293157 tn?1285873439
That sounds like good news...hope your test results come back right and you get your answers confirmed.  Let us know how it goes and when you are having the test done.

take care
wobbly
dx
Helpful - 0
Avatar universal
Maggie I am going to ask the doctor about that condition, thank you. The only thing is, I don't have the pain down the back of my leg, but instead down the front and inside of my thigh. I wonder if it could affect it there? It looks like a good website though and I'm going to keep exploring it for sure.

Wadeheather, I will definitely be sticking around! :-) Thank you for your good thoughts!

Chanelle
Helpful - 0
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