can anyone with ms relate to what im going through

[shaw1981]

hi everyone... i have a long story but i really need some advice. i am 28 yrs old. 8 years ago i started to lose grip in my right hand and occasionally it was painful, 4 yrs ago i started to have horrible headaches and neck aches and pass out and this comes and goes but i get dizzy everyday and feel like i am going to pass out. about 9 months ago my vision suddenly and i mean suddenly went very blurry. went to eye dr and he said he wasnt sure why i couldnt see and prescribed me glasses, my eyes now hurt behind them sooo bad and there is lots of pressure and it hurts to move my eyes up or down left or right, my bladder hurts quite often and i only drink water, there is a spot on the top of my head that feels like a bug is crawling around or a vibrating feeling that has been happening for a couple of years and recently it started to do it between my shoulder blades. i have to be very careful how i move my head because one wrong move shoots a shap pain down my neck and back that takes my breath away, my grip in my hand is now so bad i cant write and i drop things constantly and for a few months my right foot and leg feel the same week feeling and sometimes i feel like im walking funny and i limp a little. i have really bad pain in my hips and when i take a shower i end up in pain sometimes i cant get out of the shower and my husband has to help me because i cant lift my leg over the tub edge. sometimes when i am talking i forget what im talking about and even if someone reminds me i cant finish the story b/c its like i dont know the rest of it. i feel very confused a lot of the time. i sat a green light the other day and stared at it thinking is this light ever going to turn green? finally my husband looked at me and said the light is green! i got so upset bc i was staring at the green light waiting for it to turn green, this kind of stuff happens a lot to me. i went to the emergency room the other night bc of the pain and i passed out, they gave me a cat scan and said it was normal and ekg was normal, they gave me morphine through i.v and i asked them about 30 minutes later if i could have pain meds and they gave me more morphine (sorry dont know how to spell that) and it didnt do anything for the pain so they gave me something else and it didnt work either so they sent me home with percocet and ibuprophren which is doing nothing but jacking my brain up and i still hurt. i told the dr my ears were hurting also like an ear infection type pain and they ring a lot and sound is sometimes muffled and he checked my ears and said they looked great, i knew they would ! but they dont feel great. i have been having numbness in my legs arms toes feet, you name it , but i just recently started to have pins and needles in my butt cheeks (sorry) and some in my face and occasionally in my legs and arms. and when i talk even just a little it hurts just below my throat and feels tired. oh yeah and i shake all over and then my hand will twitch or my leg or foot i was told by a dr at one point that i had vertigo but that was about 6 mths ago and i still feel like i am swaying. i am sorry this is so long but if you took the time to read it i really appreciate it and thank you, i really just want to know if anyone with ms relates to this. there are other things that happen as well and it is starting to be an everyday thing with little release. i have an apt with internal med dr this week. i just hope he refers me for an mri.

[shaw1981]

SORRY IT WAS SO HARD TO READ... MY HAND DOESNT WORK WELL AND MY EYES HURT REALLY BAD SO I JUST TYPE AS FAST AS I CAN TO GET IT OVER WITH.  ALSO BEFORE I FORGET WHAT I WAS GOING  TO SAY .. THANK YOU FOR YOUR FEED BACK THOUGH

[jensequitur]

You have a lot of symptoms that sound neurological, but it's hard to say at this point what the cause is.  I would make a list of the symptoms and try to give some sort of timeline, so the doctor can have an idea of what's going on.  Just keep it to one page - doctors seem to freak out if you give them a novel!

There are many MS mimics.  MS causes neurological damage, but so do many other diseases, so your doctor will probably refer you for an MRI.  Make sure they order it with MS protocol, which means they'll take films of your brain with a gadolinium contrast agent.  I would check with the MRI clinic to make sure your films will be at 1.5 Tesla or above.

For some great answers to your questions, check out our health pages (upper right hand corner of the screen.)

Good luck!  Let us know what the doctor says.

[tjj3761]

Hi,

Welcome to the forum.

I hate to hear about all your pain and problems.

I just wanted to tell you, as you probably did not see Lulu54's first post, it is regarding long blocks of paragraphs.

Those with MS have a very, very difficult time reading large paragraphs because of optic neuritis.

I would just post again and break-up your paragraph, then others can respond.  

There are so many helpful friends here on the forum.

terri

[jensequitur]

Argh, chica - this is so hard to read!  I'm going to break this up into paragraphs, and then other people can contribute.

hi everyone... i have a long story but i really need some advice. i am 28 yrs old. 8 years ago i started to lose grip in my right hand and occasionally it was painful,

4 yrs ago i started to have horrible headaches and neck aches and pass out and this comes and goes but i get dizzy everyday and feel like i am going to pass out.

about 9 months ago my vision suddenly and i mean suddenly went very blurry. went to eye dr and he said he wasnt sure why i couldnt see and prescribed me glasses, my eyes now hurt behind them sooo bad and there is lots of pressure and it hurts to move my eyes up or down left or right, my bladder hurts quite often and i only drink water, there is a spot on the top of my head that feels like a bug is crawling around or a vibrating feeling that has been happening for a couple of years and recently it started to do it between my shoulder blades.

i have to be very careful how i move my head because one wrong move shoots a shap pain down my neck and back that takes my breath away, my grip in my hand is now so bad i cant write and i drop things constantly and for a few months my right foot and leg feel the same week feeling and sometimes i feel like im walking funny and i limp a little.

i have really bad pain in my hips and when i take a shower i end up in pain sometimes i cant get out of the shower and my husband has to help me because i cant lift my leg over the tub edge. sometimes when i am talking i forget what im talking about and even if someone reminds me i cant finish the story b/c its like i dont know the rest of it.

i feel very confused a lot of the time. i sat a green light the other day and stared at it thinking is this light ever going to turn green? finally my husband looked at me and said the light is green! i got so upset bc i was staring at the green light waiting for it to turn green, this kind of stuff happens a lot to me.

i went to the emergency room the other night bc of the pain and i passed out, they gave me a cat scan and said it was normal and ekg was normal, they gave me morphine through i.v and i asked them about 30 minutes later if i could have pain meds and they gave me more morphine (sorry dont know how to spell that) and it didnt do anything for the pain so they gave me something else and it didnt work either so they sent me home with percocet and ibuprophren which is doing nothing but jacking my brain up and i still hurt. i told the dr my ears were hurting also like an ear infection type pain and they ring a lot and sound is sometimes muffled and he checked my ears and said they looked great, i knew they would ! but they dont feel great.

i have been having numbness in my legs arms toes feet, you name it , but i just recently started to have pins and needles in my butt cheeks (sorry) and some in my face and occasionally in my legs and arms. and when i talk even just a little it hurts just below my throat and feels tired. oh yeah and i shake all over and then my hand will twitch or my leg or foot i was told by a dr at one point that i had vertigo but that was about 6 mths ago and i still feel like i am swaying.

i am sorry this is so long but if you took the time to read it i really appreciate it and thank you, i really just want to know if anyone with ms relates to this. there are other things that happen as well and it is starting to be an everyday thing with little release. i have an apt with internal med dr this week. i just hope he refers me for an mri.