Tysabri

[Jifr]

Hello all...

I know "Tysabri" is probably one of those "we see it all the time" posts so I'll try to keep this short and quick.

I have a strong suspicion that my doctor is going to recommend that I switch to Tysabri. I've been on all the CRABs. Betaseron for the longest.  I have not done my shots consistently like I'm supposed to and I'm beating myself up thinking I could have lessened my current progression.

But anyway - if you're on Tysabri, I'd like to know your own personal experience.  Your recommendations...pros...cons...that kind of thing.

If it will take up too much room in the regular forum, can you send a note?  I don't think they allow us to give out email addresses, right?

Thank you for any insight!

.jifr.

[Guitar_grrrl]

Hi, and Welcome (I don't think I've seen you around here, yet...).

I just had my 2nd Tysabri infusion last Wednesday.  So far, so good.  I do notice I'm more tired than usual for the first 24 hrs after the infusion, but then I feel normal (for whatever "normal" is for me these days).  I'm hoping for the best...

Good Luck to you!
Cheers,
Guitar_grrrl

[MSNotaFan]

I have also had my 2nd infusion and am now experiencing stomac pain. It's painful and I want to see a doctor on Monnday. Should I see my neurologist ot internest? I don'tt know.

[sllowe]

  Hi there,

We have a couple tysabri users and one about to begin on this list. Hope this helps.  Isn't the beating from MS enough? Don't beat yourself up anymore :)
As Quix points out you can exchange private mail with forum members. Just use the hover feature over the members name, and when it says send a message, click there.

http://www.medhelp.org/posts/Multiple-Sclerosis/DMD-Users-Past--Present---Copaxone--Rebif--Avonex--Betaseron--Tysabri--other/show/1193746

Welcome, and tell us how you feel comfortable to share.
-Shell

[Quixotic1]

You also need to know that we have a private (non-public) message system here on MH.  Just go to your In-Box - upper right hand of the page.  You can exchange emails, phone numbers or just talk and it will all be visible ONLY to the person with whom you are talking.

Q