How are you, Anamaria?

[Momzilla]

Hi, Anamaria~

Your announcement of your brand new diagnosis seems to have gotten buried, and I'm not sure everyone has heard about it.

I just want to check in with you, and see how you're feeling with the news.  I'm sure it's still settling over you and your husband, who sounds SO supportive.  Have you shared with any other family members?  The kids?

I hope you are well and reasonably "OK."

Fee l good and hang in there!

Love,

Zilla*

[LLWB]

I hope you got some rest and are feeling better. It is always hard to know how much to share, and who to share with. That said, I think your parents should know. When they find out, and they will, they would feel very hurt that you didn't share something so life-changing with them. Just pick a  time when they will be able to process things gradually. Big Holidays with lots of grand-kids whooping and hollering wouldn't be real good in my opinion. I think brothers and sisters should also know. But beyond that I think it is your call who to tell. Casual friends, co-workers, etc. don't need to know every little detail. Telling all leads to lots of unsolicited advice, like the other forum member (can't remember who) who was told if he would just quit drinking coffee he would be cured. LOL You have so many new things to think about. Just take things day by day, and learn as much as you can about this beast. With the DMD's your prognosis is so much brighter than years ago would have been.  I also think the more prayers the better!  Hugs and prayers.

Maggie

[sllowe]

Hey Ana!

We've not chatted, so hello there!
You conflicted? It's okay, and don't you worry, you are not robbing anyone w/not telling them so they can pray.  I think you are quite logical in what you have been dealt w/so far, and will continue to be.  You just found out for certain yourself.  Take this time to sort it all out yourself.

You've got us covering (prayers) while your Mom is unaware - don't fret.

Besides, you've got to pick out that wardrobe of yours and the children for the cruise!  

While you are on that ship, out looking into the deep blue endless sea, it will all come to you....what you need to do, and exactly when.

Be well, we're here for you,
-SL  

[amas]

I Thank everyone of you for your posts.  Sorry that I didn't post Monday as I thought I would but it was such a difficult day physically for me.

Well, I think my husband and I are doing pretty good considering.  I think I'm in a "mode" of continue to do what I have done and work around or adjust to how I feel for that moment, day or week.  I must say it's been a lot more this last month than I have had up to this point.  I could not hide some of the difficulties from my children.  I could not use the old excuse of 'I have a bad headache" or "My hip is hurting" (old water sking accident).

As for telling my family. I haven't done to much of that.  Didn't want to spoil Mother's Day.
I have 7 siblings and my parents.  That's a lot of people to tell.  I told two of my sisters and a few friends early on that i was being tested for MS. So they know. I told one of my brothers this weekend.  It made him cry. I have never seen him cry.  I felt so bad.  I went home and told my husband that I did not want to break anyone's heart. I know I have to tell them but I want to be able to do it in person when I am feeling fine. My husband told me "You need to understand about your brother that he didn't know it was coming.  It was a shock to him. You had time to deal with this".  He's right and for that reason I want to be in better spirits both pysically and mentally when I share the news. My family is a strong family that takes everything to prayer. It's just hard to do.

I did a little reading on how to tell younger children.  Its advice I had already considered but one I hadn't. That if children are not told they would imagine the worst.  So it made this part easier for me. Always keeping in mind to share what is age approriate.

I'm not sure I want to tell my parents anytime too soon. RIGHT/WRONG?  I don't know.  My father was in the hospital two weeks ago. We thought a heart attack. Turns out if was a severely blocked artery.  He had 4 blockages in one which were taken care of with 3 stents.  He is home now doing fine but it concerns me.  One of my sisters, says I should reconsider because mom might feel cheated since she would want to take this to prayer with her group and I am robbing her of doing the only thing she can do for me (my sister said this with  kindness).  I also have a church friend that has asked me twice if she can please put it in the prayer request and I have asked her to wait.  I have seen many of you send your blessings and prayers to others here so please help me.  I feel conflicted with my position.  

Anamaria

[Momzilla]

I hope you're taking good care of yourself, and that you had a nice Mother's Day.

Feel well,

Zilla*

[amas]

I just have to say that everyone of you is so sweet.  Thank you all so very much.  Honestly, I feel OK still.  I actually have a very busy weekend here and might not be able to share much until Monday.  Monday is my daughters birthday so we took her today to Knotts Berry Farm to celebrate.  She's at that stage where she is venturing out onto some of the scarier rides.  Not the big ones but not the kiddy ones anymore.  It was a great day.  
Sunday it's my turn to take the younger children during the 8:00 o clock church service and give them their lesson.  Then I have to usher for the 10:00 o clock service. Then it's off to my parents to visit for Mother's Day. I have many siblings which will be their and that includes many nieces and nephews.  I'm sure I'll be exhausted.  Once again, Thank you all and Happy Mother's Day.  I will update soon.

Anamaria

[LLWB]

Hope you are just having a quiet weekend, and letting things sink it. But all here worry about each other when we don't see them posting, especially after such life-changing diagnosis. Please let us know you are okay........Maggie

[Quixotic1]

Come talk to us.  How is the news sinking in?  What is your family's reaction?  Sometimes that part is the hardest.  My dad still doesn't know how to treat me.  He acts like I'm going to break.

Quix