Thank you both for responding. Sllowe, my neck isn't stuck like it needs to pop, I'm just frozen and can't move for a bit. It's very odd. LIke I said, I've had these things before and just like you Alex it's mainly down my spine, but this was just plain freaky...I think it scared me the most when it hurt my heart/chest.
I unfortunately am still in limboland. I go to see my neuro on Tuesday the 13th and have recorded all this new stuff down. This actually wasn;t the beginning of this last bit of craziness. I had a pretty severe headache behind my right eye and through the back of my head that lasted for 3 days and then this past Friday my left leg started tightening and I've been limping since....it just wants to stick and not lift. Then the shock happened yesterday and then my foot turned in a bit and froze later that day.
Don't know what will happen, but PCP suggested going to Johns Hopkins if I don't get answers soon.
You're right Alex, He does love us always....that's what keeps me going :)
Stacie
Hi LuvnGod,
Nice to see you. Like so many others, my l'hermittes is different too and I get buzzing directly in the middle my keister, and vibrations in my legs sometimes - only if I look down. Which I rarely do now.
What you describe sounds more to me than l'hermittes.
Do you have any cervical disc issues? Did your neck feel stuck in that position for those minutes and then you were able to slowly get it upright (unstuck)? If so, I do understand that - it's horrible. Mine gets stuck like that often, but I have spurring, and herniations. So, to re-cap mine would be physically stuck (not so much paralyzed because I could feel it) and then I slowly stretch it in the opposit direction, and "click" literally can hear it and it's unstuck.
Tell us more - sure do want to help..
Like Tingle-T says this has been brought up before about the cold, and hope some others see this and comment too
Blessing back to you :)
Hi Stacie,
L'Hermittes affects me slightly differently in that I only get the shock down my spine and into my left arm for a couple of seconds when I look down. It is a bothersome so I simply avoid looking down.
I'm only new to MS now 7 months into it with 5 relapses. I think they say that generally people tend to get more flare up during the change in seasons and during periods of stress and as a result of other infections but everyone is different. I am not looking forward to the boiling hot summer here in Australia as I know that heat can really mess up our MS.
He loves us always
Alex
Also am wondering if any of you have more symptoms or flare ups in Winter months? Cold weather?