NOT A QUESTON JUST A WORRIED UPDATE

[melissabarnett]

well just tok ayla to see the dr about her back and had tests done now the dr wants her to have MRI to see if she has leasions on her spine and brain  do to possable MS  that has me going off the deep end on mother emotions and pain for my baby girl she is only 14 her whole life ahead of her she cant have MS i want it to be a semple back problem not MS but i know deep down in my heart that its MS i have watched her over the past months with her stumbleing and falling  with numbness in her hands and leggs  and the peeing problems to and knew it was something more then just a hurt back do to falling down the stairs last school year

so  i have to be strong for her in this all and keep picking myself up off the floor to but how do i deal with this new pain in my heart  that i gave her this MS thing  i feel guilt unbeleaveable guilt on this  hear i am barely makeing threw the day with my own MS and now i might have a daughter with MS to just how much will GOD put on my plate before i go down for the count cause i tell u im seeing the floor up close right now and its not prertty  cause if she has leasions on her spine it wont be pretty  as we all know

  now im just thankfull mine is in my head any addvice on how to handle this new spin we have been thrown into ?? all help will be a blessing  bye foe now got to get the day going here with the little ones  talk more latter U all have a great day and keep smileing .

[melissabarnett]

have been takeing Ayla to a P/T for her back and found out that her left leg is 1 inch longer then her right leg so got a 1/4 insert and will soon move up to a 1/2 insert  and so on it seems to be helping with her back  poor girl had mouth surgery do to one tooth stuck up behind her 2 front teeth had to get a chain put on it to pull it down into place  my little Steph swolled plastic with metal on it dont know how she did it but she did and now we are waiting for it to come out now for 2 weeks pluss i have taken Bindra out of preschool due to coup  im not i repeat not going through 9 months of sickness like i did last year  when its only the 2nd week of preschool so we will see about school next year she will have to go to kindergarden   i get to see my nuro on thursday the 8th ill ask him about the vitamin D thing that i just read about and what to do seeing that i am low and did try to take the pills that my dr. gave me and wow what head pain i had for a week so i have not taken any more  still waiteing for Ayla's nuro appt. dec. 1st  praying not MS but something mild like back problems do to the leg  being shorter then the other one   have an appt with Bufflo New York at the pead MS center for Steph when she hits 2 in November on the 8th  just to make shore she dosent have MS  she still isnt speeking or feeling in her feet  still haveing problems walking and so on  im just hopeing its still mild MD and Myosistis and nothing more . ok ive vented enouth today on with happy things and lots of smiles to you all out there  tell a joke or to and laugh out loud   bye for now  

[melissabarnett]

LuLu no i dont hold my ms agenst my mom she was a strong woman in spirit even when her body faild her she never comepland about haveing MS i hope i can be like her in that respect not in body even though i prayed to GOD when i was little to let me have my moms MS so she could get up and live life run walk make dinner  or any thing she wanted to do even if it was for 3 mins 3 weeks or 3 years  gess he gave me my answer and i have MS but he was very very mercifull and let me have the very very slow MS ive had 20 years to deal with my MS and now i have to buck up and help my daughter through this if she has it and yes i told her and she is not takeing it well but who would blame her shes only 14 to young to have something this bad  but we will get through this we have to  and thanks to all of u for your suport  bye for now

[Wobbly]

Just wanted to say I'm sorry your going through such a difficult time and now with your daughter as well... my prayers are sent for you and your family.

take care and let us know how things are

wobbly
dx

[biowham]

I'm sorry to hear this. This adolescent onset stuff showing up on the board lately is disturbing. I hope that the MRI shows some mechanical problem related to her fall, one that surgery can address. If it doesn't, as Lu says, you live as an example of how to live with MS, rather than letting MS take over your life. You are in my thoughts.

Bio

[Lulu54]

This has been a horrible summer for daughters ... you are the third forum member in recent weeks to have concerns about her daughter and MS.  The other two are already confirmed positive, and one of those is another 14 year old.

I can't even begin to pretend to understand the pain and anguish you feel about this.  But one thing I do know without a doubt is that there should be no guilt involved.  You did not pick to have your MS - do you hold that against your parents?  You did not choose to have your daughter have this either.  Perhaps she doesn't and this worrying is all for naught.....

We know that we are genetically predisposed to MS, but it is not genetically transferred from one person to the next generation.  That can be a hard concept to understand.  

Have you told your daughter yet what the doctor is thinking?  She needs you to continue to set an example that this is a disease that can be managed and lived with in dignity.  

I am so sorry that you have this worry right now - I will hope that the doctor is wrong and that your instincts are messed up and that she has something simple going on with her health.

Please stay in touch here - you know we are good listeners and have broad shoulders you can lean on.

hugs,
Lulu