I have to give you this update...

[MostlyShell]

As usual, I'll rant for a second but I have to say this.
The last few weeks I have gone from being disgusted period with doctors, shots, MS, my body, etc; to constant thoughts of death.
I wrote in a few times about my feet and you all were very supportive, but my neuro definitely wasn't.  I felt as if she thought I was seeking or something.  They have bothered me since November.  Except much worse now.  I have been sitting for a month considering getting a wheel chair.  
Well, after much thought, and these days it takes forever to make a decision, I decided to refer my own self to a Podiatrist.  Just to see.  If he were to say it is MS and nothing to be done, then I would have dropped it.  But, guess what?!?  He didn't:)  He told me I have plantar fasciitis.  Ha!  Something fixable.  I was crying and so elated. Thanking him over and over again. I could have kissed him!  Then I was very angry with the neuro for making me go this long.  Not even considering something else.
So, lesson here is, it pays to still have a brain, no matter how slow it works at times!
MostlyShell

[BOK2Bjan]

I can relate to your post in 2 big ways!  I have really bad foot and ankle pain in my arsenal of complaints, and also have discovered that even non-specialists tend to only look to already dx diseases and syndromes to fit new symptoms into.  My internist said that he was taught in medical school to not look for something new if you already had a dx that could explain a symptom.  The problem was - he started trying to cram squares into round holes when it came to fitting my new symptoms in.  With a dx of Systemic Sclerosis, he tried to fit all my neurological symptoms, my GI symptoms (which do often fit) and every other thing.  Turned out, I have MS, and several other dx.  It really makes me CRAZY!

Now for the feet/ankles.  I'd love some advice on this, because when I stand, my ankles (the medial protuberances) hurt so bad I can't place weight on them.  (feet also, but is a different problem)  Stretching the foot out doesn't help and touching the bone is very painful.  It's already hard to stand and start walking, because I don't initially feel I can stand, often lose my balance, and feel weak.  All my joints cry out and hurt terribly.  After a while I can start, and then after walking a while, it gets better. Then I wear out and have to start the process all over again. Life gets exhausting!  I already have similar pain in my elbows from the systemic sclerosis (or so they say), so I'm wondering what may be causing the ankle bone pain.

Any suggestions or thoughts?  Shell, way to go for standing firm and finding an answer!

Blessings, Jan

[essdipity]

I'm so glad if this solves your problem. How will you be treated? Please let us know how things go.

ess

[Salamander2]

For me,  it was the other way around.  Before my diagnosis, I had convinced myself that I had plantar faciitis.  After my diagnosis and starting a DMD those symptoms went away.  I can only assume that the foot pain was related to the MS.   I do agree that foot pain can be VERY life disrupting.  It turned me into a couch potato!  But I'm up and around now!
Blessings,
Sally

[missy142]

Hi Mostlyshell,

We dont know each other , our circumstances are different and maybe our diagnoses too.  But I know what its like to be in constant pain and going from md to md and test to test.  The universe or god whatever you aspire to has brought you what you needed.  You went from as you stated "thoughts of death" to being elated at finding an answer and solution to your problem and terrible pain.  Keep these feelings of elation and relief tucked away as you may need them again for future trials and tribulations.  And please remember that your life is greater than any symptoms, pain or disease. The universe will take care of you, stay in faith of this and you will persevere.  I wish you good health.

peace,
missy

[Lulu54]

Dear MostlyShell,
This falls back into that area called "specialty."  When you are a hammer, you onlly look for nails.  Neuros aren't trained to think outside the box, as best as I can tell.  

And your expeirence reinforces the message that is conveyed here all the time- we are ultimately responsible for our own health care.  
Did the podi give you exercises?  Do them and they will definitely help

Congrats on getting an answer,
Lulu