Aa
In need of hugs and prayers
Its been an awful day to say the least.
Some have ask will I ever get a break.I quess I can answer that NO!!!!
After crying all afternoon,I finally gained my composure for my kids.
Had my follow up with my neuro,who I must say has a very caring and compassionate side,many neuro's can learn from him.
Test results are back---VEP left eye 147 , right eye 130, bilateral optical neuritis,never showed on recent MRI;s.Neuro was puzzled for sure.But admitted MRI's don't detect all.
The BAER-- slightly abnormal left ear with mild sensural hearing loss right ear and moderate hearing loss left ear.Recommends hearing aids.
Now for the real shocker,I knew my neuro had suspected arachnoiditis,well its there.But the real kicker is he told me the arachnoiditis is caused by a pin hole tear in the spinal canal leacking spinal fluid into the thecal sac.Which has done a great job containing it.He thinks it was caused when I was rear ended in June causing the screws in my back to shift and hit the spinal canal.The only way to repair this is to surgically do it.
I completely lost it,I told him no,I would't go through that again and he explained that it had to be done,if that ruptures theres severe medical consequense.He's already been in touch with my neurosurgeon,I had blood work done today,basic panel and he was checking my clotting factor.
I have to be back in his office tomorrow morning 7:30 for a EMG/NCS and friday ,I have to be at the hospital for a spinal tap he's gonna run a MS panal and to make sure theres not an infection in the spinal fluid.He admitted that he wasn't comfortable doing it,it has to be done at the L2-L3 usually done lower.He wants it done at the hospital under florascopic with me sedated.YEA!!!Thats a plus.
He was very caring, as I sat there and cried like a fool,I told him of my fears and he promised me he would see me through the surgery and he would be assisting my neurosurgeon.he said my concerns were very valid and he would controll all aspects of the pain.I told him in the past that my surgeons dismissed the pain after the surgeries and I refuse to go through that again.
He ask me if I had faith in him and my surgeon and I said yes.Usually ya don't get to see this side of a DR.The human side. He hugged me ,made sure I had a driver ,ask if I needed anything for depression or to get through the news,I told him no,but I also told him not to wear a tie tomorrow during the EMG/NCS ,he ask why and I told him I'd choke him with it if he inflicked any pain on me during that test.I told him that would get me through the night.
He said I was stuck with him,with the MS and many Drs are not familiar with arachnoiditis,an incurable nerve disease.But it can be controlled with solu-medrol when it flairs up.He said now its trying to learn what is what during a flair up.
Its been a lot to absorb,thought I was done with test.
Its been a long year,but I'm sure 2008 will be better,I now know what I'm facing.It may be a long journey yet,but that soon will pass.
Sorry to ramble
T
Some have ask will I ever get a break.I quess I can answer that NO!!!!
After crying all afternoon,I finally gained my composure for my kids.
Had my follow up with my neuro,who I must say has a very caring and compassionate side,many neuro's can learn from him.
Test results are back---VEP left eye 147 , right eye 130, bilateral optical neuritis,never showed on recent MRI;s.Neuro was puzzled for sure.But admitted MRI's don't detect all.
The BAER-- slightly abnormal left ear with mild sensural hearing loss right ear and moderate hearing loss left ear.Recommends hearing aids.
Now for the real shocker,I knew my neuro had suspected arachnoiditis,well its there.But the real kicker is he told me the arachnoiditis is caused by a pin hole tear in the spinal canal leacking spinal fluid into the thecal sac.Which has done a great job containing it.He thinks it was caused when I was rear ended in June causing the screws in my back to shift and hit the spinal canal.The only way to repair this is to surgically do it.
I completely lost it,I told him no,I would't go through that again and he explained that it had to be done,if that ruptures theres severe medical consequense.He's already been in touch with my neurosurgeon,I had blood work done today,basic panel and he was checking my clotting factor.
I have to be back in his office tomorrow morning 7:30 for a EMG/NCS and friday ,I have to be at the hospital for a spinal tap he's gonna run a MS panal and to make sure theres not an infection in the spinal fluid.He admitted that he wasn't comfortable doing it,it has to be done at the L2-L3 usually done lower.He wants it done at the hospital under florascopic with me sedated.YEA!!!Thats a plus.
He was very caring, as I sat there and cried like a fool,I told him of my fears and he promised me he would see me through the surgery and he would be assisting my neurosurgeon.he said my concerns were very valid and he would controll all aspects of the pain.I told him in the past that my surgeons dismissed the pain after the surgeries and I refuse to go through that again.
He ask me if I had faith in him and my surgeon and I said yes.Usually ya don't get to see this side of a DR.The human side. He hugged me ,made sure I had a driver ,ask if I needed anything for depression or to get through the news,I told him no,but I also told him not to wear a tie tomorrow during the EMG/NCS ,he ask why and I told him I'd choke him with it if he inflicked any pain on me during that test.I told him that would get me through the night.
He said I was stuck with him,with the MS and many Drs are not familiar with arachnoiditis,an incurable nerve disease.But it can be controlled with solu-medrol when it flairs up.He said now its trying to learn what is what during a flair up.
Its been a lot to absorb,thought I was done with test.
Its been a long year,but I'm sure 2008 will be better,I now know what I'm facing.It may be a long journey yet,but that soon will pass.
Sorry to ramble
T
Geezz Yorkie I'm disappointed it ain't a train.I thought it would give me a ride.
When its all said and done thats what we have to have, a positive attitude not only in the Lord but in our DRs.
How ya doing, any better?
T
When its all said and done thats what we have to have, a positive attitude not only in the Lord but in our DRs.
How ya doing, any better?
T
Girl, remember, you are INVINCIBLE! You are woman! Your positive attitude is truly what is going to get you through it. Please believe, there is light at the end of the tunnel, and it's not a train!
Hugs,
Sheila
Hugs,
Sheila
Even when all looks bleak,theres always another side.Life goes on,maybe not with a smile everyday,or pain free everyday.Ya know we all have these lingering symptoms.Some of mine have names,but not repeatable on the net.
I look to humor as it gives me releif and if I didn't have that humor,days could get bad.
As bad of a day I was having yesterday,last evening I had to set that a side.A dear friend of mine has MS and has not been coping very well lately.To my amazement she was talking suicidal,as exhausted as I was we talked for almost 3 hours it was well after midnight before we said goodnight.
I called to check on her and she was feeling a little better today,but she went and picked up her new mri report and she now has multiple lesions in her spine and thoracic,she definately was in a panic mode and ask if she could come over.Well of course,I wasn't gonna turn her away.I read her report and reassured her that none of the lesions were enhanced,they did not completely cross the spine and there was no spinal atrophy or stenosis.Thats a plus in her favor.I explained that these lesions according to the report that they were old and could of been there for a year or so.
She definately was releived when she left,but I'm worried as she is a mental wreck right now.She ask how do I cope and I told her it was one day at a time and not dwelling on tomorrow or what could be or never be.
We have the same neuro
Everyone here should keep going, a movin and a grovin,as we have so much to offer to our families ,friends and each other here.in order to conquering a disorder diagnosed or not is persistance as we all know our patience can wear thin waiting or not knowing.
Moki I'll share with you and zilla !!!!!!!! I won't be selfish.I'll even share my neuro!!!!!! I know that my humor doesn't always get me through the bad humps, but all of you wonderful people here do.Thats a blessing.Even though its gonna be a rough road after the first of the year,I definately am truelly blessed with my local doctors and all of you,I can't think of a better or stronger team.
Craig,I hope I didn't make ya speechless for to long,you have so much to offer us here.
For now I'm gonna enjoy the up and coming holidays,my daughters home coming(oh I can't wait) being with family and friends.
For now my Drs are just gonna control the pain, they added neurontin today to help with the on going burning in my right torsal and leg. I can't ask for more than that,except that the LP is pain free,but the area they are doing it at I have to lay flat for 48 hours no if's, ands or butts.I need the rest and the kids will be home,so that all helps.
To all thanks again for the hugs,prayers and tears.One last thought stay positive,its have the battle.
T
I look to humor as it gives me releif and if I didn't have that humor,days could get bad.
As bad of a day I was having yesterday,last evening I had to set that a side.A dear friend of mine has MS and has not been coping very well lately.To my amazement she was talking suicidal,as exhausted as I was we talked for almost 3 hours it was well after midnight before we said goodnight.
I called to check on her and she was feeling a little better today,but she went and picked up her new mri report and she now has multiple lesions in her spine and thoracic,she definately was in a panic mode and ask if she could come over.Well of course,I wasn't gonna turn her away.I read her report and reassured her that none of the lesions were enhanced,they did not completely cross the spine and there was no spinal atrophy or stenosis.Thats a plus in her favor.I explained that these lesions according to the report that they were old and could of been there for a year or so.
She definately was releived when she left,but I'm worried as she is a mental wreck right now.She ask how do I cope and I told her it was one day at a time and not dwelling on tomorrow or what could be or never be.
We have the same neuro
Everyone here should keep going, a movin and a grovin,as we have so much to offer to our families ,friends and each other here.in order to conquering a disorder diagnosed or not is persistance as we all know our patience can wear thin waiting or not knowing.
Moki I'll share with you and zilla !!!!!!!! I won't be selfish.I'll even share my neuro!!!!!! I know that my humor doesn't always get me through the bad humps, but all of you wonderful people here do.Thats a blessing.Even though its gonna be a rough road after the first of the year,I definately am truelly blessed with my local doctors and all of you,I can't think of a better or stronger team.
Craig,I hope I didn't make ya speechless for to long,you have so much to offer us here.
For now I'm gonna enjoy the up and coming holidays,my daughters home coming(oh I can't wait) being with family and friends.
For now my Drs are just gonna control the pain, they added neurontin today to help with the on going burning in my right torsal and leg. I can't ask for more than that,except that the LP is pain free,but the area they are doing it at I have to lay flat for 48 hours no if's, ands or butts.I need the rest and the kids will be home,so that all helps.
To all thanks again for the hugs,prayers and tears.One last thought stay positive,its have the battle.
T
Your post shows humor and courage, my prayers are with you. Hope all goes well with you and 2008 will be better! Take care.
Woman you are amazing!!!!! I read your post this morning at work and started to cry. I felt for you so much. I just wanted to be able to put my arms around you. I am now home and have read your update. Sure enough there was the humor!! You are an inspiration!!
I am so sorry that so much has happened to you and agree with Zilla that you don't need to pull ahead anymore. Time now to allow the docs to help you and heal.
I'm just so thankful that you have such a caring medical team who is going to help you now and to have one good looking is a much deserved bonus! (too bad he took the tie off haha)
As much as I know you have strength, courage and humor, it sometimes is not always enough to help during those down days. For that my friend we will always be here. We may not be able to help you in any other way, but we can be there to support you and be with you through this process.
My thoughts and prayers are with you daily.
(((((HUGS)))))
Moki
I am so sorry that so much has happened to you and agree with Zilla that you don't need to pull ahead anymore. Time now to allow the docs to help you and heal.
I'm just so thankful that you have such a caring medical team who is going to help you now and to have one good looking is a much deserved bonus! (too bad he took the tie off haha)
As much as I know you have strength, courage and humor, it sometimes is not always enough to help during those down days. For that my friend we will always be here. We may not be able to help you in any other way, but we can be there to support you and be with you through this process.
My thoughts and prayers are with you daily.
(((((HUGS)))))
Moki
T, You leave me speechless and so inspired at the same time. You are one strong woman!! I am praying for you and will be especially praying for you on Friday for a painless procedure. Thanks for your inspiration. I am sure you have made many people on this forum want to keep going, including me.
Craig
Craig
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