Has anyone gotten a dx for the menthol sensation and if not has it gotten better or worse over time. I believe it's some form of nerve damage. Possibly a sensory nerve in the cranial nerve.
I get the cold feelings when I'm in the hot shower. It's really weird and hasn't happened very much lately. I can't figure out what it is. I told my neuro, but she just wrote it down. I don't know what to call it or anything.
...I am sorry, I have just realised this is in the MS section. I do not have MS (as far as I know anyway) but I searched the symptoms I have and found myself here.
I know this is an old thread, but I had to post. I really identify with jensequitur. I too have the cold menthol sensation and taste. I feel like I have rubbed menthol on my skin, especially my face, and everything I eat or drink tastes of menthol. Actually, my taste sensations are all over the place, alternating between distinct menthol (I even feel like there are vapours going into my eyes) and a REALLY vile, bitter, chemically, poisonous taste, I recently had a dental implant and wonder if the trigeminal nerve has been damaged. I am interested why you mentioned this nerve too...do you have nerve damage? Any one else experienced this?
The ice cube on my right thigh was first - it's been going on for almost a year now. I can usually put up with it - pretend that my leg is cold, or the jeans are wet in that spot.
The face is a little harder to ignore! Specially when it gets really cold and feels like I've rubbed Icy Hot on it or something.
I also noticed a change in my tastebuds this last weekend - my hot and sour soup was oddly flavorless, but still spicy and hot (temperature-wise, that is.) So I could feel the slight pain from the spice, and the heat, but couldn't taste it.
I'll swap you, I'll take your menthol/peppermint taste if you'll take my soap taste, anyone i'm not fussy, (please!!) anyone up for a swap? :)
I've been getting (every now and again) a feeling that an ice cube is sitting on my left thigh, but never had the feeling of water though.
cheers....JJ
I think the strangest thing about it is that everything I eat and drink now has a hint of menthol...
I am so sorry to hear that you are still having a bad time with this.
Hope you get some relief soon.
Hugs,
Chrisy
This has been worse today - really cold feelings in my chin and nose, and sometimes my right eye. Looks like the trigeminal nerve is acting up again.
That is weird! But then i think that all of the sensory symptoms are weird!! I had a feeling of something cold on my left leg, along with a lack of sensation. Lasted about 6 weeks. I can relate - although not the menthol/peppermint/cooling sensation.
Hugs,
Chrisy