This probably won't help but I don't have MS (my husband does) and I have the same problems with the medical system for my own health issues.
My husband Patrick speaks slowly so the clerical staff at one of his former doctors (not the doctors or nurses) all treated him like an idiot. They were downright abusive, like he had no right to live because he was so stupid or something. Grrrrr - made me livid. Patrick is one of the most sensible, sensitive, kind and gracious people that I've ever known.
So Patrick had the same problem (phone tag and followup apt problems) with that MS specialist that he was seeing in the beginning. After a while he got so stressed out about it that I convinced him to return to the neurologist that made his original diagnosis (Dr. A). Dr. A is not a specialist in MS but is an exceptional neurologist who truly seems to care about Patrick's progress. His staff has been really great. They make all the arrangements about his meds and test appointments - they return phone calls within 30 minutes usually. If they don't have an answer to a question they find out and call back shortly. Dr. A even gave me his cell phone number. Maybe you could find another neurologist? This stress is just not good for your immune system, but I'm sure you know that... sorry, I tend to be a mother hen.
Hang in there,
Jois
Alex, as always you put a lot of thought into this and it shows. I do wish for you this next year a smoother road for all things in your life.
As for your wish, this could be our new mantra around here....
Give me patience, and give it to me now!
be well,
Lulu
I do believe you have captured the essence of MS.. infinite patience. Perhaps the goal of learning patience is to recognize what is really important and what is not. Just as you said, things that seem dire yesterday seem silly a week later.
Learning patience will be added to my New Year's resolutions.
Ren