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Evoked Potentials Results and neurologist's report

While I was filing old paperwork I found a report of the only evoked potentials test I had from 11 years ago.  It was normal, but said "Scalp amplitude was within normal limits, but at the upper end.  The large amplitude scalp response is not sufficient to suggest a cortical origin for the myoclonus."  

What is a large amplitude scalp response?  I know it's probably meaningless, but I was just curious.

This was the neurologist's final report at the time (this was at Mayo Clinic):

"In the final analysis, the diagnosis is spinal myoclonus but without any structural lesion or systemic cause with which to link this.  The cause is open to speculation.  Given all of the negative findings and the rather localized problem, I am left to question the possibility of an autoimmune etiology.  Obviously, we do not have any blood work to support that; however, there certainly are autoimmune disorders in which organ-specific antibodies are present in isolation."

After this I had a 5-day IV of Solu-Medrol and was sent on my merry way.  In the years following, any return visits to the doctor due to fatigue and muscle jerks left me with a diagnosis of anxiety or depression and tourette's syndrome.  I've gone years without significant problems, but the last couple years I feel like I've gone downhill.  

Should I push for more testing?  Could the myoclonus have been caused by 20 mg of Prozac which I was taking at the time?  I still have the myoclonus occasionally and haven't taken Prozac for 8 or 9 years, and every doctor I ask says that it wouldn't cause that, but I still wonder.  It was so bad back then that I would occasionally jerk so hard I'd fall down.
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I believe they did an EEG in 1998.  When this started I would jerk forward in my trunk and it would happen nonstop if I was laying on my left side.  If I was standing or walking it would jerk me hard enough that I'd fall sometimes.  It was very unusual and the doctors would go get their friends to come see.  But when all tests came back normal they just gave me drugs like Depakote and Neurontin to help with it.  It subsided substantially after the Solu Medrol treatment and only happens now if I've overdone it and gotten worn out.

Back when it was really bad I was working full time so couldn't rest when I needed it.  I eventually lost my job because of too much sick leave and now I thankfully have a very supportive husband and I'm able to work on my own schedule and rest when I need to.  If I had to work full time I think all my symptoms would probably be much worse.  

That's probably more than you wanted to know but it's good to be able to put my thoughts down!  
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Avatar universal
Jerking is so common its really hard to say its indicative of anything.  Usually other symptoms are needed to make any sense.  You might have a mild epilespy going on.  Have you had a electromyography (EMG) and electroencephalography (EEG) done?  If not I have heard these can he helpful.

Jon
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