I don't care anymore.

[mary_kay]

I don't care what the LP and MRI tests that I have to have on Monday reveal. I don't care about a dx. I don't care if I have MS or Fibromyalgia, or Mad Cow disease.  I just want help for my fatigue and pain. Capital F and P...all day every day.  Worse in the mornig but still there when I go to bed at night.  I wake up in pain and roll over. It is more and more difficult to get to work. I want relief.  I there anything I can take before I am dx'd?  

It is Saturday and there is so much I want to do around here.  My house needs cleaning.  I want to freeze the last of the brussels sprouts that I picked yesterday. I want to make a banana bread for my friend. I need to do laundry. I have been up since 5AM and all I have been able to make myself do is make coffee, sit in my recliner, and drink it.

My hands are killing me just to write this.   Wow. I am having a pity party.  But, I don't care. It's how I am feeling.
MK

[Fluffysmom]

I got a coupon from the company that makes Provigil for a free 7 day supply (which I haven't gotten filled yet), so if you decide to give it a try, you should get one of the coupons to start out with. I hear that it can be expensive and insurance only covers it for certain conditions, so I thought a free trial was a good idea.  I just googled Provigil and went to a website that offered a free coupon download.

I'm going to get my 7 day supply soon, 'cause this fatigue stuff is the pits!  

I did manage to cook a North African dish for lunch that was great, did two loads of laundry, and vacuumed.  Now my right arm doesn't want to work very well, and I'm thinking "naptime".   Either that, or "chocolate"!  :o)  Caffeine makes my tremors worse, so I'll have to sip herbal tea while everyone else has their coffee or tea.  

Hugs,

Kathy

[Quixotic1]

God I love banana bread....

I'm sorry you're feeling that way, but it makes a lot of sense.  Your discomfort should be treated.  That is a basic responsibility of physicians.

If your pain has no discernible cause and is felt by your doctor to be nerve pain or something like Fibromyalgia, then your doctor owes it to you to attempt to relieve it.  The med, Lyrica has been approved for use in Fibro by the FDA and you should request it.  Even if this isn't Fibro, the trial of med will not hurt anything and may give you relief and help in understanding that this is neuropathic pain.

If he is unwilling to do this simple thing, then do request a referral to a Pain Clinic.  They can make the little step of determining if this pain has a physical cause or if it is nerve-caused.

You can ask for something for fatigue.  Tell him you have a good friend, who is an MD,  with both MS and Fibro (okay a little fib, so sue me) who recommended that you talk to him about a trial of Provigil.  Yes, it is off label, but the fatigue is destroying you and you need the help.  If he won't then maybe your neuro will.

Before you or anyone starts a med for Nerve Pain read the HP on Treating Nerve Pain.  It was written by a visiting Pain Management doc who dropped by here.  It is a great resource for helping to ensure that you don't have to stop the med by starting the dose too high (most doctors jus go by the book and start it too high and andvance the dose too fast)

http://www.medhelp.org/health_pages/Multiple+Sclerosis/General-Principles-of-Treating-Neuropathic-Nerve-Pain/show/452?cid=36

Good reading!

Stay with us Hun, we will always be here to listen to a whine, sip some tea, insult some doctors, and swap stories.  Let's see if we can focus on getting you some relief from symptoms.

Quix

[mary_kay]

Love you guys....
Mary Kay

[Fluffysmom]

I'm still in my nightie, so I had to jump on and say that I can relate, too.  I have a perfect day with nothing I have to do, and want to vaccuum, do laundry, cook a yummy vegetarian curry, and bake something.  

Banana bread sounds wonderful, but I only have one banana.  Do you think I could replace the rest of the bananas in the recipe with applesauce?  I have this tasty organic apple-blueberry sauce...  I also have a healthy cookie recipe that uses applesauce instead of butter, chopped nuts and dried fruit, etc.

OK, if you can do it, I can, too.  I'm heading for the shower!

Kathy

[doni54]

I'm there with you, sweetheart.  Somedays it's just too much, isn't it?  I told a friend yesterday that I've gotten timid about waking up in the mornings wondering what will be wrong that day.

I've always liked surprises, but the ones I've been getting the last couple of years are just not much fun....hee.......hee.........hee

Just do what you can and don't worry about the rest of it.  Sounds like your day is getting a little better, anyway.  Ummmmmmmmmmmm banana bread sounds delicious!!  

I'm sending you strength to fight the fatigue, and a bunch of hugs to let you know you're not alone!!!

doni

[saveone]

Way to go!

[mary_kay]

Thank you.....thank you.  You will be proud of me.  I got a shower and got dressed...then I made that banana bread (it's in the oven) and washed the dishes. It was really hard, but  I don't feel any worse now...(could I?)  so I will rest awhile and try some laundry.  That should be easy.  I am very grateful for the tip on the medicine, the empathy, and the humor.  You all are so wonderful. I will definitely ask my neuro about it.  In her defense, I don't think she realizes how I am feeling.  Things are changing so fast, I hardly get a chance to tell her.  Of course, today is Saturday, so they aren't in the office.  That's how I seem to do things...LOL    
Onward and upward!
Love,
Mary Kay

[Lulu54]

I would be happy to join your pity party - do you have any tea? They made me give up coffee last spring - you talk about a loud whine! They also advised me to give up chocolate! Talk about a double whammy.  

So now that we both have a warm cup of something to sip on, let's talk.  There is no excuse in this day of modern medicine for anyone to live in pain.  If your doctor isn't comfortable managing your pain then ask for a referral to a pain management clinic or doctor.  The same with the fatigue - speak up and ask them for help.

I don't have your pain problems (yet) but I do have the fatigue and wish I could get up off my duff and actually accomplish something here.  And I think I get stuck in a vicious cycle of the less I get done around here, the more fatigued I become  Maybe we could get together more often and help each other out with some light tasks!?!?

Well thanks for the tea - your coffee sure does smell good.  Got to go and at least get dressed before noon.

My best, Lulu

[saveone]

Thanks for inviting us to share your pity party.  We all have to have them and if enough people attend you will begin to feel better, maybe not physically but at least emotionally.  I had one just the other night and several people came and responded.  That alone made me feel better knowing I wasn't alone.  That is what we are here for, to offer support when someone needs it the most. I am sorry you are having such a rough day.

As to medication and having a dx, I don't know very much about that.  I do know my neurologist who has not given me an official dx prescribed zanaflex 4 mg to help me with the muscle tension and associated pain.  Maybe talk to either your gp or neuro one of them might be willing to assist you in managing the F&P.

I hope your day improves.  I will be thinking of you.

[cherylm_h]

I am knowing how you feel.I am feeling same   to where i just dont care anymore  either.
Hope  everything works out and that the Drs will help you soon

[hbananas]

Aw, c'mon, you really do care if you have Mad Cow, don't you?  We care.  I hope some of the people who are taking medicines for fatigue and nerve pain will answer soon--I've heard some positive things on this board about that.