Thank you so much for taking the time to address each of us! I am frustrated that the neuro did not address my bladder issues when I was at the Mayo clinic in January.
I am seeing my new PCP on March 28th and will definitely be speaking to her about ALL of my symptoms with the hopes that I can get some answers to what is happening to me.
Chrisy
Bio - I am wounded!
I am going to discuss some possible scenarios for the different problems (other than with my humor) that people brought up. But, this should NOT stand in place of telling your PCP or neuro about them.
Leaking a small amount everytime you stand up. Tracy and several people complained about this. (And yes, Tracy, this should be mentioned to your PCP and neuro.)
This is usually a mechanical problem, meaning it has to do with the anatomy and not malfunction of the nerves. Something happens to change the situation at the urethra when you stand.
1) Kathy brought up a common one was a small diverticulum (pouch) coming off of the urethra. It fells with urine while you are peeing and then is squeezed when you stand expelling just enough urine to make you mad. Yes, a nutshell would work here. I have taken several large washcloths and cut them into small 4" squares. Then I use these to catch the "after leak" and this solved the problem.
2) Ess is correct that constipation can cause this problem. The stool sitting in the rectal vault shares the same space as the bladder. The pressure from hard stool can cause some urine to not reach the urethra until we stand up. When this is the cause the leakage is intermittent. Sometimes it's a problems and some not. If we are aware of being constipated we can begin to see if that is causing the problem.
Constipation can also cause us to urinate more frequently because the pressure on the bladder doesn't let it hold as much. Or the constipation may prevent some urine from being expelled at all so it just remains in the bladder. This can be a cause of UTIs in all ages. I frequently saw it in girls in my practice.
3) The shape or position of the bladder may allow some urine to not reach the bladder and when we stand up it dumps toward the urethra. The urethra is still in "pee mode" and releases the urine as we stand up. This may result in the release of a little or a lot of urine.
It is not unusual for women with or without MS to have to learn to wiggle around to get all the urine possible out. They may have to lean to the right and left, rock their pelvis back and forth and then stand up and sit back down. If this is sounding a little like a "lap dance" then you have the picture.
Another common problem is Stress Incontinence. This is often due to poor support of the pelvic floor muscles. The bladder may be full or not full enough yet to have signaled the need to find the "socially appropriate place. The act of laughing, coughing, sneezing, jumping, etc causing the pressure in the abdomen to rise. In a perectly normal person there is also a tightening of the pelvic floor muscles when we do these things, along with the tightening of the shpincter. This causes pressure on the bladder as if it were contracting (but its not). The sphincter is weak and the perineal muscle is weak and can't hold the urine back under the increased pressure and we leak. This is a very shortened explanation of stress incontinence.
The more neurological problems:
Chrisy (goofysmom), Kathy complained about the urine flow starting and stopping. The medical term for this is hesitancy. This can be from one of two problems or a combination of the two. The urinary spincter may suddenly spasm closed mid-stream. This will stop the flow. Or the detrusor muscle of the bladder may relax so there is no pressure to allow the urine out. Mostly this is called Detrusor Sphincter Dyssynergia - lack of a proper coordination between the two muscles. The two need to act in synergy. The sphincter must relax at the same time the bladder muscle contracts.
Guita_grrl - It sounds like you had an episode (the "Not so fast!" one) of having the two muscles being out of sync with each other.
Wobbly - Losing it all without any signal is pure incontinence. Somehow the whole "signal to the brain" thing got sidetracked. This MUST be reported to your neurologist. I would tend to blame the Pontine Micturition Center, but it could be a problem in other places in the whole pathway.
Urge Incontinence - This is when the urge hits suddenly and let's you know you need to pee NOW! This may be coupled with frequency. You spend your life acting like someone trying to steal second base, afraid to get your foot away from the bathroom threshhold. The leakage may begin immediately or during the rush to the bathroom. Often it occurs at the arrival at the toilet itself as you frantically try to remove all necessary layers. Or the classic one is that the leakage occurs as you fumble to get your key in the front door.
The typical problem is that the bladder is spasming like crazy, and the spasms are enough to overcome the tightness of the sphincter. There is also likely a part of the problem that involves the sphincter relaxing too early and allowing the leakage. This is a classic case of Overactive Bladder. Opie, you are correct in stating that your bladder is just too sensitive to having a little bit of urine in it.
It is important for people with urge incontinence to get a urinalysis to make sure they don't have a UTI (urinary tract infection). An infection will cause identical symptoms to Overactive Bladder. A person can have a low-grad urine infection without feeling ill or without burning - just enough to keep the bladder in spasm.
Ess has Urinary Retention, the situation that worries the docs the most - a bladder that just retains the urine and does not send proper signs to the brain that it is full. Or if it does, the detrusor muscle is "areflexic" and cannot contract to expell the urine. This may be coupled with a sphincter in spasm. The concern here is that the bladder my overfill and push the urine up the ureters. These are the tubes that drain urine from the kidneys to the bladder. If the urine backs up into the kidneys it will cause kidney damage. It happens more easily in men, but can happen in women also. Ess they have done ultrasounds of your kidneys or an IVP haven't they?
So, this is how malfunctions of the urinary system can cause the different symptoms and problems we have. I will do a new post on what is happening to me in my Continence Physical Therapy.
Quix
I, thankfully don't have leakage problems. For a year of so, I could not relax the sphenctor. (sp?) Now, I feel the urge, hold it, go. BUT soon after, It starts again. As if my bladder is too sensative. Just a little, and I have got to search for the nutshel or pot, or borrow the kids diaper. LOL again, and again, and again. It is really bad when I go to bed.
Kathy, for a friend of mine, her chronic constipation was at the 'bottom' of her slight leakage. This makes sense to me, since if the bowel gets rather impacted it can impinge on the space the bladder normally takes up. Hey, move over! And problems result.
I think it was you who posted the world's best natural constipation remedy, wasn't it? Or called something like that. Bran and prune juice and other things that can be frozen into ice cubes and added to tea or other drinks. I sent my friend the recipe and it has really helped her. Haven't heard any more about the problem since then.
For me, based on my uro report, I seem to have floppy bladder, coupled with a little confusion in the urination headquarters. Either the bladder would contract and the sphincter just sat there, or vice versa. But I've always been really uncoordinated. :-)
ess
bumping this up for Quix - wondering her thoughts on what we have all posted so far.
Hugs,
Chrisy
Was that fun, or what? :o) Thanks, Quix, I thoroughly enjoyed the explanation and the giggles. A friend called when I was reading it; I read her part of it, and I think she laughed so hard she may have been looking around for a nutshell!
I also have the stop and start flow of urine, and some leakage. My awesome urogynecologist did a lot of testing, and couldn't find any reason for any of my probems, though she said that the reasons don't always show up right away in a neurogenic bladder situation.
One of the suggestion she had for the leakage was a possible diverticulum in the urethra (little pocket in the side of the tube that the urine comes out through) that could retain some urine, which is then pushed out when I stand up.
I had a pelvic MRI with contrast, and it didn't show any diverticulum. It was interesting to see in the report " There are several T2 hyperintense lesions withing the lower uterine segment which is likely to represent small nabothian cysts." Those are just a benign incidental finding, but I thought "gee, I've got glowing spots at both ends!" :o)
Kathy