Aa
ME or MS
For the past two years i have been suffering from MS type symptoms but have been diagnosed with M.E. I had one MRI scan which did not show lesions on brain or spinal cord. My neurologist said my nervous system has been attacked by a virus and that she thinks i have reached a plateau with regards to my mobility ( i need sticks to walk less than 40 m and a wheelchair for anything longer). My legs feel like rubber sometimes and other times i feel like i am walking through treacle. I have visible muscle twitching all over my body, attacks of vertigo, severe neck and shoulder pain, altered sensations in my hands, feet and round my saddle area. I have pins/needles in hands and feet constantly as well as twitching in fingers and toes. Balance problems and memory lapses are a biggie for me as well. i would appreciate any feedback to my post as i feel i am basically being left in limbo by the so called medical profession, thanks for reading.....Chrissy x
I was diagnosed with M.E. in December 2011, but the M.E.. specialist said he was not there to help with my mobility problems and that i have M.E. as an 'add on' to whatever else is going on (great).
Are there others on here who have the same or similar problems, i would appreciate hearing from you as i feel i am being left in limbo
I was diagnosed with M.E. in December 2011, but the M.E.. specialist said he was not there to help with my mobility problems and that i have M.E. as an 'add on' to whatever else is going on (great).
Are there others on here who have the same or similar problems, i would appreciate hearing from you as i feel i am being left in limbo
Myalgic Encephalomyelitis. It keeps being linked with the old yuppy flu or called Chronic Fatigue (which it is not), just that one of the symptoms is chronic fatigue like MS.
It is also classed by the World Health organisation as a nuerological disorder but so many neuros will not entertain it....
There is an abundance of research which shows that M.E. is an organic illness which can have profound effects on many bodily systems. Many aspects of the pathophysiology of the disease have, indeed, been medically explained in volumes of research articles. More than a thousand good articles now support the basic premise of M.E. Whilst it is true that there is as yet no single laboratory test which can diagnose M.E., there are a specific series of tests which enable a M.E. diagnosis to be easily confirmed (MRI and SPECT scans of the brain for example).
Some of the abnormalities found in M.E. patients include: extremely low circulating blood volume (up to an astounding 50%), enzyme pathway disruptions, punctate lesions in M.E. brains resembling those of multiple sclerosis patients, sub-optimal cardiac function and abnormal cardiovascular responses, persistent viral infection in the heart, severe mitochondrial defects and significantly reduced lung functioning.
Strong evidence also exists to show that (even mild or moderate) exercise can have extremely harmful effects on M.E. patients; permanent damage may be caused, as well as disease progression and there have also been deaths. This is why the exercise programs being ‘recommended’ or sometimes forced on M.E. patients (including young children) to treat their supposed ‘chronic fatigue’ are so dangerous and harmful as to amount to legalised torture. Patient accounts of leaving exercise programs much more severely ill than when they began them (wheelchair-bound or bed-bound or needing intensive care) are common.
Sudden deaths have also been reported in M.E. patients following exercise.
How common is Myalgic Encephalomyelitis and who gets it?
M.E. has a similar strike rate to multiple sclerosis. M.E. affects more than a million children as young as five, teenagers and adults. It affects all ethnic and socio-economic groups, and has been diagnosed all over the world.
Some people diagnosed with MS have been then told it was M.E. or vice versus because the symptoms are just so much the same.
It is also classed by the World Health organisation as a nuerological disorder but so many neuros will not entertain it....
There is an abundance of research which shows that M.E. is an organic illness which can have profound effects on many bodily systems. Many aspects of the pathophysiology of the disease have, indeed, been medically explained in volumes of research articles. More than a thousand good articles now support the basic premise of M.E. Whilst it is true that there is as yet no single laboratory test which can diagnose M.E., there are a specific series of tests which enable a M.E. diagnosis to be easily confirmed (MRI and SPECT scans of the brain for example).
Some of the abnormalities found in M.E. patients include: extremely low circulating blood volume (up to an astounding 50%), enzyme pathway disruptions, punctate lesions in M.E. brains resembling those of multiple sclerosis patients, sub-optimal cardiac function and abnormal cardiovascular responses, persistent viral infection in the heart, severe mitochondrial defects and significantly reduced lung functioning.
Strong evidence also exists to show that (even mild or moderate) exercise can have extremely harmful effects on M.E. patients; permanent damage may be caused, as well as disease progression and there have also been deaths. This is why the exercise programs being ‘recommended’ or sometimes forced on M.E. patients (including young children) to treat their supposed ‘chronic fatigue’ are so dangerous and harmful as to amount to legalised torture. Patient accounts of leaving exercise programs much more severely ill than when they began them (wheelchair-bound or bed-bound or needing intensive care) are common.
Sudden deaths have also been reported in M.E. patients following exercise.
How common is Myalgic Encephalomyelitis and who gets it?
M.E. has a similar strike rate to multiple sclerosis. M.E. affects more than a million children as young as five, teenagers and adults. It affects all ethnic and socio-economic groups, and has been diagnosed all over the world.
Some people diagnosed with MS have been then told it was M.E. or vice versus because the symptoms are just so much the same.
Hi chrissy check out this web site it is very informative about M.E. versus MS.
ahummingbirds guide. (just copy this and google it). I was shocked at the similarities between the two, even down to lesions and demylination. x
ahummingbirds guide. (just copy this and google it). I was shocked at the similarities between the two, even down to lesions and demylination. x
Hi Tammy
Thank you so much for your reply. I know that patience is a virtue, so they say. but i am really getting to the end of my tether with all that is happening to me. I feel i am a burden on my family, especially my fab husband on whom i rely everyday to get me out of the house. I just want to be me, the person i was two years ago, happy, bubbly, full of energy, confident and in love with life. I hope at some point as you say they figure it out, here's hoping.
(((hugs))) to you to too and again thank you for your response
Chrissy
Thank you so much for your reply. I know that patience is a virtue, so they say. but i am really getting to the end of my tether with all that is happening to me. I feel i am a burden on my family, especially my fab husband on whom i rely everyday to get me out of the house. I just want to be me, the person i was two years ago, happy, bubbly, full of energy, confident and in love with life. I hope at some point as you say they figure it out, here's hoping.
(((hugs))) to you to too and again thank you for your response
Chrissy
That was one of the things my primary care doctor thought was possible originally. There are multiple articles online about all the different symptoms Chronic Fatigue Syndrome can produce, and some of them are similar to MS. (I guess that makes sense, because they both cause problems with nerves- although not the same way...) I am not sure chronic fatigue can cause true mobility problems though. For your sake, I hope your symptoms go away, and you won't have to worry about this again. If not, they will figure it out in time. Patience is the key. I am very sorry you have to go through this. I do understand, I have several of the same problems you list- including trouble walking.
(((Hugs,)))
Tammy
(((Hugs,)))
Tammy
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