"MS" How does your tingling feel? Where is it located?

[sammycung]

Hi, i was wondering how the tingling from multiple sclerosis feels for you.

-If you wouldn't mind, could you please explain:

*How does your tingling feel?
*Where is your tingling located?
*How often do you expirience it?
*Do you only get it on your extremities?
*Do you only get it on your torso?
*Do you get it on both your torso and extremities?

Thankyou very kindly :)
Sammy x x x x

[jensequitur]

I get tingling everywhere, although not at the same time!  I think that at some point almost every bit of me has tingled or buzzed - knee, feet, chin, nose, my right eye, my back, etc.

[sammycung]

Wow, thanks for all your replys guys, you all have such different symptoms, i can relate to the goose bumps in weired parts of my body, they appear in little patches, and i'm not cold when they happen. I get the hot and cold patches of skin, it sometimes feels like someone is putting warm water on my skin, or my skin feels like it is near a heater.

I also get muscle twitches in almost any part of my body and i too can see then just by looking at them.
My tingling sometimes comes in waves over my scalp and down my body but more commonly i get little tingles all over my body but not at the same time.
I get it on my legs, feet, arms, hands, stomach, ribs, underarms, hips etc.
I have not even been diagnosed with MS yet, I'm sure that i have it though.

None of you guys seem to get tingling on your torso???

I have so many other symptoms but i would be here forever....balance, vertigo, buzzing, spasms, etc etc etc....blah blah blah!

[rjb1682]

Hey Sammy, I have many of the same symptoms as you, however, I was diagnosed with viral myelitis.  Basically, a virus attacked my spinal cord they believe.  I have tingling across my back, hands, feet, hot spots around my body, both knees felt wet like they were submerged in water, body wide muscle twitching...among other things. Until you have a MRI on your brain, cervical and thoracic, it'll be hard to say.  BUT, it could be simple things like lack of vitamin D, or B6 toxicity if you're taking supplements.  Shoot me a message if you want to chat more.  Good luck!

[supermum_ms]

Just letting you know that sammycung hasn't posted anywhere on medhelp since 2010 so is very unlikely to respond to your post to her. Cheers....JJ

[jensequitur]

I get tingling on my back, as I said - it's usually in a line around my torso, a little bit above the braline.  

It's in the same area that also gets muscle cramps, and it's in a line with the esophageal spasms I get right behind my sternum.  So my 'uneducated' guess is that I have a lesion there, but my oh-so-wise neuro believes I do not, after looking at the .7T MRI results that he scheduled me for.  No, I'm not bitter!

[supermum_ms]

Hi Sammy,

I wont go into everything but.........

Q. How does your tingling feel?
A. pins and needles, numb, dead limbs to pain, hot to cold

Q. *Where is your tingling located?
A. Both legs, Both arms, both hands (thumbs & 2 fingers), both feet, nose tip, left cheek, right crows feet area, buttock, left waist between ribs and hip, left ribs (baby hugs)

Q.*How often do you expirience it?
A. Legs everyday for about 20 years, arms everyday for about 15 years, everything else only during episodes starting 6 years ago and adding to my list of weird things

Q. *Do you only get it on your extremities?
A. Mostly but now have the face tingles, baby hugs started 2008, tingle between rib and hip is new to this episode

Q. *Do you only get it on your torso?
A. See above [note: baby hugs for me are both tingling and preasure]

Q.*Do you get it on both your torso and extremities?
A. Yes [see above]

I too am not dx but unless a new disease with my name on it comes along, it's looking like i've had MS for half my life, i'll know at the end of the month.

Cheers.....JJ

[huff1711]

I am brand new MS, so I'm not sure which tingling deals with what.  There is a few different I feel. But the most frequent feels like it starts around my chest, and in a straight down across my body, feels like one line of vibration shoots down to around my knees. Happens a couple times an hour minimum. Sometimes it happens 2-3 times a minute. The others haven't happened enough for me to really figure out where exactly it is or what if feels like. Just know that it had happened and took me by suprise.

[Armygirl73]

Hi there,

I get lots of tingling in my left leg, foot and side. It feels more like a constant thrumming vibration but fairly mild.

I recently went through a period of "firework" like tingling in my scalp, calf and stomach where it felt like a small firework bursting with a tingle then fading out to the thrumming feeling.

I have tremors in my head and left hand now too. Periods of numbness in my foot, burning feeling on various parts of my body. And to add today, I have on and off felt like I have a wet leg. My lower leg feels like I just got out of the shower and forgot to dry off that leg ... strange.

These things can really drive you crazy, huh? I'm undergoing diagnosis now ... delayed some at my fear of needles and my dislike for the doctors here in Germany.

Hang in there. I know it's all so strange. There are great folks on here who can definitely identify with the strange things you are feeling.

Blessing,
ArmyGirl73