yes my opthalmic surgeon has told me intermediate uveitits can be linked to MS so you are not going crazy. When I went to see a neurologist due to numbness in my fingers he was only aware of the link with optic neuritis not uveitis. I have had uveitis for 10 years and last year got numbness in my fingertips. Am currently awaiting results of lumbar puncture( which by the way was nowhere near as bad as I thought it was going to be.
yes ms associated whith uvitis esp. intermediate uvitis but rara and untill now unknown the mechanism
but anyway you take treatment (cortesone( and it drug treat both disease according to your severity
I am dr ashraff
mobile +20114072712 for any qus...
Hi Scruffygurl,
You actually posted on an older thread, but that is ok. Glad to meet you. I'm Shell, was dx'd in 07 w/MS.
I'm glad you came along, and it's nice to see that your Neuro is willing to get you on some meds that you can tolerate. And actually acknowledged the seizes being common w/MS. I"m glad you are getting the EEG.
I have heard good things about the Tysabri, despite the handful of cases of PML.
If you are able. ONce on the main MS forum page, click on post a question and introduce yourself if you feel comfortable to do so. I'm worried you will get lost here on this older discussion.
See you around!
Shell
i was diagnosed in 2006. i tried rebif for 6 months, nearly killed me. when i would take it, profuse vomiting, inability to walk unassisted, blindness, raging fever, rigor, confusion, excruciating headaches. went to neurologist, "let's try something new, all medications are not for all people". Avonex, did GREAT for 4 months, insurance complications held up my shipment for 5 weeks. When i restarted the injections, all the above symptoms, with chest pain and paranoia! I have been off treatment since Sept. awaiting the start of Tysabri infusions monthly. I've been told that this is what is given when all others are not tolerated. I understand your frustration. I started blacking out a few weeks ago. am black and blue, scraped up from falls. Neurologist said my initial exam was unremarkable, but i was probably having seizures, which are common to MS. They are NOT common to me! I go today for an EEG, tomorrow for an MRI, in two weeks for a carotid study. Hang in there. You are not alone. There are more of us, but even then, God is always with you. Tell Him your frustrations and pray for guidance. Be your own advocate. MS is an invisible disease. No one sees the pain, the fear, or the frustration that comes with it. My disability claim was delayed 6 months because the social security rep didn't think i looked like i needed disability, just SSI! It was bad enough I lost my job as an RN! If it was bad enough to destroy my career, it deserves disability! we must stick together. Unity is the backbone of any cause or belief as is faith. we must fight and believe in the fight. I will be praying for you and your family. God Bless You
Scruffygurl
hi there know i have,nt been on in a while .let your mam know it is not that bad ........ what ive learnt is that some people have so much worse . im on the treatment now over a year and it does get easier. in the begining it did,nt seem that way but after the side affects wears off . it does,nt seem so bad . let me know how ur mam got on . msjinx
My mom has just been diagnosed and is taking rebif and now is having blackouts along with shaky hands and the same things you have described. We are going back to the neurologist on Friday and don't know what to do. I just want to know if my mom will ever have some kind of normalcy in her life?
Thank you
hi ]
sharon here can u get back to me when u find out your results . my doctors still insists that ms and uveitis are not linked . i just need to know im goin mad because ive read otherwise which is really frustrating. most people seem to get uveitis first thats how the are diagnosed . but i did,nt i got ms first can u help me ?
would be really grateful
I'm so sorry you are going through all of this. Especially with a new baby. I'll pray that your doctors will do something soon about your meds. It sounds to me like you need a different kind. I don't think they are supposed to make you worse.
I hope everything turns out ok for you.
I'll be praying,
Carol
The treatment I have received for the Uveitis is Steroid drops along with a steroid drip which is given to me in hopsital on an out patient basis .when i have a replapse. but I would not advise steroid as I feel that they weaken you ammune system and often leave me depressed and their benefits are negotiable, they fix what theyre given for but have too many side effects, the only reason i take them is necessity as I have a small child to care for.
I have had both Optic Neuritis and Uveitis...this is why my opthamologist asked for a CT scan last year. Then when the ON came back this year she wnated to refer me to a neuro (however I already had an appt with one from other symptoms) She said she wanted them to do an MRI on me for an MS evaluation. By the time I went to my neuro for my 1st appt, my eye doc had already sent my records over to her. She told me the same thing...they are both possible links to MS. I don't know what to do about dealing with it though, as I have yet to be diagnosed!
If you hear anything else, let me know! I will keep an eye on this thread!
BOL
Aussy