Thanks for you comments,
I spoke with the neuro today re all my results and he acknowledges the complexity and variety of my symptoms.
He also said that he thought that my degenerative disc disease of longstanding has confused the issue owing to the leg pain and balance and gait prtoblems.
He wants to wait until the tests of next week (BERA etc) are complete and also the consult with the ophth/neuro (also next week) before making a diagnosis. I understand this and expected him to say this very thing. In reality this process has not taken too long to get to this point. If there is no diagnosis then nothing really will change.
I read through the various posts on this forum and are horrified when I read of the problems some of you people are having getting treatment and the fact that some of you are not getting any treatment. I will have to Google your health system and learn a little more about your Medicare and Medicaid cover.
Hoping everyone is having a nice day.
P
Sounds like you need your thyroid checked since it is your eyes and temperature that's bothering you.
P -
The EEG was probably the most uncomfortable of all the tests for me. I twitched a lot during the one hour long test. I will be curious as to your results. My EEG did not reflect any abnormalties for seizures but it did have many single abnormal spikes. No cause was reflected or mentioned. It was just disregarded. I thought it was the myoclonus I have.
Also, please tell me what comes up from the hot flashes. I swear sometimes I get those as well when I don't feel well. I am not menopausal. Oddness.
Crossing my fingers for you that you get answers very soon. :)
Bob