Aa
Merry Christmas everyone
I hope that everyone is doing well and that all of you have a great day with family and friends.
Here is the deal. I have posted comments in your forum just recently, but I need some answers in relation to living with>MS.
It maybe just me, but I feel that MS is slowly taking a faster pace to which it seems I can't deal with. I am having a hard time dealing with my last doctors' visit. You see, lat week I had appointments with eye doctor and my physiatrist and OT expert. I was a little frustated because of my new treatments for the next six months. My eye doctor recommend that I wear an eye patch on my left eye for at leat 18 hours a day for the next 6 month to a year. He indicated that this recommendation was based on my last bout of double vision experience, which he understand has taken very long to heal. He said that I should wear a regular eye patch on my left eye or that a frosted foil should be adhered to my glasses. He said that my vision was getting worst and that in order to improve it, I should follow his instructions to the T.
My physiatrist prescribed to wear leg braces on both my legs because my feet drop was causing mobility issues and make it difficult to walk and to the include by double vision. I asked her if after being fitted with my "new legs", would I still have to use a cane. She indicated that my braces and cane would become my best friends through the rest of my life.
I am little frustaed because of how much MS has taken from my relative normal life. I seems that as life goes on, I am loosing a lot of my regular daily routine and I cannot understand it. I have been in Avonex for the last two years and nw it is very hard for me to accept my prognosis.
Can anyone help me with my frustations and/or is anyone going through me experience and has good advice for me to follow.
May your Christmas bring joy, health and best of all a time in which MS can be set asidee for a period of time!!!!!!!!
Thank you for your help:)
Goodays
Here is the deal. I have posted comments in your forum just recently, but I need some answers in relation to living with>MS.
It maybe just me, but I feel that MS is slowly taking a faster pace to which it seems I can't deal with. I am having a hard time dealing with my last doctors' visit. You see, lat week I had appointments with eye doctor and my physiatrist and OT expert. I was a little frustated because of my new treatments for the next six months. My eye doctor recommend that I wear an eye patch on my left eye for at leat 18 hours a day for the next 6 month to a year. He indicated that this recommendation was based on my last bout of double vision experience, which he understand has taken very long to heal. He said that I should wear a regular eye patch on my left eye or that a frosted foil should be adhered to my glasses. He said that my vision was getting worst and that in order to improve it, I should follow his instructions to the T.
My physiatrist prescribed to wear leg braces on both my legs because my feet drop was causing mobility issues and make it difficult to walk and to the include by double vision. I asked her if after being fitted with my "new legs", would I still have to use a cane. She indicated that my braces and cane would become my best friends through the rest of my life.
I am little frustaed because of how much MS has taken from my relative normal life. I seems that as life goes on, I am loosing a lot of my regular daily routine and I cannot understand it. I have been in Avonex for the last two years and nw it is very hard for me to accept my prognosis.
Can anyone help me with my frustations and/or is anyone going through me experience and has good advice for me to follow.
May your Christmas bring joy, health and best of all a time in which MS can be set asidee for a period of time!!!!!!!!
Thank you for your help:)
Goodays
It feels so good to have people, whom you don't even know, understand what you go through. There is one phrase that irates me so much that I have to share it with you "but you look so good!! Ms is not a condition that lets people know what you are going through, except for those of us who are going on the same boat.
I have given the Lord all of my difficulties so that He can show me the way to an easier life. This is His promise and He has never let me down.
Each and every one of you will be included in my prayers for that I have never had anyone in my position and now I have a lot to share with you all.
Keep up the faith,
Gooddays
I have given the Lord all of my difficulties so that He can show me the way to an easier life. This is His promise and He has never let me down.
Each and every one of you will be included in my prayers for that I have never had anyone in my position and now I have a lot to share with you all.
Keep up the faith,
Gooddays
I was recently fitted with 2 leg braces and just from my experience, your doctor was correct, your best friends will be your cane and braces. Mine sure are.
I'm so sorry that you are facing these trials right now but I'm sure that if you give them to the Lord that he will carry them for you and help you through it.
I'll be praying,
Carol
I'm so sorry that you are facing these trials right now but I'm sure that if you give them to the Lord that he will carry them for you and help you through it.
I'll be praying,
Carol
Your words and prayers on a day like today, Jesus' Birthday. is like music to my ears. I would make your prayer mine. Thank you for providing me with it.
I will try to be in contact.
Merry Christmas and the best of health for next year to come.
I will try to be in contact.
Merry Christmas and the best of health for next year to come.
My heart goes out to you on this Christmas day and I have nothing to offer but my prayers. The following prayer has comforted many and I hope it does the same for you.
The words are taken from the Holy Bible: They will change your life if you let them. For they come from the very heart of God. He loves you, and He is the Father you have been looking for all your life ...
This is His love letter to you.
My Child,
You may not know me, but I know everything about you. I know when you sit down and when you rise up. I am familiar with all your ways. Even the very hairs on your head are numbered. For you were made in my image. In me you live and move and have your being. For you are my offspring. I knew you even before you were conceived. I chose you when I planned creation. You were not a mistake, for all your days are written in my book. I determined the exact time of your birth and where you would live. You are fearfully and wonderfully made. I knit you together in your mother's womb. And brought you forth on the day you were born.
I have been misrepresented by those who don't know me. I am not distant and angry, but am the complete expression of love. And it is my desire to lavish my love on you. Simply because you are my child and I am your father. I offer you more than your earthly father ever could. For I am the perfect father. Every good gift that you receive comes from my hand. For I am your provider and I meet all your needs.
My plan for your future has always been filled with hope. Because I love you with an everlasting love. My thoughts toward you are countless as the sand on the seashore. And I rejoice over you with singing. I will never stop doing good to you. For you are my treasured possession. I desire to establish you with all my heart and all my soul. And I want to show you great and marvelous things.
If you seek me with all your heart, you will find me. Delight in me and I will give you the desires of your heart. For it is I who gave you those desires. I am able to do more for you than you could possibly imagine. For I am your greatest encourager. I am also the Father who comforts you in all your troubles. When you are brokenhearted, I am close to you. As a shepherd carries a lamb, I have carried you close to my heart. One day I will wipe away every tear from your eyes. And I'll take away all the pain you have suffered on this earth.
I am your Father, and I love you even as I love my son, Jesus. For in Jesus, my love for you is revealed. He is the exact representation of my being He came to demonstrate that I am for you, not against you. And to tell you that I am not counting your sins. Jesus died so that you and I could be reconciled. His death was the ultimate expression of my love for you. I gave up everything I loved that I might gain your love. If you receive the gift of my son Jesus, you receive me. And nothing will ever separate you from my love again. Come home and I'll throw the biggest party heaven has ever seen.
I have always been Father, and will always be Father.
My question is: Will you be my child?
The words are taken from the Holy Bible: They will change your life if you let them. For they come from the very heart of God. He loves you, and He is the Father you have been looking for all your life ...
This is His love letter to you.
My Child,
You may not know me, but I know everything about you. I know when you sit down and when you rise up. I am familiar with all your ways. Even the very hairs on your head are numbered. For you were made in my image. In me you live and move and have your being. For you are my offspring. I knew you even before you were conceived. I chose you when I planned creation. You were not a mistake, for all your days are written in my book. I determined the exact time of your birth and where you would live. You are fearfully and wonderfully made. I knit you together in your mother's womb. And brought you forth on the day you were born.
I have been misrepresented by those who don't know me. I am not distant and angry, but am the complete expression of love. And it is my desire to lavish my love on you. Simply because you are my child and I am your father. I offer you more than your earthly father ever could. For I am the perfect father. Every good gift that you receive comes from my hand. For I am your provider and I meet all your needs.
My plan for your future has always been filled with hope. Because I love you with an everlasting love. My thoughts toward you are countless as the sand on the seashore. And I rejoice over you with singing. I will never stop doing good to you. For you are my treasured possession. I desire to establish you with all my heart and all my soul. And I want to show you great and marvelous things.
If you seek me with all your heart, you will find me. Delight in me and I will give you the desires of your heart. For it is I who gave you those desires. I am able to do more for you than you could possibly imagine. For I am your greatest encourager. I am also the Father who comforts you in all your troubles. When you are brokenhearted, I am close to you. As a shepherd carries a lamb, I have carried you close to my heart. One day I will wipe away every tear from your eyes. And I'll take away all the pain you have suffered on this earth.
I am your Father, and I love you even as I love my son, Jesus. For in Jesus, my love for you is revealed. He is the exact representation of my being He came to demonstrate that I am for you, not against you. And to tell you that I am not counting your sins. Jesus died so that you and I could be reconciled. His death was the ultimate expression of my love for you. I gave up everything I loved that I might gain your love. If you receive the gift of my son Jesus, you receive me. And nothing will ever separate you from my love again. Come home and I'll throw the biggest party heaven has ever seen.
I have always been Father, and will always be Father.
My question is: Will you be my child?
Thank you for your encouraging words.
I have also been dealing with MS for the past 14 years, but it was maybe one or symptoms at the time. Now it is like nonstop. Not only do I have to wear leg braces, a cane, but I have to deal with my vision because I have to wear an eye patch for the next 6 months to year in order to see if my vision returns to its normal state. My eye doctor indicated that this was my last resource to improve vision, in the mean time I am trying to deal with my difficulties one day at a time.
I have a lot of faith in our Lord, if not for him, life would be very difficult. My doctor recommended physical therapy and occupational for the next three weeks. I will be starting them on Thursday.
I forget to mention that pain is my daily companion too, bu the Lord knows why I have to go through this difficult stages. He also promised a better tomorrow and I know that It would take on His words. I also lean and family and friends, but sometimes I do not want to burden them with my problems.
Like you. I think it is very hard, I wonder how would my life be for the next 25+ years with so many disabilities, but I also hope that a cure would be found sooner that we expect.
You can also count on me as a friend and thank you for reading my post.
Good bless you, Gooddays
I have also been dealing with MS for the past 14 years, but it was maybe one or symptoms at the time. Now it is like nonstop. Not only do I have to wear leg braces, a cane, but I have to deal with my vision because I have to wear an eye patch for the next 6 months to year in order to see if my vision returns to its normal state. My eye doctor indicated that this was my last resource to improve vision, in the mean time I am trying to deal with my difficulties one day at a time.
I have a lot of faith in our Lord, if not for him, life would be very difficult. My doctor recommended physical therapy and occupational for the next three weeks. I will be starting them on Thursday.
I forget to mention that pain is my daily companion too, bu the Lord knows why I have to go through this difficult stages. He also promised a better tomorrow and I know that It would take on His words. I also lean and family and friends, but sometimes I do not want to burden them with my problems.
Like you. I think it is very hard, I wonder how would my life be for the next 25+ years with so many disabilities, but I also hope that a cure would be found sooner that we expect.
You can also count on me as a friend and thank you for reading my post.
Good bless you, Gooddays
Wow...you are going through so much and I agree with you, when you say that things seem to be progressing quickly.
After 12 years of dealing with MS, I do not have to use an aid to walk, but did in the very beginning. I know how frustrated you must be to be using braces and a cane. Is there anything that the doctor suggests that can help with your weakness?
I do have to tell you that I lean on friends, family and God, as my strength to get through the days of continuous pain. Just to have an hour of relief would be a miracle for me. With you, it's your weakness and devices to help you walk, with me it's constant pain..sometimes wondering if I can really make it through a probability of 25+ more years left of life, without a cure or a reversal to this disease.
I really believe that if it were not for my faith, I would not be able to deal with what my body goes through. I don't mean to make this sound like a cop out, but my Creator is of great strength for me....
I wish I could be of more help to you. If it helps to have a friend you can talk to, I hope that you will consider me a friend, you can lean on.
God Bless you, Heather
After 12 years of dealing with MS, I do not have to use an aid to walk, but did in the very beginning. I know how frustrated you must be to be using braces and a cane. Is there anything that the doctor suggests that can help with your weakness?
I do have to tell you that I lean on friends, family and God, as my strength to get through the days of continuous pain. Just to have an hour of relief would be a miracle for me. With you, it's your weakness and devices to help you walk, with me it's constant pain..sometimes wondering if I can really make it through a probability of 25+ more years left of life, without a cure or a reversal to this disease.
I really believe that if it were not for my faith, I would not be able to deal with what my body goes through. I don't mean to make this sound like a cop out, but my Creator is of great strength for me....
I wish I could be of more help to you. If it helps to have a friend you can talk to, I hope that you will consider me a friend, you can lean on.
God Bless you, Heather
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