how many lesions can ur brain hold and still function ?

[melissabarnett]

well havent been on here in like forever sorry about that with 4 girls  im all tapped out with extra time for anything  anyway here is my question had my 6 month MRI and found out i now have 36 lesions on my brain and 4 still on my spin bad balance problems if i move to fast i keep wanting to go to the right some times in a circle

and i have to stop myself or ill just keep going to the right in a circle  lol and still having problems with word prossing  when i get tired  cant think of the right word that i need to say and if i want to say stop that  it comes out cop wat or i cant even think of the words to say its there but they just wont come out right

and dose anyone have problems with passing gas and not knowing it till it comes out  due to numbness or just not being able to hold it in when out in public ??  this is soooo not good   and i get confused easley  when i get to hot or tired  or if i get upset

so how many lesions can our brains hold before it decieds  hay i cant work like this and gose on a perment holiday ???  

[karryon55]

Hi there, wow you are truly blessed to have 4 beautiful girls.....you must be a proud mum.

I think what immisceo said about location, location, location....lol...is very funny but very true. I know when I was dx'd my Neuro showed me lots of my lesions on my brain & spinal cord MRI & I remember asking him what problems do they cause?

He explained to me that not all lesions will cause problems specifically but others may. He also told me that some people can have only a few lesions but have tremendous problems but others have a ton of lesions & are going well with their MS. This made me feel a lot better because it's pretty scary to see you brain & cord looking like that.

I'm glad you have a Neuro that you can communicate well with. This is a great opportunity to ask him about what is bothering you.

Nice to meet you.

Take care

Karry.

[HVAC]

Good to hear from you. Each of us is an individual so we react differently to brain lesions. There are people with one lesion who are greatly affected and other people with lots of lesions who are not. You are an individual. All it matters is how you are affected by your MS.

Alex

[melissabarnett]

talked to dr about this on copaxone and now baclofen but not much to do about the other problems so i guess i realy shouldnt  complain have had M.S. for 24 years now and still walking even if its not so great at times lol dr and i working on getting me worked out right  this ones a good one if i have a question he calls me back and everything  

[immisceo]

Like all real estate, it's pretty much location, location, location. I go to school with quite a few people with traumatic brain injury. Literally, double digit percentages of their brain matter is simply not there. But depending on where that damage or removed portions are, it may be more speech and mobility issues with their intellect clearly intact, it may be that their intellectual ability is severely affected, it may be that bodily functions (including those of the automonic nervous system) are impacted and will sometimes be using a mobile ventilator system, they may have lost the ability to physically express the emotions they do in fact keenly feel.

I think for something like MS, our brains can often compensate to a great extent, if our course is slow-moving enough. My lesion load as per the imaging looks pretty impressive, but my day to day is pretty normal.

But I do understand how distressed you must be. I started to have urinary issues and it's also never fun to completely blank on where you are and how you get home from there (happens now and again)!

Have you been able to discuss these things specifically with your doctor? There may be some appropriate symptomatic medications to try. If your lesion load is greatly increased from your last MRI, it may be time to consider a different DMD as well.

But think of it as your brain taking the afternoon off. It's not going on permanent holiday anytime soon!