DOES ANYONE HAVE SUGGESTIONS FOR MY PAIN

[littlefsuchic]

I had posted a question yesterday and got some great answers.
My question today is that my condition is worsening.
I am in constant pain. Mainly in my joints in my hands.
My muscles are like jello. I have a constant dull headache.
Truthfully I feel like I have the flu, but it never goes away.
Does anyone else have these symptoms?  Pain medication does not hell, and I'm desperate for suggestions,  even better...answers.
I don't wish this on anyone, but would feel better knowing I'm not the only one who is feeling this way.

Thanks,
Heather

[littlefsuchic]

Jj
I'm going to do some research like you suggested in the a.m
I have got to lay down for now, because I seriously am feeling like poo. Ill hit you up tomorrow and thanks for responding.

[littlefsuchic]

Oh please don't take my comments as being judgmental.
That was not my intention at all. I know many people that smoke marijuana, either for medical or Recreational. I never judge, but for me....its just not my thing.
As for the hydrocodone. I am on much stronger meds, and still have little relief
any suggestions are appreciated. Please forgive me if I offended you, and stay in touch.
Heather

[supermum_ms]

I have a couple of thoughts (lol when do I not), I'm all for finding cause before treating, but not all sx's are caused by the same thing so meds sort of do need to be tailored, top down approach. In my way of thinking, if your taking a particular medication for xxx and its not working as expected, then maybe taking another look at the why is warrented.

Possibilities:
1. You could have some spasticity, muscle spasming etc going on
2. Hyper reflexes putting too much strain on the joints, popping joints etc
3. Reduced flexability (see muscle tone and spasticity)
4. Medication adverse reaction, combined snowball affect
5. Acustomised to the pain meds so making them less effective
6. Secondary condition eg fribro, RA etc
7. Any combination of the above or something unmentioned

There's also the possibility that your pain meds are the wrong type, if the brain is causing the abnormal pain response, which can be the case with neurological conditions, then the meds could simply be the wrong class for what you need.

Personally speaking, i try to avoid pain meds as much as i can because of the wearing off period between doses, is often (in my humble opinion), worse than dealing with the constant. My tollerance will increase but with meds its noticably less, though thats my experience and i do cry uncle when it gets too much.

When you say "head hurts" what exactly are you experiencing because it can be something totally unrelated to headache/migraine, different treatments etc describing where, when etc could make all the difference in the advice you get.

Cheers...........JJ

PS just bouncing ideas around        

[jonlovesbenz]

You don't have to be an addicted if you only take it when its bad. I have been using pain pills for two years only when needed. So when I feel "good" I never take it. As for the other cancer runs in my family and lots of the doctors I know don't see it as a bad thing.

Sorry I did not have better suggestions. I guess you could ice up and then soak in a bath. I would not make it hot.

[littlefsuchic]

Well I'm prescribed much stronger than advil, but I don't think marijuana would fit in my lifestyle.  To each his own though.
my head has been killing me more so today, but would still not categorize as a migraine.
I don't want to become addicted to pain medication,  but at this time with flareups being so severe and so frequent this past six weeks, I don't know what I would do without them to take the edge off.

Thanks for your help.
Heather

[SarahL2491]

I'd find another way to describe what you use for pain jonlovesbenz!
medforum posts are visible to anyone googling the subject matter!

[jonlovesbenz]

My doctor gave me hydrocodone and told me to take up too 3 per day.

Also pot helps easy my pain.

[dormanmom]

I don't have any suggestions except for to take it easy.  I have VERY similar symptoms constantly.   I brought them up to my neurologist and  he basically said that these were the least of my worries right now.  I even mentioned that my right hand doesn't want to do what I tell it to much of the time and he said don't worry about that "right now".  

I am also in FL and I can tell you that I am highly heat sensitive, which is rather inconvenient for where I live.  When I started going to the Dr. for optic neuritis I couldn't figure out why every day at 3:00 my headache would fire up.   Long story short - it's the heat.    I home-school my children and usually we finish up around 2:30, after a few household chores 3:00 is when I ventured out for the day.  

Perhaps your situation is similar?   My Dr. suggested that I stay indoors, a/c to a/c, which is working for me.  Perhaps you could give it a try?  

Just a suggestion.  Other than that, if someone has any ideas on how to deal with the pain, I would love to know, b/c I am currently popping 3 or 4 advils at a time and it doesn't seem to do much.
Hang in there.