Embarrassing question for the ladies!

[zoefromsussex]

My question is, have any of you ever suffered weird symptoms involving the perenium or genitals that are not necessarily painful but very distressing? I have been getting a really weird sensation for over a month and wondered whether a prolapse is the culprit but I can't get an appointment with my gp until next wednesday.
I spoke to my ms nurse on tuesday and she said it could possibly be a sensory symptom but it feels too 'real' to me so I thought I'd check if anybody else has experienced this? It feels like an aching, dragging sensation and it's really worrying me.
I should add I haven't been able to feel my feet properly in well over a month either and am currently awaiting the results of my latest mri to finally make a decision on my treatment.
I'd be grateful for any help!

[eham05]

A couple of years ago I had levator ani spasms (the bowl of muscles in the pelvis), eventually I was put on vaginal valium suppositories for a month and it helped. Now thinking about it i wonder if it was a nerve issue triggering those muscles. Anyways, if it's tight pain ask about the vaginal valium therapy. I had immediate relief!

[rendean]

I have experienced the same issues and mine was a sensory problem as finally confirmed by a 2nd opinion with a gastroenterlogist  (1st opinion-neuro). Sory you are having this an dhope it  goes away SOON!

Ren

[Walle670]

LOL!  That is exactly how I feel.  I keep waiting for this so-called remission, but I've become so accustomed to my symptoms I'm not sure I'd even recognize it if it showed up.  Take care of yourself.

[zoefromsussex]

Thank you so so much for all these responses! I am currently waiting for the results of a urine test to rule out any infection and am on antibiotics for a chest infection so all of this could be causing the symptoms. If there is no infection my nurse wants me to try a course og steroids.
Walle670: I have been getting the sensation of defecating and it's so distressing when I'm out in a public place! I have checked and don't think I can find any signs of a physical problem but am going for an internal on weds tto be sure.
My ms nurse is convinced its a sensory synptom.
I think relapsing remitting ms is a misleading description...where's my remission?! lol

[Antalya]

Do you think it could possibly be a bladder infection??  

I found out a month after I had the test that I had a bladder infection.  (Long story - but I'm MAD) And I had no idea other than feeling like I had been wacked inbetween the legs -HARD-a couple times that I had an infection!!  I remember be in my 20s immediately being in agony w/ an infection.  Now I guess the nerves are too screwed up to tell me the "correct" story.

Good luck----be easy on yourself.  Hope you feel better sooooon!

[SarahL2491]

heck no PastorDan, you just chime right in!

I've experienced periods of "numbness" for lack of  a better description.
Urologist said was result of MS

[PastorDan]

Sorry to barge in, but just wanted to share that men can have unusual sensations (unwanted ones, I should add!) in unexpected places, too.  I have no better explanation than to say that whatever our nerves ought to transmit, they can do wrong, too.  Okay, now I'm bowing out of this thread!

[Guitar_grrrl]

For a while, I had what could be described as a mobile phone vibrating in my perineum.  Weirdest thing!  It went away after a couple of months.  I told my neuro.  Neither of us thought it was worth dragging out the steroids.  

Hang in there, Wednesday is coming quickly!

[Walle670]

Your symptoms sound exactly like what I experienced intiially that drove me to the doctor and eventually led to my MS DX.  At times I felt like there was something between my thighs that shouldn't be there.  One day I was at the store, I bent down to get something from the bottom shelf and I thought I'd defecated.  I immediately left the store, rushed home, and jumped into the shower thankfully I was wrong.  Two weeks later I was on my journey of multiple MRIs, LPs, and doctor visits.  The symptoms went away after steroid treatments; however, every now and then if I walk a lot or exert myself the feeling will re-emerge.  I am extremely empathetic to your embarassment. I hope you feel better soon.

[opie74]

Sounds like what I had.  Uterin, bladder and colon prolapse.  I hope that you get answers and take care of yourself!

[jensequitur]

Aching and dragging, huh?  I wonder if it's a spasticity problem.  I have all sorts of stretchy pains in weird areas.  I have hip flexor pain that radiates around into my abdominal area and causes my stomach to clench, and goes down into my thigh and around my knee.

[Lulu54]

So sorry you are experiencing these new possible symptoms.  We have had that question asked a few times in the past by other people experiencing these types of symptoms.  

I went through a stretch of a good month or so or feeling a painful/very uncomfortable stabbing feeling on and off in that area. Fortunately it stopped but I can still remember how uncomfortable it would be at times.