Aa
Nutrition
Is there anyone who is trying nutritional strategies to mitigate symptoms? I've started following some dietary guidelines, and it would be nice to know if there are other having any success with this. I could kill for a slice of pizza right now, but ... no wheat!
Best Answer
My two cents worth
I think once dx with ms you have it for life, sort of like an alcoholic.
But I think that there is more than enough credible evidence of people who have stopped the progress of disease and even experienced improvement through diet.
I have personally met 3 people and know of several hundred from research who have experienced benefit.
Prof George Jelinek is ONE living miracle.
Blessings
Alex
I think once dx with ms you have it for life, sort of like an alcoholic.
But I think that there is more than enough credible evidence of people who have stopped the progress of disease and even experienced improvement through diet.
I have personally met 3 people and know of several hundred from research who have experienced benefit.
Prof George Jelinek is ONE living miracle.
Blessings
Alex
Thanks for your comments Mary,
My apologies to you, SarahL and anyone else upset for my poor wording about claims of a cure for MS.
I was referring to the words used by my friend who since changing to a very strict diet has had no symptoms at all for over 15 years. Again, those were her words referring to herself. She claimed the SHE cured HERSELF and she's the person who showed me the artical I posted.
I was inspired by the You Tube artical, and wanted to share it. I do understand the "snake oil" aspect of internet posts. I guess I get a little careless with my wording sometimes, and again, my apologies.
Now, I will find my own rock to go under and try not to help anyone else with unvetted information.
Rainey
My apologies to you, SarahL and anyone else upset for my poor wording about claims of a cure for MS.
I was referring to the words used by my friend who since changing to a very strict diet has had no symptoms at all for over 15 years. Again, those were her words referring to herself. She claimed the SHE cured HERSELF and she's the person who showed me the artical I posted.
I was inspired by the You Tube artical, and wanted to share it. I do understand the "snake oil" aspect of internet posts. I guess I get a little careless with my wording sometimes, and again, my apologies.
Now, I will find my own rock to go under and try not to help anyone else with unvetted information.
Rainey
I'm with Kyle that a healthier body is always the best place to start when dealing with MS. Diagnosed or not, eating and living as healthy as possible is a prescription we can write for ourselves.
And with Sarah that it is NOT possible to claim a MS cure as been obtained - by ANY means. The disease is too variable in presentation and severity to claim cure from any source. In fact, those are the characteristics that make it such a HUGE snake oil target!
Anyone claiming cure better have Vatican quality proof to offer. I haven’t seen any of that yet. The most reasonable claim (imo) would come from stem cell transplant but even the top success stories from that procedure don't pretend to claim cure status.
Highly restrictive diets have never worked well for me but dietary supplements instead of Pharma solutions? I'm all for that. I relied on supplements to keep myself going for almost 20 years before I was diagnosed. I stuck with them after MS was diagnosed because they still worked. My docs know about everything I take. I've just had to add in a couple of their prescribed recommendation now - almost always in a lower than average dose.
Don’t we all strive for similar solutions in the end?
Diet well.
Keep moving (or make somebody move it for you).
Find your peaceful balance inside.
Medicate carefully.
Accept your life and live it fully.
Mary
And with Sarah that it is NOT possible to claim a MS cure as been obtained - by ANY means. The disease is too variable in presentation and severity to claim cure from any source. In fact, those are the characteristics that make it such a HUGE snake oil target!
Anyone claiming cure better have Vatican quality proof to offer. I haven’t seen any of that yet. The most reasonable claim (imo) would come from stem cell transplant but even the top success stories from that procedure don't pretend to claim cure status.
Highly restrictive diets have never worked well for me but dietary supplements instead of Pharma solutions? I'm all for that. I relied on supplements to keep myself going for almost 20 years before I was diagnosed. I stuck with them after MS was diagnosed because they still worked. My docs know about everything I take. I've just had to add in a couple of their prescribed recommendation now - almost always in a lower than average dose.
Don’t we all strive for similar solutions in the end?
Diet well.
Keep moving (or make somebody move it for you).
Find your peaceful balance inside.
Medicate carefully.
Accept your life and live it fully.
Mary
I'm currently trying out the swank diet, which is a low-fat diet. I'm trying to up my veg and fruit intake. If I don't feel healthier from it, I may try other diets. There is a link between metabolism and MS that I don't think can be ignored. Plus I agree, its only going to make me healthier and that will help me cope with my MS!!
I watched the youtube vid, inspiring!!! I'm off to eat a plate of salad right now for lunch :)
I watched the youtube vid, inspiring!!! I'm off to eat a plate of salad right now for lunch :)
I'm not trying to offend anyone BUT that said
there is NO cure for MS at this time, so yeah, the doc can't cure you
there is nothing wrong with exploring diets, BUT no one has been
cured from MS by a diet, I don't care what they claim on the internet
or utube or whatever.
going back under my rock
there is NO cure for MS at this time, so yeah, the doc can't cure you
there is nothing wrong with exploring diets, BUT no one has been
cured from MS by a diet, I don't care what they claim on the internet
or utube or whatever.
going back under my rock
It's just too funny that I was posting my comment and the exact same link about Dr Terry Wahls. I clicked "post" then went to the forum and saw YOUR post on the exact same thing. Hmmmm....coincidence? If nothing else, it will help us be a bit healthier, but her YouTube post was truly amazing. A friend of mine who also cured her MS in the same way was the one that sent me that post months ago.
If it helps anyone that's fantastic!
Rainey
If it helps anyone that's fantastic!
Rainey
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Some healthy discussion here and more than a few laughs thanks to the super SuperMum and the one with the golden Guitar. I love the 'regular as a goose' quote.
Yes, I am happy to say you may be right about diet, but I'm hoping you're wrong about a holistic program to stop the progression of MS.
I am still planning to be on the forum after five years of OMS program in Sept 2016 with either a pie and beer in hand or a delicious gluten free, vegan plus seafood treat. It all depends on whether I can still walk.
I hope I'm not being too pessimistic here but with my symptoms and progress I am fairly confident that I was ' lucky' enough to draw the PPMS strain. Nothing can be officially diagnosed until my 12month anniversary in August.
So as far as averages go for males developing MS in mid forties I think a fair measurement of success would be walking without assistance. Yes, I know even that measurement is going to be open to criticism given one copaxone study of 100 people suggesting that 85% of people with MS are still walking without aid after a long period. But PPMS sits in the 10% of cases.
I'm coming up to my 12 month anniversary of the developing MS and I notice a few changes. Today I had the day off work because I was a little unwell but also caring for my sick child. In the fridge I have home made pumpkin and lentil soup, fresh korma balls made of veggies and spices, and I have just finished dehydrating a fruit and nut delight to fight the kids over.
Diet is just one aspect of my recovery. Today I lay in the sun and meditated to a bit of classical music and felt at peace. I also hobbled to the shop with my sick daughter to get exercise.
Since being on the OMS program in September last year my liver enzymes have returned to normal, I have experienced periods of wellness of 18 days and 26 days that I hadn't previously, I regained feeling in half my right foot a couple of weeks ago but now it is numb/tingly again. I've also had other symptoms disappear but then annoyingly come back.
Most of my symptoms have stayed with me and I have picked up new ones with subsequent relapses. I've now had seven relapses in 12 months.
MS is one tough puppy of a disease and I do believe that I have MS with MRI and O bands to prove it. Unlike all the other people from the research who get well and then 'disappear' for various reasons, I plan to testify as to whether or not the program has worked.
I don't expect to be cured. I expect to be 20% better than I was so that means I should be walking.
If the program doesn't work then I don't believe that I have lost anything in trying it out but what I have gained from MS and the program is a whole new perspective on life, love, and living with a chronic progressive disease.
I just wonder if I will go back to my old eating habits. Will I enjoy eating a pie and beer again?
Only 4 years 4 months till we find out.
Blessings
Alex