Out of L- Land

[Jazzyfizzle]

Hello everyone, it is with a joyous heart I can say --- I have escaped the barren wasteland known to us as Limbo Land, and now officially have - 'diabetic autonomic neuropathy + peripheral neuropathy'.  
In 23 days, it would have been 5 years that I wandered, mostly lost. I wanted to share this with you, because of nearly anyone in the world, I know all of you could understand how much this means.

This is thanks to my great new doc.,  I think he was amazed that I have been in limbo for so long. He said MS is defintely not what I have, he saw where that it had always been at the front of the running.
There isn't a great deal that can be done with what I have, continue to keep tight reigns on the blood sugar, consume large amounts of salt and fluids, avoid excessive heat and do not stay on my feet for too long at a time. There might be more to try, but for now that is what we are doing.

I am very thankful to have landed here with you MS'ers and Limbolander's, you are the best there is, I tell ya. I find so much strength and support flowing through you, it is such a comfort.
So now I am official,  but not an official MSer, just another breed of monster to carry on my back. I know he gets heavy at times.

Sorry I have been scarce lately, I have felt fairly well and wanted to take advantage of it to be outside, and doing what I could, as I could.  I have to send off my little thank you for my 'lost' prayers been answered, that itself is a blessing.
Love and hugs

Jazzy

[nette573]

I am so proud for you to finally find out what is going on with you!  WoooHooo!  Dont forget about all us back here and keep in touch!  
Lynette

[princess73]

Congrats! It must be a relief to know what is going on with your body! It reassures us limbolanders that there is still hope for a dx! GOOD LUCK with your new venture to control your new dx. Let us know how things go.

-Princess

[spastic]

I am so happy that you finally have a dx.  The relief of a dx is a wonderful thing.  Now that you have a name for the monster, I hope that you will find some relief in it.  Good luck Sweetie and keep us posted!  :)

Love,

Ada

[syndismilez]

Whoohooooo!!!  Congrats!  
Glad you finally know what it is!!!!
cyndi

[speechgeek]

Jazzy

Congrats! I hope that you will start to feel well soon. Big hugs!!

Rebeccah

[LLWB]

So glad you are out of limbo-land! No so glad you have diabetic neuropathy. I also have that too. Drove 480 miles on Sat for my MRI's, on Sun my legs hurt, an 8 and feet hurt, an 11, on a scale of 1 to 10. So I know what you are going thru!  What's with the salt thing? I crave salt a lot, didn't tie it to anything in particular. Would be very interested to know about that. You take care and don't over do things. Just because you do have a name now, doesn't mean you still won't have the same sx's and pain. Best, firlfriend, Maggie

[thiagirl]

Congrats on making it out of limbo land.

[young at heart]

I AM SO HAPPY FOR YOU SWEETIE,I'D DANCE WITH YA,BUT THE LEGS ARE ON STRIKE.

SAD TO HEAR ITS DIABETIC NEUROPATHY,BUT AN ANSWER IS BETTER THAN NO ANSWER.

YOUR OUT OF LIMBO AND HAVE SO MUCH TO OFFER ALL OF US EVEN US MSERS AND THE LIMBOLANDERS.

SENDING YA HUGS AND PRAYERS

T-LYNN

[monotreme]

I am very happy to hear you are out of Limbo Land.  Five years is much too long to spend in it.

I am not familiar with diabetic autonomic neuropathy.  Could you just re-cap your symptoms in a nutshell?  How long have you been diabetic?

Thank you very much.  We could all learn from this diagnosis.  Good Luck.
Elaine

[hbomb_1984]

Hey Jazzy,

I'm a newbie on this site labeled "probable MS" and am in that limbo land you speak of. I am very happy for you to have finally gotten your answer. It gives me hope that others will too. Congratulations!

[pennst8r]

Hurray - you finally got out of Limboland! I'm so happy for you! You are not going to leave us though, are you?

Penn

[Rena705]

I am sorry to hear that you have diabetic neuropathy but am very happy for you that you are not in limboland anymore!  At least now you have to opportunity to deal with the actual problem and I do have a friend that has diabetic neuropathy and she is doing really well now that it is under control and she is under the care of a pain clinic!

Best of Luck to you honey but I hope that doesn't mean you are going to leave us...that is not an option!  We love ya and want you to continue to help other through their tough times as you have in the past!

Lots of Hugs and Congrats!

Rena

[wingnut19]

:(

I promise I didn't post that many times.....What the heck....???

[Jazzyfizzle]

THANKS Gals!!!!

I will stay on the other side to throw a rope over to those caught behind the wall!! You watch for it and grab on!!  This is one boot in the butt I am enjoying!! hehe  !!
I am singing tonight, can you hear me?? :))

Fizzle

[wingnut19]

Congrats, Jazzy!!  This is such wonderful news!
I am so happy that you are no longer in LIMBO....This gives me great hope for the future!

Thank you so much for sharing this inspirational story....


Take Care
Tammy :)

PS--I'm definitely in with you and Wanna doing that jig....Move over!  

[Momzilla]

Eeeee-Haawww!

I am getting out the Big Boot to officially Kick You Out of Limboland!!!!!

There has got to be some ceremony in this, my dear.  I'm not going to make you bend over or anything, but kick you, I will, and heartily!

I am thrilled that you have finally found your answer.  What an odd one.  I think that's a new one here, am I right?  I know I will be corrected if I need to be.  What a journey you have had!  And I feel another one coming up as I lob you over the Great Wall...

Here she comes, guys!!  Ya-Hoo!  (why do I want to wave a cowboy hat?)

Glad to see you go (out of Limboland), and glad you're staying with us (on the forum), right?

Love, hugs, and a hefty Big Boot,

Zilla*

[Jazzyfizzle]

Thank you Quix!! Thank you for being here for me and helping me in my journey.
I will hang around to give this gang some Fizzle  hehehe :))  


J Fiz

[Quixotic1]

Well, that makes the most sense of anything I've heard in a long time.  Not a lot of doctors seem to think about autonomic neuropathy but it can play heck with your life!!

Wow!  Well, you now have to stay around to represent "that" mimic!  We already know and love you and there is a lot to explain to people (I'll help) in explaining what the autonomic nervous system is.

The CC comes through!

We'll keep talking!  Quix

[Jazzyfizzle]

Hi Wanna! I am truly dancing and singing with all my heart. Thank you soo much!! I thank the heavens & my doc's for adding my new guy. :))

Hugs back atcha!!!!


Jazzy

[Want to feel well!!!]

SOOOOOOOO  HAPPY for you!!!!!!  Isn't the CC great!!!!  We'll both be dancing in the streets!

((((BIG HUGS)))))  

Talk later...

Wanna