PAIN AND MS

[young at heart]

I DON'T REMEMBER IF WE HAVE DISCUSSED THIS TOPIC OR NOT . JUST OUT OF CURIOUSITY , HOW MANY HERE HAVE PAIN WITH YOUR MS OR THE ONES NOT DIAGNOSED?

MANY NEURO'S DISMISS PAIN WITH MS , EVEN THE ONES UNDIAGNOSED.

WE ALL KNOW THAT MS CAUSES NEUROPATHIC PAIN,PAIN IN THE LOW BACK,OPTICAL NEURITIS CAUSES PAIN WHEN MOVING THE EYES AND SO FORTH.

I'M FORTUNATE THAT MY NEURO BELEIVES IN PAIN WITH MS,BUT I ALSO HAVE AA (ADHESIVE ARACHNOIDITIS)

MY NEURO HAD ME ON OXYCODONE 10/325 I THINK AND HAS CHANGED IT TO METHADONE.WHICH I DON'T KNOW HOW I FEEL ABOUT IT.MY WHOLE SYSTEM IS WONKY RIGHT NOW.DON'T KNOW IF ITS THE PAIN MED OR THE SINUS INFECTION.

HOPING OTHERS WILL SHARE THEIR STORIES OF PAIN AND HOW YOUR DRS.TREAT IT.I THINK IT WILL HELP MANY HERE.

T-LYNN

[young at heart]

THANKS FOR YOUR COMMENTS, YES, ESS, I AM ALSO CURIOUS AS TO WHO DOESN'T HAVE PAIN.

I WAITED OUT THE PAIN, NARCOTIC PAIN MEDS WERE MY LAST RESORT, I DIDN'T TAKE ANY PAIN MEDS OTHER THAN OVER THE COUNTER MEDS UNTIL DECEMBER.I WAS THEN PUT ON OXYCODONE,IT WORK AT FIRST,BUT MY LAST ATTACK WHIPPED ME,SO I HAD TO SWALLOW MY PRIDE AND ASK MY NEURO FOR SOMETHING DIFFERENT, SO I COULD FUNCTION.

ELAINE,I HAVE BEEN ON ZANAFLEX ,BACLOFEN AND NEURONTIN,I STILL TAKE THEM FOR THE MUSCLE SPASMS AND THE NEUROPATHIC PAIN.

CHRISTINE, I'M REALLY GLAD THAT YOUR PAIN LEAVES AND GIVES YOU A BREAK,I HOPE YOU ARE KEEPING A JOURNAL.

SL, HOPEFULLY IF YOUR SPASMS CONTINUE,YOU'LL TALK WITH YOUR NEURO,THEY DO HAVE MILD MEDS THAT HELP.

T-LYNN

[Rena705]

I am diagnosed and have pain but am told it's not due to MS.  I have lightening bolts going through my feet daily, I have pain in my legs daily, I have pain in my head daily but that is due to the paratrigeminal neuralgia which I have been told is not related to MS period.  I am currently on Oxycodone and I hate it and I am going to try to leave a message with the stupid receptionists at my stupid doctors office and she might call me back if she can figure out how to use a telephone...odds are against it...

[sllowe]

MY HAND IS UP ON THIS ONE.  ADD ME TO THE SURVEY.

PAIN IS UNTREATED, IT COMES AND GOES, AND VARIES FROM SPASMS, TO JERKY NERVES, AND ACHEY JOINTS OR JUST PAIN ASSOCIATED WITH PULLING THE LEGS ALONG WHEN THEY ARE FATIGUED, AND YOU CAN INCLUDE ARMS TO THAT TOO.

GOOD QUES, WE SHOULD COUNT THEM UP IN THEN END. . . DX'D AND UN DX'D

SL (dx'd)

[essdipity]

WHAT I'M WONDERING IS WHETHER THERE'S ANYONE HERE 'without' PAIN.  WITH EVERY FLARE I HAVE HAD SIGNIFICANT PAINFUL PARASTHESIAS, LONG TERM. AT THIS POINT I'M DEALING WITH SEVERE BURNING PAIN (A LITERAL PAIN IN THE BUTT). I HAVE ALSO HAD A LOT OF MUSCULAR PAIN THAT I CAN'T PIN DOWN AS TO SOURCE, BUT THAT MAY BE NEUROPATHIC.

I'VE HELD OFF ASKING FOR MEDS AND WILL CONTINUE TO DO SO FOR AS LONG AS POSSIBLE. OF COURSE I DON'T KNOW HOW LONG 'POSSIBLE' WILL TURN OUT TO BE. BUT I'M AFRAID OF SIDE EFFECTS, WHICH I ALWAYS SEEM TO GET TO THE MAX. AS TO STEROIDS, I ALREADY HAVE OSTEOPENIA (THE FORERUNNER TO OSTEOPOROSIS) AND DON'T NEED TO LOSE ANY CALCIUM.  HIGH DOSES OF OVER -THE -COUNTER MEDS SUCH AS ADVIL DO TAKE THE EDGE OFF THE PAIN, BUT I DON'T TAKE THEM REGULARLY BECAUSE THEY CAN BE TOUGH ON THE ORGANS.

SOONER OR LATER I'LL HAVE TO DEAL WITH THESE THINGS BUT FOR NOW I'M AVOIDING THE WHOLE ISSUE.

ESS

[Nerve_Wrecked]

I'm undiagnosed, and I have pain. My pain, thankfully isn't horrific, but it's there.

I have neuropathic pain, in the form of electric shock sensations in all limbs, and through my right eye, and I have pin poke type pain. I also have some days, a deep deep aching pain in my legs (although this one's hard to describe), and I also have a pain on the top of my head, that's like someone bashed me on the head while I was sleeping. It comes for a few days, then goes for a couple months.

That's all I can think of, in terms of pain, for me.

Christine
(un-dx)

[monotreme]

HI T-LYNN.,

  CRAIG IS UNDIAGNOSED BUT HAS PAIN EVERY DAY.  HE HAS PAIN SINCE 2006.  HE GETS SHARP PAIN IN THE SOLES OF HIS FEET, IN HIS THORACIC SPINE AREA, AND LOTS OF PAIN WITH THE MUSCLE SPASMS.

  NOW THAT HE IS TAKING NEURONTIN AND ZANAFLEX HE HAS LESS PAIN, BUT NEITHER DRUG SEEMS TO HELP WITH NEUROPATHIC PAIN.

  MONTEL WILLIAMS TALKS ALOT ABOUT HIS PAIN WITH MS IN HIS BOOKS.  HE IS ON LIQUID CANNABIS WHICH HE SAYS HELPS HIM.  OF COURSE IT IS ILLEGAL IN MOST STATES.  

  I THINK THERE IS A DRUG CALLED LHC WHICH IS SIMILAR TO THE INGREDIENT IN MARIJUIANA AND IS LEGAL TO PRESCRIBE, BUT I DO NOT KNOW MUCH ABOUT IT.

  I AM VERY SORRY TO HEAR YOU ARE NOT DOING WELL.  I HOPE WHEN THE SPRING WEATHER COMES IT WILL HELP SOME OF YOUR SYMPTOMS.  

  ELAINE
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