Sensitive Question

[goofysmom1]

I have searched the forum to see if I could find a thread regarding this subject, but maybe I am not using the right terms because I haven't been able to find anything specific.

The subject:  "private area" numbness or loss of sensation.  I woke up on Saturday to a loss of sensation in that area, from one end to the other!  Not a total loss of sensation - but pretty close.  I have previously had episodes where it "seemed" like there was some minor loss of sensation there, but I was able to convince myself otherwise....(ahh denial)....

It has lessened since Saturday, but it is still there...wondering if anyone has experienced this & whether or not I should call my neuro...??

Hugs,
Chrisy

[Quixotic1]

I don't think this subject is sensitive at all.  That's the whole problem, lol.

Quix   :))

[SharleneMA]

I am so glad to know that I'm not the only one who has experienced this.  It's embarrassing to try to explain it to the doctor!  Thanks for starting this thread!

Sharlene

[Guitar_grrrl]

Over the last year, my perineum and all associated areas have slowly but surely lost sensation.  I no longer (as of my November Flair) have the urge to move my bowels, so I make myself move them at the same time every day. Takes a while, but I move them.

I've had one orgasm since June (Hallelujah!), and there are also the urinary surprises.  Dang!  The ol' Spinal Lesion Blues...

[Quixotic1]

I have had long periods where my perineum felt numb, even dating before my diagnosis.  Though we are now assuming that the beginning of my MS was 8 years before diagnosis.

It's a very common symptom.

Quix

[goofysmom1]

Thanks for the input - called my neuro to see what to do.  My PT says this is not from the PT that we are doing for my tight hip flexors.

Chrisy

[Valerie64]

yup, got that with this latest flare, exactly like you describe - I also feel like I have a permanent wedgie but it is getting less numb slowly - been 8 weeks so far

Val x

[Udkas]

I would call your neuro, my neurologist told me it was from spinal lesions and yes I have the same problem, infact when I had it really bad my neuro wanted to give me 3 days of the cortisone stuff in the drip to try and stop the inflammation.  I still have diminished feeling there but it's much better, It took me over 6mths to recover from that flare, so I can relate.

Apparently according to my neuro it is quite common with MS.

Hope you get some relief soon.
UDkas

[Lulu54]

Hi Chrisy,
This has been kicked about a few times - it is more common than you might think. If you search this community for *perineum* you will find several different threads.  

And no, remember you are never alone in any of these weird symptoms.

be well,
Lulu

[nanadebby04]

THANK YOU!!  At least I know someone else has it besides me. I am not diagnosed yet, but had this same symptom.  My inner thigh into the private area was tingly and numb feeling for 3-4 days.  Started on the left thigh and moved across the "area" and into the right thigh.  It eventually resolved on its own, but it was very strange.  I am sorry but there are alot of things about this MS that are strange!!

Thanks for helping me out,
Debbie