Has anyone ever heard of APS?

[Melissa072]

Hi

Was wondering if anyone has heard or has the condition called APS?  (Antiphospholipid Syndrome)

This condition apparantly can cause face pain, dizziness, and neurological symptons and can be misdiagnosed as MS.

Thanks,
Melissa

[evo123]

Hi,

I have quite a few symptoms at the moment and they are all being put down to my autonomic dysfunction by my Dr's.  I have not had re-testing done for APS and do not have a confirmed dx of this.  My bloods were positive but I have never suffured a clot.

My symptoms include - dizzyness, tachycardia, bp fluctuations, chest pain, numbness of arm and leg (coming and going), weakness and nausea.  I have and do get face pain sometimes - more around the jaw but think this is related to the POTS also.  

I do not know much about this syndrome and am unsure if heat affects it.  Do you have a dx? What symptoms do you have?

I am now wondering if any of my symptoms are down to this.  I have been advised by another member that some of the symptoms may be related.

[Melissa072]

Can I ask what your symptons are?

Can you get face pain with APS and does heat worsen the symptons?

Melissa

[evo123]

I have tested positive for this but my dr's have not put me on treatment, it was recommended that further testing was done, but up to now it hasn't.  My count is 39 (normal 0-10).  I have been unwell for several months now and I have suspected POTS (postural Orthostatic Tachycardia Syndrome), a growth was found on my adrenal gland but has found to be non functioning.  I have also had a low count suggestive of Wilson disease, but this has not been followed up either.

Does anyone have any experience with APS?  

[slightlybroken]

Hugh's Syndrome can also cause blood clots in the legs (DVTs), blood clots in the lungs (PE), and strokes.

I'm a limbolander but I have been tested for this one and several other "blood thickening" ones that can look like MS. I had a blood clot in my leg last year and I have neurological problems and that's why they started to test for those but nothing came up.

[Melissa072]

Ok Thanks, I will ask my neuro about it next visit....

Melissa

[sllowe]

Yes Ma'am, tis another major mimic.

Not all Drs check you for it either....is also called Hughes Syndrome.

I lovely lady named Frann who was a member with us early on was dx'd with this.

-shell