Can I bend someones ear?

[mokibear]

So I've been in a flair of whatever this is I have for almost a month now. Usually I'm fortunate and only have them last a couple of weeks but this one is not working this way. The thing I'm unsure of is when I have the shorter flair, it comes on hard and lasts hard and then it is pretty much gone. Sometimes I'll have some residule stuff after but the main stuff is over. This time I can get a day or two of feeling better and then wham, it's back with a vengeance again. Is this normal?

I'm sorry if this sounds a little dumb, but it is frustrating the living heck out of me. It's like it's playing mind games with me and I don't want to play any more. LOL

Moki

[mokibear]

Hey Momma Bear, sorry you are having a bad exasperation. I hope it's over for you soon.

Mine was bad the first 2 weeks too and was constant then after that I started the bouncing back and forth thing. So ya I'm in for the bungie jumping with you.lol

As for hijacking my thread, far from it. At least I know that I am not alone in this. I really just wish it would make up its mind as to what it wants to do and stop playing the your getting better game, nope not yet, yup you are, nope.lol

Well off to bed for me.
Hugs
Moki

[Quixotic1]

Moki Bear, This time all I can do is commiserate.  I have been in and out of the weirdest exasperation now for about 6 weeks.  I had two definite weeks of right sided weakness.  Then it got a lot better for several days, now I have a bad day where I can barely drag my leg along and my right arm won't lift up.  After a while of typing the fingers jsut stop reaching for the keys.  About the time I decide to tell my neuro, I'm okay again.

So, I guess we'll bungie up and down together.

For me (since I have a diagnosis and you don't) I'm assuming that this is just the way some relapses go.  But, I would like to hear from others if they have had this experience.

Sorry to hijack your thread.

Q-Momma

[mokibear]

Tahiri, sorry it took me so long to get back to you but I seemed to have dozed off at my computer. lol Never have I done that before!! It is frustrating for sure and I know that it will get better eventually, but kind of getting tired of the game playing it is doing. lol

Tamster, hey girlfriend. I go for the MRI and EP on June 9th so the wait is almost over. I have to still phone them and see when they have scheduled me for the results. I just need to get through the next 3 weeks and then my supervisor is making me take a lay off for the summer. She has been really great and she knows that I do worse in the heat. She basically told me that I have no say in the lay off as it is for my own good health and for me to rest up and be ready to come back in September. For the first time I didn't argue. LOL

The wonky legs comes and goes as well. The good part is that when it comes it only last a few days and then eases off again. I have some small tremors that still exist daily but it is hardly visible. It's the spasms that seem to be causing me the most problems, I seem to have a lot of spasticity  going on as well right now and makes it quite uncomfortable. I have now I guess what is a varicose vein that showed up after a real bad spasm. That hurt like the dickens.

Thanks for the prayers and hugs back at you.
Mokster

[wingnut19]

Hiya Mokster!

I'm so sorry that you're still feeling so lousy!  I feel your pain....How much longer before you go back to the next MS Specialist?

Just try your best to get as much rest as you possibly can, ok?  I know that your work schedule is crazy, but it's time to take care of the Mokster!
I don't know if what you're going through is "normal" or not, but it seems that nothing is "normal" with any of this Limbo Land stuff....

Are your legs still doing that Wonky dance?  
I hope and pray that you feel better soon, and stay that way!  

HUGS!
Tamster :)

[Tahiri_Veila]

I am sorry that it doesn't seem to want to let go.  I am a limbolander, things will get better.  I know it is frustrating (especially when you plan to do something because you feel better and wham it comes that day).  I feel for you. Hope things improve.