Up until now all the doctors I've seen have left me with the impression that unless I become blind or paralyzed they will not move to the next test to try to figure out what is going on with me.
Today I saw a nuero-opthamologist who has the reputation of aggressively looking for answers.
They did some vision tests, which I did well with. The exception was the visually evoked potential. I was told that a delay of 5 milliseconds would indicate a sign of MS. My right eye was fine. My left eye had a delay of 8 milliseconds. The doctor said that was not enough to diagnose, but it was enough to warrant further testing.
He said that my MRI of my brain (which was clear) was done on a 1.5 T machine, and he doesn't think the lab that did it is very thorough. He is sending me for another MRI of the brain, neck and chest on a 3T machine at a lab he trusts. He sent me today for blood and urine tests.
So, now I wait for insurance approval of the MRI's. And, if I didn't like the doctor already....my next appointment will be the day I have the MRI's done. He asked if it would be possible for my husband to be at that appointment. He said input from my husband will help, but also, he will read the MRI's that same day (the images are online and he will go over them with us) and he wants my husband with me when we go over things. I liked how he was thinking of there being someone to give me support, if needed :-)