Could this be MS?

[Pickle8w]

Hi all, i am new here but was hoping someone may be able ot help. Since March i have been experiencing some strange symptoms, it started with altered sensory perception (things feel look sound different) these episodes come and go and are worse when stressed. In May i began to suffer from dissociation (if i touch my leg feels like someone else is touching it, i wont recognise my own clothing, hands body look different etc). I went to my G.P whom referred me to a neurologist, my neuro exam was normal except for an abnormal plantar response of my right foot. I had an MRI head and C-spine which is normal, all my blood work is normal too. Since this all began i am becoming increasingly tired, clumsy, forgetful. I have started to stutter at times also. On top of this i have several minor complaints such as GORD, IBS, anorgasmia(very frustrating!). I also had an episode of leg weakness 2 years ago i was on crutches for about 6 weeks and was never given a reason for it!! My neurologist is convinced i am suffering from Migranes with complex auras, i have only suffered from one bout of headaches that lasted about a week but realise migranes dont always present as headaches. I am currently taking Pizotifen but this does not seem to be helping. This last week i am now getting numbness and tingling in my right leg and arm. I am a nurse so obviously work are concerned, i am fed up of not being able to cope with a full day at work and feel like something is being missed here?? Many Thanks

[jensequitur]

Don't feel embarrassed about pestering them.  You're the one with the symptoms, not the neuro.  

[Pickle8w]

Thanks so much for your response and for welcoming me, apologies for the bulk text and thanks for the advice.

I have never met anyone else with complex auras so appreciate the example. Did your friend have a migraine then the symptoms appeared or the other way around? I had one very bad headache but that was about a month after the symptoms began?

I have been keeping a diary of events but thank you for the suggestion, my next appointment with my neurologist is December! Perhaps you are right, I do need a second opinion.

It is very much a relief to know i'm not the only one pulling my hair out here. My auntie is diagnosed with MS so i do have a level of understanding but i know the symtoms are many and varied so am trying not to compare.

mmm decisions decisions....aaah i dont know what to do! It has been suggested to me that i should tell my G.P about every new symptom i get but I would be up there about 3 times a week at the moment. I would hate to pester them only to find out my Neurologist was right all along?

Apologies for being such a moaner, thanks again for the response.

Take Care
Sarah - great name :-)

[Sparkysarah]

I am sorry that you are experiencing all these worrying symptoms and I am sure that you must feel frustrated and want clear answers. As a nurse I expect you will want to know what is going on and not have elusive inconclusive responses.

It does not feel like you have been listened to. I have a friend who has just had a mirgaine with complex aura and she was extremely debiltated for 2 months and could barely walk for about 4 weeks. She thought she had had a stroke or a T.I.A. but her neuro was convinced she had had a complicated migraine. She is now making good progress and back at work and thinhs her neuor was correct. That is not to say that your neuro is right...but I was just trying to share an example of someone else who has been through this.

At least you are under a neuro and presumably will be seen again. Keep a detailed record of all your symptoms, dates when they happened and report anything new.
It is worrying when you feel that there is something else going on and can make you feel like you are making a fuss when they do not appear to believe you. Trust in your own instinct and don't give up trying to get some more answers. Is it worth getting a second opinion?

Just one other suggestion...many people find it difficult to read a large chunk of text so in future it is best to break up posts into smaller paragraphs.

Meanwhile you are very welcome on this forum and it is a great place to learn, ask questions and at least feel that you have met some people who understand. There are many people in limboland who are undiagnosed.

Take care, with love

Sarah