Hey All! New here to posting, but have been reading quite a bit! Great info!
My question is, I had a relapse over the summer, major numbness/weakness on my right side, pain (allydonia) all over, my arm felt cold when it wasn't, major sensory issues. This eventually resolved with the help of Soulmedrol and time. This was my 3rd relapse in a year and a half, so my doc started me on Tysabri in the fall. I have had 5 infusions so far. I didn't think I had any major side effects from it besides the fatigue the day of and day after infusion.
Recently, since Christmas-wish, my old relapse symptoms have come back with a vengeance, but have spread. So now instead of only my right side being numb, it's my left leg too, parts of my face and scalp, my ears are numb. I called my doc and I have had a brain MRI and I am getting the spine MRI Monday. Shockingly the brain MRI was clear, not what I expected at all. After reading many posts, I have realized that the MRI is not the be all end all of relapse diagnosing, so I will not put all my eggs in this basket, I just thought it would be a clear cut answer (spine MRI is still TBD, btw). Why would my symptoms return like this without a relapse?
I have also noticed over the past week or so (starting a few days after my last infusion) little red bumps on my face and hands that itch. After reading many posts I'm realizing this may be a side effect of Tysabri, which has led me to wonder is everything going on related to Tysabri? Has anyone had an experience where Tysabri triggered old symptoms to return, or had side effects similar to this? I looked up the side effects and it sounds sort of similar, but it's just odd that what I am feeling is exactly the same as my previous relapse, just way worse.
Is this a relapse? Side effects? Something I'm stuck with now?
Any thoughts would be helpful!
Looking forward to reading more!