Relapsing - Remitting

[sllowe]

Ok, ok, I understand the RRMS.
I understand the textbook definition where the 1st "R" relapsing is concerned.
BUT, the 2nd R-remitting? Are you kidding me? What about those of us who don't remit?
Surely they could come up with something inbetween RRMS and PPMS!

There are those who remit, so I mean no disrespect.  Just wondering why there is nothing inbetween.

Can we have a name? Can we, please, huh, huh, can we?  

ttys
Shell

[shoshin]

Ess: At this point, I would be ecstatic if I could just have some freaking stabilization. A new baseline actually sounds pretty good. I have been gradually, but steadily, getting worse since March.

I read somewhere that "when a given level of disability has been sustained for 6 months, the chance for it to be nonreversible approaches 100%" Anybody have any idea how valid that is? This sentence kind of haunts me, especially as I seem to keep deteriorating. It doesn't say there are no miracles, but it certainly seems to say don't hold your breath.

Lulu: I have sometimes wondered if the reason my neuro is so insistent I have RRMS is because otherwise my options are mostly nonexistent.

sho

[essdipity]

My neuro's euphemistic answer to symptoms that have stayed the same for a long period:

A new baseline.  By that I guess he meant

Get used to it, it ain't gonna get any better.

I'm thinking that a relapse, by their definition, doesn't happen till new symptoms knock you off your feet, literally or figuratively.

ess

[Lulu54]

I will be happy to keep the tag RRMS for as long as possible because as I understand it, if the P word gets attached to me the options for treatment decrease dramatically.  Lulu

[shoshin]

Well, I don't have a funny answer, but I really wish I understood this as well. There don't seem to be any hard and fast lines.

The last time I saw my neuro, he said I was having subtle relapses with a lot of residual deficits. How exactly he can differentiate between this and straight progression I have no idea. I certainly don't seem to be able to.

Quix: That's interesting to know that stabilization can be a remission. That would seem to make it even harder to tell the difference between the different types. Maybe these types are all just voodoo science.

sho

[OperaMBA]

Isn't relapsing and remitting redundant anyway?

How about Tingle, Tingle, Buzz, Buzz, Ouch, Ouch, Ouch!!! ???

Rinse and repeat!

Richard
OperaMBA

[doni54]

You're too FUNNY, mamma bear!!

[Quixotic1]

I do like Lulu's reference to the circles of H*ll, but it is a little unwieldy.

HAH MS - Hanging Around H*ll MS

Though remember that "Remit" may refer to a stabilization of symptoms without an improvement.

RMA MS - Remit, My A$$!!  MS

[Quixotic1]

EAMS - Enough Already! MS

[doni54]

I read this earlier today and had to come back to it, having a no brain day....ha...ha...ha I know....what's new.....ha...ha...ha...

Well best I could come up with is:

OANSTJWGAMS (old and new symptoms that just won't go away MS)

Not too great, but gets the point across?

Love & hugs
doni

[mary_kay]

RRMS
RDPITAMS (see above LOL)
PWPNSAWORMS(progressive with periodic new symptoms added without remitting MS)
PPMS

[magoo58]

RRMS
RDPITAMS (Replaspsing Daily Pain In The Arse MS)
PPMS

[cjacks]

Shell

Lulu  That was really funny. I had my first laugh of the day.

Shell , I know !  I haven't had a remission in almost two yrs. Well I had two nice days in Jan. and a couple of OK days in July.  Do they count?

So what about SPMS, no one has said that to me.  And if it were do we still get the same DMDs?

Jo

[Lulu54]

Are you thinking of something more poetic, such as a slow descent through the fourth level of Dante's Inferno thanks to MS?  Or perhaps the 5th or 6th level of purgatory?  :-)
Lulu