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572651 tn?1530999357

Roll call - Who's Here these Days?

We have picked up so many new folks around here and of course our long time community members are still here.  I am thinking it might be helpful to start this new thread and have everyone give a brief introduction of themselves  - perhaps the who, what, when, where and why of what brings you to this forum?  Please help to keep this up on page one so we can get a larger snapshot of who is present.  


It doesn't have to be anything elaborate - I'll start as an example.


I'm Lulu54, and was diagnosed with RRMS in 2008. I am on copaxone and my MS appears to be stable for now.  My diagnosis was fairly easy because I have a classic MRI with lesions/enhancing lesions in all the right places and a neurologist who doesn't believe in delaying treatment.  Also, I am one of several co-community leaders here on the MS community and am passionate about advocating for all of us.

Who's next?
Best Answer
1216899 tn?1288570325
Believe it or not, I'm still around. I often stop in and see how everyone is doing from time to time. The Parkinson's side of Medhelp is a tad slow to respond, so being that (though I have different meds) I have some of the same type of symptoms that most of you folks have.

By the way, my meds have absolutely changed my life, as life is much more enjoyable for me now.

My doc wrestled around what appeared, due to symptoms, to be MS, or a mimic. After only two years, I was diagnosed with Parkinson's and Fibromyalgia. So, that's why I'm here, I just like you all dang it :)

Mutt
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333672 tn?1273792789
I'm shoshin. I joined in November 2007 after I was dx'd. For about six years before that I was told I had idiopathic peripheral neuropathy and didn't even consider MS. I finally went to a peripheral neuropathy specialist to see if I could get a better explanation than "we don't know what's causing your problems." The PN neuro determined that my problem was in the CNS and started talking about MS, which is when I started scouring the internet for information and found this group. I read posts in many MS groups, but eventually joined only this one for the sense of community and the knowledge shared.

sho
Helpful - 0
Avatar universal
Hello, all. I am still a dedicated lurker, though I very rarely post. (I guess I got kicked out due to inactivity - had to sign up again to post this.) I do not have a great deal of knowledge to share on this subject - I come here to benefit from yours. :)

D
Helpful - 0
1830047 tn?1321667793
Buffy 1970 here.  In limbo land.  Joined last month to convince myself I don't have MS... that has not happened.  Mayo Clinic doctors are only ones who say possible MS (other than non-neuro local docs), but then Mayo neuro actually gave a full in-office test.  Everyone else says FM (I agree), migraine (maybe), nuts (possible but not reason for symptoms), and my fav... "you're just stressed out."  MRI lesions not 'typical' of MS.

Here's hoping docs are right (about not MS... not the nuts part).
Helpful - 0
867787 tn?1318936230
Hello!! I am still here lurking around lol! I was diagnosed in August 2011- soon to start on copaxone so I am guessing dx of RRMS but I truely think I have one of the more progressive types but I will try the DMD anyway-I have been here since 2008 or 2009 can't remember. I was in limboland for 5 yrs but have had symptoms for 10 yrs. I am 42 yrs old from Kentucky
Helpful - 0
1832736 tn?1325082968
Hello all,

I'm Norman, I joined this month.

I was diagnosed in June of this year, after ignoring symptoms for probably 10+ years, I had an attack this past April that really kicked my rear and I had no choice but to seek medical attention.  
Helpful - 0
1748105 tn?1314473206
I am April. I was diagnosed about 10 years ago at the age of 22. I had symptoms for a decade before my diagnosis, but optic neuritis is what finally led to the MRI that showed classic MS lesions. I am also diagnosed with ehlers-danlos syndrome type III. I am currently in the process of starting on Gilenya.
Helpful - 0
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