I'm shoshin. I joined in November 2007 after I was dx'd. For about six years before that I was told I had idiopathic peripheral neuropathy and didn't even consider MS. I finally went to a peripheral neuropathy specialist to see if I could get a better explanation than "we don't know what's causing your problems." The PN neuro determined that my problem was in the CNS and started talking about MS, which is when I started scouring the internet for information and found this group. I read posts in many MS groups, but eventually joined only this one for the sense of community and the knowledge shared.
sho
Hello, all. I am still a dedicated lurker, though I very rarely post. (I guess I got kicked out due to inactivity - had to sign up again to post this.) I do not have a great deal of knowledge to share on this subject - I come here to benefit from yours. :)
D
Buffy 1970 here. In limbo land. Joined last month to convince myself I don't have MS... that has not happened. Mayo Clinic doctors are only ones who say possible MS (other than non-neuro local docs), but then Mayo neuro actually gave a full in-office test. Everyone else says FM (I agree), migraine (maybe), nuts (possible but not reason for symptoms), and my fav... "you're just stressed out." MRI lesions not 'typical' of MS.
Here's hoping docs are right (about not MS... not the nuts part).
Hello!! I am still here lurking around lol! I was diagnosed in August 2011- soon to start on copaxone so I am guessing dx of RRMS but I truely think I have one of the more progressive types but I will try the DMD anyway-I have been here since 2008 or 2009 can't remember. I was in limboland for 5 yrs but have had symptoms for 10 yrs. I am 42 yrs old from Kentucky
Hello all,
I'm Norman, I joined this month.
I was diagnosed in June of this year, after ignoring symptoms for probably 10+ years, I had an attack this past April that really kicked my rear and I had no choice but to seek medical attention.
I am April. I was diagnosed about 10 years ago at the age of 22. I had symptoms for a decade before my diagnosis, but optic neuritis is what finally led to the MRI that showed classic MS lesions. I am also diagnosed with ehlers-danlos syndrome type III. I am currently in the process of starting on Gilenya.
By the way, my meds have absolutely changed my life, as life is much more enjoyable for me now.
My doc wrestled around what appeared, due to symptoms, to be MS, or a mimic. After only two years, I was diagnosed with Parkinson's and Fibromyalgia. So, that's why I'm here, I just like you all dang it :)
Mutt