a couple of questions

[luverofrogs]

I've been reading online since I got home from seeing my new neuro on Friday.  He told hubby and I that I had a 35% chance of having MS.  I thought it was because of family history since we were discussing that at the time he said it. Reading online, I haven't found anything even close to 35% odds.  What do you guys think?  

I remember when I was on this forum before that there was a thread where people here shared what they went through to get their dx.  I'd like to read it again, but haven't been able to figure out how to effectively search for it.  Can anyone help?

Thank you:o).

[risnerrose]

I went back and read your first post, as well as my blurry vision would allow.

Wow . . . Quix provided a lot of information about possible mimics.  Is your neuro ruling those out?  

You brought up an interesting symptom that I have wondered about, but I've never brought it up . . . smell.  I have also noticed odd odors, especially following a sneeze.  This has amused me for years (long before I noticed other neurological issues).

[luverofrogs]

Thank you:o)!!!!  

[luverofrogs]

I did think of more.  My sed rate has been checked again several times since that old post and I've been told has been normal same with ANA and thyroid panels.  I've been tested for diabetes several times and those tests have been fine.  When I started having a really difficult time sometimes getting up and down the steps to my house...the whole 4 of them, I was again told to do strength training physical therapy and the physical therapists covered by my insurance again refused to touch me until I have a dx that they feel adequately explains my host of symptoms.  My biggest concerns are that I can tell a difference in my thinking ability and I know I'm physically unable to do things I could do without a second thought not terribly long ago.  I used to always get told that I look great....now even people that know me casually are noticing when I'm struggling.  That is hard for me.  It took me a long time one day last week to spell the word Wednesday.  I tried for 10-15 minutes and just couldn't do it.  I really hate it when things like that happen to me because it's unlike me.  My family keeps telling me that I'm over-reacting or over thinking things like that that they feel is no big deal, but it is a very big deal to me.  It's very frightening to feel like your mind is failing you, even if it is on things some people may think to be no big deal.  

[wingnut19]

On the right hand side of the page, there's a box that says 'search this community"
....It should be just above where it says "recent activity"....

I just wanted to clarify that I already bumped that one up for you....It's called, "What I went through to get a dx"....(or close to that)


Tammy  :)

[luverofrogs]

How do you search just within this forum?  

I'm going to try to link to my post from before on symptoms.  It's hard for me to type that much out today.  New symptoms since then are: sensation of burning patches in skin, constant blurred vision that varies in intensity with multiple exams by two different opthalmologists that say my eyes are not the cause, odd sensations in arms that feel like I stuck them in a freezer that comes and goes, pains that from reading on here I now know can be described as spasms, twitching spells in different muscles, episodes where it feels like my hearing is being slowly turned down like a surround sound system then slowly returned to normal, episodes where I smell a scent so strongly it's nearly nauseating, but no one else can smell anything, episodes where everything has yellow strips in my vision, episodes where part of my vision in my left eye goes black, my arms and legs seem to "fall alseep" at the drop of a hat, I've had an awful time the past couple of days with leg pain, fatigue is still awful even with treatment for RLS, I've also been on a beta blocker for cardioneuropathy (my new neuro says this doesn't exist, but Google and my cardiologist say otherwise)....that's all I can think of at the moment that I think is new since before.

http://www.medhelp.org/posts/show/306982

[wingnut19]

Ever since your post I was looking for that thread, and I finally found it.....

Silly me didn't realize I could just search in this forum....LOL


Hope it helps you!

Tammy

[risnerrose]

I understand your confusion over the percentage.  From what I understand (and some days that isn't much), even if you had an identical twin with MS your risk would be less than this.  My neuro also threw out a percent,based on my tests and history.  Perhaps this is what yours was doing????

I've had to take some time away from the forum and am unfamiliar with your circumstances.  Could you share your family history and/or symptoms?

I'll try to find the thread and bump it to the top.

Sherry