leg pain

[niaces]

Does the pain in your leg(s) feel like they are being squeezed by vice grip?

[supermum_ms]

:D I personally would much rather have factual errors or grammatical mistakes that change meaning pointed out, than be inadvertently misleading.

To be totally honest I sometimes don't notice the missing words these days, I seem to be always cutting out stuff and moving things around to supposedly get my sentences to flow better lol, it was actually suppose to say....

The way MS basically works, it typically can't cause symmetrical symptoms in all peripheral limbs, that is usually a red flag pointing away from conditions like MS, so i would advice you to keep open minded on what might be causing you these issues.

.....But until you pointed it out, it went over my head that i've started forgetting to writing "typically can't cause" lol keep in mind I am blind as a bat half the time so when i do write something that didn't come out quite right, please tell me :D

Cheers..........JJ

PS i have no problem saying 'typically doesn't cause' if you'd rather......

[doublevision1]

I agree, undxed (and their doctors) should always keep an open mind to the most likely possibilities as well as being an exception to the rule. Quite a few members over the year have made similar remarks that MS can't/doesn't cause symmetrical symptoms. My earliest symptoms remain the most prominent ones which always were and still are symmetrical, so "can't cause" is inaccurate but "usually doesn't cause" is better. That said, my symmetrical symptoms nor the banding in my limbs didn't point my docs away from considering MS. They thought all of it sounded very much like MS. Good thing, since that's what it was. :)

[supermum_ms]

Hey DD,

One of the reasons i always make a point of never stating absolutes, is because there are always going to be exceptions, atypical doesn't ever exclude MS but it does open a window of alternative explanations, that 'may not' have otherwise been thought of when someone googles their symptoms.

Information:
  
"Atypical symptoms indicate an alternative diagnosis to MS and include symptoms suggestive of either other neurological disease (OND) or MUS. Atypical symptoms suggesting OND include numbness in a glove and stocking distribution consistent with peripheral sensory neuropathy; "

http://www.medscape.com/viewarticle/755621

The link below shows 4 different tables of atypical signs for MS, the 4th table is the one specifically relating to spinal signs.  

http://www.ncbi.nlm.nih.gov/pmc/articles/PMC2850590/figure/fig1-1352458508096878/

When ever some one mentions anything within their big picture that is atypical, rare, multiplying rapidly, spreading, weird even for MS etc etc I will usually recommend (undx) people to keep an open mind to what medical condition 'could be' causing their symptoms, because (imho) it's better than being convinced of any one medical condition and it turns out to be something completely different!

Cheers........JJ

[doublevision1]

Actually when I first had my big onslaught of symptoms that led to my dx, I had symmetrical symptoms: both hands, both feet, which came on within days of each other.

[supermum_ms]

One of the major problems with looking up symptoms online, is that MS will come up almost every time just because MS is a condition of the central nervous system, but more often than not it isn't actually MS.

Temporary paralysis on waking up, could be what's called sleep paralysis, the only question mark would be it usually only lasts for a few minutes not the hours your saying. To be honest, i'm not sure of anything that could cause full body paralysis for that sort of time frame, it doesn't sound like what typically can happen when paralysis is caused by MS though.....

Many medical conditions mimic or cause similar symptoms and with you saying your tingling developed in 'all' your limbs over the last 2 months, i really think you 'could be' dealing with something other than MS. The way MS works it basically can't cause symmetrical symptoms, the same symptom in all peripheral limbs is usually a red flag pointing away from conditions like MS, so i would advice you to keep open minded on what might be causing you these issues.

Cheers.........JJ

[niaces]

lol you got that right

[niaces]

I agree about it driving people nuts. its already driving me up the wall

[niaces]

I've had this and other symptoms for almost 10 years now and around 2 months ago I decided to look up my symptoms up on web md everything points to MS  so I have an appointment with a neurologist in July.

[niaces]

thank you for your comment. I have burning in my legs when I lay down as well. then there is tingling in all my limbs just in the last 2 months I have started to drop items that im holding for no apparent reason. also the big kicker is there are days I cant get out of bed do to the fact I am literally unable to move. its kinda like being paralyzed for about 2 hours or so.  

[supermum_ms]

I know it can be an MS issue (:D) errr i did say it does but it was probably lost in the other stuff......I was trying to point out, that peripheral limb banding pain is a pretty common issue with many different underlying conditions that are associated with it but whilst people with MS can experience it too, MS is not at the top of the list of common causes for this particular symptom.

This has a good 'basic' image of the common pattern of (glove/sock) peripheral neuropathy sign if anyone's wondering....

http://www.lower-back-pain-toolkit.com/causes-of-peripheral-neuropathy.html

Cheers...........JJ

[slaytheday]

Hi.

Melinda here.  I"ve always described my legs' pain in particular like they're on the rack torture device.

Blessings.

[kwarendorf]

I  don't have consistent leg pain, but I did have constant foot pain. They felt like something very heavy had just been dropped on them. Meds have helped completely relieve the pain.

Kyle

[doublevision1]

Hey JJ, I definitely have that banding/vise grip sensation in my hands and forearms and it's definitely from the MS lesions on my cervical spine. My neuro calls it cervical myelopathy, and says its common in MS.

[supermum_ms]

To me when someone mentions 'vice grip' pain i think they mean a tight banding/squeeze that surrounds that area of the body but it's not something I've ever experienced in any of my limbs.

When I do experience pain in a limb, it's usually isolated to a specific muscle group eg left calf, left upper thigh etc and the feeling doesn't surround that part of the leg, the pain is only in that muscle because it's become inflexible/restricted.

The 'MS Hug' which is experienced around the torso, is similarly described as a vice grip, banding, tight squeeze but its generally because the intercostal muscles (little muscles between each rib) are spamming and it inhibits the natural flexibility of the ribcage, thus creating the feeling of being tightly squeezed.

From my understanding banding or vice grip pain in the limbs, is more commonly related to the peripheral nervous system eg peripheral neuropathy, than the central nervous system (MS) but it still could happen to an MSer.........keep in mind there are many different explanations and if this is your only symptom, MS would probably not be the most likely explanation.  
  
Cheers.........JJ

[doublevision1]

Not in my legs, but in my hands and forearms. 24/7. For years now. I'm constantly uncomfortable. I swear it'll drive me nuts someday.

[davincidanes]

Very much so.  Or like they are wrapped way too tight with an ace bandage.  
:(   I've had this type of pain that includes my hips, pelvis, and rectal area for about a year now, but am still undiagnosed.

~Linda

[sredhead]

I am also having exactly what Linda is having, started after back injury. 2 neurologist, nobody seems to care. Also feels like Cauda Equine Syndrome. What can be  done. Who will help?