WOO HOO today i jogged

[supermum_ms]

Hi all,

I had to tell some one because its so much of a big big deal for me, and i'm so hopefull that i'm finally coming out of this incredibly long episode. I havent been able to walk since Easter, its been hell on wheels getting control of my legs but about 3 weeks ago when i got the flu, i felt everything shift, alter, gee thats hard to explain but i felt a change within myself. I am sure the flu gave my immune system something real to attack, well my logic might be off but i cant think of anything else to explain why i'm sick but getting better, i'm open to surgestions :). I started to pick up on my stretching, physio and patterning exercises, i was crashing still and my legs at the end of the day were very spasmic and spastic but it felt like it was less out of control.

For just over a week now i've been walking more normally during the day, each day increasing the amount of steps before my legs give out again, the fatigue was also becoming more like what i've been dealing with for years, i had some hope that things where looking up. Friday i was starting to be able to jog a few meters, each time i tried i went further and today i desided to keep jogging until my legs went or i got too puffed, i made it to 260 meters before i had to stop. I was puffed and the closest my legs got to failing was when they started to get really heavy again, i feel like i've won the lottery!

B.E. (before episode) i thought nothing of jogging up a few flights of stairs, my classroom was on the second floor and i was up and down all day long and happily running races with the kids during playtimes, I never sat down, I was fit and very active but lost everything with a bang. It felt like it was over night but it wasn't, the fatigue shifted a few weeks before i stopped working (contract ran out) i was getting heavy, tired earlier in the day, i thought i knew what i was in for because its happened every year for 6 years but no i hadn't a clue what was about to happen to me, no year compairs with this one. I dont think i'll get back to being able to wakeboard again but who cares, I CAN WALK, NO I CAN RUN!

:) :) :) :)

Cheers......JJ

[Ufrustrated2]

that is great news. i know you feel wonderful breathing in deep from running. the immuno system has a mind of it's own doesn't it?

Cheers

[Khiba]

JJ,

I think that is wonderful news! I am so jealous! I'll bet you even got a "runners high" afterwards. :)

Like you, I used to be super active and athletic and ran and played all sorts of sports. Some days now its hard to walk from the bedroom to the kitchen. But some days, a very few special ones, i can walk the whole block of 1/2 mile and survive to savor it. It is such a sense of accomplishment and feels so good.

About the flu causing or helping you to recover... I totally think you could be onto something there. I never get sick. Haven't for 30 years. Maybe this year I will at least get a cold and give my bored immune system a real project so it will get off my case. Think? Like a kid with nothing to do after school, a bored immune system will get into lots of trouble.

Anyways, Congrats! Let us know more as you run along.

Jessica (also a JJ)

[supermum_ms]

Just to make me humble, today my muscles are killing me, i'm having to sit on a kitchen chair with my legs bent up and my feet flat on the chair seat, sort of a squatting position. The pain isn't too bad, more of a healthy burn from use like after a good work out after a break, i'm cramping a lot but my muscles are just letting me know they are way out of shape. I sure have lost some muscle mass, i never had much to begin with but my legs are stick insect impersonators and the skin from my thighs is wrinkly and saggy, what a good look (ha-ha-ha) i need a muscle implant :)

I wish i had some wonderful step by step plan to tell, you wouldn't believe half the things i've been doing/trying. I've got a facination with brain plasticity, psychology, behavioral therapy and even cognitive therapy, i have for years, wow its got to be over 30 years ago when i was a volunteer patterner for a young boy with an acquired brain injury. I'm sure knowing what i know has all helped but how much of a difference its made is the unanswerable question, MS has its own path and as yet no one really knows what it will mean for each and every one of us.

I am very aware my next episode maybe even bigger than this one, i suppose i'm trying to get a lot back before that happens. It maybe a little selfish but the world has had to continue revolving with out me, so the kids clothes where a little crinckly and the floors are in need of a good clean, its time they learned how to pick up after themselves anyway and stopped just clearing a path so mum doesn't keep falling over everything, lego is my enemy! who ever invented that stuff didn't have the big picture in mind.

I'm sure its going to bite me again but at the moment i'm actually happy, and theres a spring in my step (figuratively and literally) that has been missing, i'm going to do what ever i can to keep it even if its only for a little while, it feels so good!

Thanks so much for the well wishes it means a lot

Cheers.......JJ  

[Lulu54]

Hi supermum,
I didn't run before my dx, I'm not sure I could even try now!  But it is exciting to here you did it.  Perhaps I'll crank that speed up a notch or two  on the treaadmill when I get bac kto the gym this week!

congrats- don't over do it though.

be well,
Lulu

[sllowe]

Hi JJ!!!!!

Woo Hooo is right!!!!!!!!!!!!!

Such good news! I hope everyone reads this and shares in this moment with you.

Thank you so much,
-shell
p.s. Love the B.E. (before episode) abbrev. - we'll have to put that in our acryonym HP page

[rendean]

We haven't met yet either but your news so awesome!!! What an inspiration to those of us still struggling to walk like we used to!!!

Thank you so much for sharing this great news. And a big congratulatory hug as well.

Ren

[Eyesnlegs]

Hi, don't think we have met yet but you have given me hope that I may walk again too as I had a relapse which has held me up since last September. I am so pleased for you!!

So run for all of us eh?

Pat

[Sarahsmom46]

That is totally awesome!!!!!  I am so excited for you and jealous at the same time.  How far did you go and how did you feel afterwards?  I am so inspired to get back to jogging too.  Good for you.  

Julie

[Mand125]

Well done!!!

That is interesting about the flu and I think it does sound logical..

Keep on running
Mand

[HVAC]

How cool is that!

Alex

[young at heart]

JJ,

CONGRATS ON THE RUN, MY LEGS ARE JEALOUS

T-LYNN