new person google sent me

[sosillysj]

Hi,
I am a little confused at how to navigate all of this. I do not work on the computer. Well I signed up. I think that  maybe I am in a stage of being mad. This has blindsided me. I had a spinal tap about a month ago and they found the bands. This is after 2 MRIS showing lesions. My symptoms are to numerous to go into. I also have a genetic heart problem. The one MRI showed nodules on my thyroid that are malignant or benign according to the radiologist. I see Dr for that on 9/28.
I guess for now my question is has anyone had continuing pain from the spinal tap?  The pain is in my back at the site

[sosillysj]

Hello,
Thank-you for your quick response. You have no idea how great that feels in this lonely full time patient world I seem to live in.
I have had the LP site checked and an MRI done of the lower spine. My neurologist had me go to the ER. They said it showed inflamation and it would subside.

I have had many symptoms come and go over the years. Diagnosed a few times with Fibromialgia,taken many meds that did either nothing or caused side effects.

April 2011 I had a cardiac ablation after many hospitilizations for a-fib. I continued to feel terrible and was hospitalized for cardiac reasons.

One year ago had Shingles and had weakness and pain. I was diagnosed with Polymyalgia Rheumatica. Eye problems and head pain. Giant course of steroids that sent me to the hospital at x-mas. My lungs filled with fluid. I had a temporal artery biopsy. I had a incident of loss of vision in Feb.Had another biopsy in July because the steroids might have altered the results. Both biopsys negative for Giant Cell Arteritis. The one thing that the Neuroligist told me before 2nd biopsy was that brain MRI showed something but it was not cancer and he did not know what it was. I found out later that the Radiologist said it was suspicious of ms.(or however he stated it).


Anyhow the Neuroligist says he is 95% sure I have ms. I see him again this month. I will be more prepared to ask questions. I think I was so shocked I did not ask the right things. He mentioned Copaxone and gave me a booklet.

I should mention that I am on lifetime Coumadin and 6 other heart meds that limit other meds that I can take. Also falling has been a big problem because of that and of course it just is for anyone!

I had follow up with Rheumatologist and she thinks the ms makes sense in retrospect and undiagnosed me with Polymyalgia Rheumatica. She also did bloodwork, A&A panels and some others.

So, I hope that is some info that gets me started here. I really appreciate what you all do for everyone. I really am positive, silly and fun! I am ready to make my lemonade, just missing a few ingredients I think.
Thanks,sj

[Lulu54]

hi and welcome - I am glad Dr. Google sent you our way.  It appears you are a quick learner.  HAve you been officially diagnosed with MS?  I'm not quite sure from what you have written here.  

I hear you about being mad - being blindsided by this MonSter can be infuriating.  And it can also drive us mad.  

When you can, please fill in some of the blanks of your story - we're good listeners.  Let's get straight to your question for now - no, you should not still have pain at that site.  Has someone looked at it for you and made sure it isn't red (as in infected)?  Please give your neurologist a call about the back pain and have it evaluated - the usual LP pain is the dreaded headache.  

Welcome again and I hope we see you around.
Lulu