Aa
Sound like ms?
Hi!
I'm sorry to dump all this here but I am very concerned with my symtoms.
I don't have much in the way of vision problems, mobility problems, balance, no numbness ect but I do have intermittent tingling. All day.
Now when I search for tingling on the internet I normally get met with numbness, which I don't have. Its constant tingling in my legs and arms, feet and hands. This tingling has an electric type charge that doesn't hurt but it does come for a few seconds then goes away. It's constant. I probably feel this every 5 mins and it happens alot after exercise for a few hours. Today was a very hot day and as I was walking up a hill it was happening basically the entire time in my knees for some reason but it does happen alot on shins as well as hands.
Now apart from having this sensation 24/7 that's basically it. I do the get the odd pin prick on other parts of my body which gives a sharp, cold feeling and sometimes feels like I've had a raindrop fallen on me. Sometimes the electric feeling feels like water as well. It depends I guess.
All my blood work was fine. Autoammune b12 blood sugars ect I was tested for a whole heap of things and all was fine.
Does anyone think this could be ms?
I'm sorry to dump all this here but I am very concerned with my symtoms.
I don't have much in the way of vision problems, mobility problems, balance, no numbness ect but I do have intermittent tingling. All day.
Now when I search for tingling on the internet I normally get met with numbness, which I don't have. Its constant tingling in my legs and arms, feet and hands. This tingling has an electric type charge that doesn't hurt but it does come for a few seconds then goes away. It's constant. I probably feel this every 5 mins and it happens alot after exercise for a few hours. Today was a very hot day and as I was walking up a hill it was happening basically the entire time in my knees for some reason but it does happen alot on shins as well as hands.
Now apart from having this sensation 24/7 that's basically it. I do the get the odd pin prick on other parts of my body which gives a sharp, cold feeling and sometimes feels like I've had a raindrop fallen on me. Sometimes the electric feeling feels like water as well. It depends I guess.
All my blood work was fine. Autoammune b12 blood sugars ect I was tested for a whole heap of things and all was fine.
Does anyone think this could be ms?
Hi all,
I've returned from my mri. No lesions, but do some some other problems. The short findings are - c6-7 annulus tear, possible significant neural foraminal stenosis on the right and impingement of the c7 nerve root.
The doc said he doesn't believe this is what is causing all the tingling tho... And I can't see a neurologist now until January (I called and rebooked for an earlier appointment as someone had cancelled) so I'm basically left at square one.. And now even more worry about my neck.. Can I continue to play sports until my neurology appointment in January?
I've returned from my mri. No lesions, but do some some other problems. The short findings are - c6-7 annulus tear, possible significant neural foraminal stenosis on the right and impingement of the c7 nerve root.
The doc said he doesn't believe this is what is causing all the tingling tho... And I can't see a neurologist now until January (I called and rebooked for an earlier appointment as someone had cancelled) so I'm basically left at square one.. And now even more worry about my neck.. Can I continue to play sports until my neurology appointment in January?
Omg! I stopped my love of baths three months ago when I spent too long in the tub and my legs wouldn't work. After hours in the tubb I was finally able to roll. Out on the floor and crawll to my phone. I haven't had a bath since and now have a shower chair in my tub. Warning for sure lol. We all learn in different ways!
COMMUNITY LEADER
MS - WARNING WARNING WARNING
Yep i'm being a tad dramatic and it's totally out of character for me but for any MSer out there or suspected MSers.......DO NOT DO THE HOT BATH TEST!
Long long ago the 'hot bath test' use to be how MS was diagnosed, if MS was suspected they would put them into a hot bath and if the patients symptoms returned or worsened they were dx with MS, because they were exhibiting a positive sign of Uhthoff's. The problem with the old testing method was that sometimes, the patient never recovered or took years to recover, Uhthoff's will most likely only cause a temporary pseudo relapse and an MSer will fully recover once cool and rested.
http://www.nationalmssociety.org/Living-Well-With-MS/Health-Wellness/Heat-Temperature-Sensitivity
BUT a few years ago a community member who was dx 'probably MS' at the time, enjoyed a hot tub with friends and it took her 2 years to recover and get out of her wheelchair................hence the warning!
Cheers..........JJ
Yep i'm being a tad dramatic and it's totally out of character for me but for any MSer out there or suspected MSers.......DO NOT DO THE HOT BATH TEST!
Long long ago the 'hot bath test' use to be how MS was diagnosed, if MS was suspected they would put them into a hot bath and if the patients symptoms returned or worsened they were dx with MS, because they were exhibiting a positive sign of Uhthoff's. The problem with the old testing method was that sometimes, the patient never recovered or took years to recover, Uhthoff's will most likely only cause a temporary pseudo relapse and an MSer will fully recover once cool and rested.
http://www.nationalmssociety.org/Living-Well-With-MS/Health-Wellness/Heat-Temperature-Sensitivity
BUT a few years ago a community member who was dx 'probably MS' at the time, enjoyed a hot tub with friends and it took her 2 years to recover and get out of her wheelchair................hence the warning!
Cheers..........JJ
Spinal lessons are found in something like 5-1w0 percent of ms cases. When I had horrible backk pain for two years they did everything but an mri and couldn't find anything. I am a nurse and know that mri. Can show things that other tests can't. I asked my doc for an mri at least three times even with my father present for one time. I was denied because my doc was sure it was muscular. Sure enough when I had a spinal mri after diagnosis because my. Neurologist was sure it would have lesions due to my pain. It did and was full of them! So I say whatever makes you feel better! You know your own body. Good luck and best wishes
One of the situations that steered me towards self diagnosing (which is not recommended but Drs needed the help) was a recommendation I got from a coworker. I explained to her that my legs felt weak and tired and she recommended a hot soak in Epson salt. She meant well but this triggered full out exacerbation. Sound horrible but this was the needle in the haystack that prompted me to request the possibility of MS or MS like disease. The doctor ordered the MRI and found lesion. A 2nd and 3rd one confirmed the diagnosis.
If you do not have MS the hot soak will lead to some dizziness and will likely diminish within an hour or so..but if it is MS the dizziness will remain and let you know that there is a much bigger problem that needs tended to. Good luck to you.
If you do not have MS the hot soak will lead to some dizziness and will likely diminish within an hour or so..but if it is MS the dizziness will remain and let you know that there is a much bigger problem that needs tended to. Good luck to you.
I hope your MRI goes well. I do think you will find the neurologist most helpful as he will be able to help you with peripheral nerve issues.
When you see him, I wouldn't mention ms at all. Just this daily annoying twitching. You currently don't have really any sx of ms as you mentioned in your first post, unless he finds somethng during your exam.
Another thing to consider -- if you haven't, have blood work done. There are a lot of things this could be, and blood work is the best place to start. Request magnesium levels; Low MG levels can cause fascs (and anxiety).
Lastly, answers can be slow to come. Make sure you do your best to keep living life, and if you are having difficulty with that, the support of a counsellor can be a huge help. I never thought I'd need one, but mine is helping keep me sane :).
When you see him, I wouldn't mention ms at all. Just this daily annoying twitching. You currently don't have really any sx of ms as you mentioned in your first post, unless he finds somethng during your exam.
Another thing to consider -- if you haven't, have blood work done. There are a lot of things this could be, and blood work is the best place to start. Request magnesium levels; Low MG levels can cause fascs (and anxiety).
Lastly, answers can be slow to come. Make sure you do your best to keep living life, and if you are having difficulty with that, the support of a counsellor can be a huge help. I never thought I'd need one, but mine is helping keep me sane :).
Just a quick update I have ordered another mri this time cervical spine which I'll have in 2 days. I just want to be sure. I have the same symptoms everyday every minute and now I have a new symptom of when I am having a hot shower on my right knee in the same spot sometimes I'll get a really cold raindrop type sensation that lasts like 1 second. I'm very scared it is all going to equal ms.
I had a ct scan of cervical neck from my gp which showed mild degeneration but he said nothing was touching the nerves so ruled possibility this causing my symptoms. It was hard to get him to refer me for a cervical mri he kept saying don't worry you don't have ms don't waste your money until you see a neurologist - which is 3 months away..
I had a ct scan of cervical neck from my gp which showed mild degeneration but he said nothing was touching the nerves so ruled possibility this causing my symptoms. It was hard to get him to refer me for a cervical mri he kept saying don't worry you don't have ms don't waste your money until you see a neurologist - which is 3 months away..
Thank you for the reply, I will seek a private neurologist asap and see what they think
In the areas that tingle, if you place your hand in on, can you feel muscle movement? Or see it? It's usually easiest to feel or see in your calves.
If so, it could be something like benign fasciculation syndrome (BFS), which is not uncommon. When it's mild, it feels like tingling. When it's severe, you can see your muscles twitching.
Nothing would show up on an mri if it is BFS (as JJ said, this is a peripheral nervous system thing), so I wouldn't worry about imaging your spine -- I would see a neurologist to get some clarification instead.
I've tingled and twitched my way through over a year, sometimes better sometimes worse. When it's mild it's usually mostly in my legs ... when it's severe it's everywhere. I've been told anxiety can make it worse -- although I don't see a correlation myself. Exercise definitely makes it worse.
Get some exercise one day, get those muscles twitching, and if you can see it, take some video to show the neurologist. He or she will help you sort this out. My neurologist found this helpful, since by the time I saw him they had slowed down and were not visible.
If the tingles wake you at night there are ways to manage it. Once the "fear" aspect is removed, the tingles are more annoying/occasionally amusing than anything.
Keep us posted :).
If so, it could be something like benign fasciculation syndrome (BFS), which is not uncommon. When it's mild, it feels like tingling. When it's severe, you can see your muscles twitching.
Nothing would show up on an mri if it is BFS (as JJ said, this is a peripheral nervous system thing), so I wouldn't worry about imaging your spine -- I would see a neurologist to get some clarification instead.
I've tingled and twitched my way through over a year, sometimes better sometimes worse. When it's mild it's usually mostly in my legs ... when it's severe it's everywhere. I've been told anxiety can make it worse -- although I don't see a correlation myself. Exercise definitely makes it worse.
Get some exercise one day, get those muscles twitching, and if you can see it, take some video to show the neurologist. He or she will help you sort this out. My neurologist found this helpful, since by the time I saw him they had slowed down and were not visible.
If the tingles wake you at night there are ways to manage it. Once the "fear" aspect is removed, the tingles are more annoying/occasionally amusing than anything.
Keep us posted :).
I had my brain mri (paid myself for peace of mind) and it turned up negative. Should I get one of my spine now? I am still having these sensations :(
Hi thanks for your reply!
Should I book myself a spinal mri? I'm currently booked to see a neurologist but the wait time is 4 months and I'm having these sensations every few mins every day.
Should I book myself a spinal mri? I'm currently booked to see a neurologist but the wait time is 4 months and I'm having these sensations every few mins every day.
COMMUNITY LEADER
Hi and welcome,
I personally don't think it's likely to be MS, because MS would not typically present bilaterally in 'all' peripheral limbs [both arms and hands, both feet, shins and legs], to me it sounds more like it's effecting your peripheral nervous system (MS is the central nervous system).
It could possibly be something like a structural spinal issue eg degenerative disc etc if your blood tests haven't picked up anything like diabetes etc, i'd speak to your doctor about what else could it be.
Cheers...........JJ
I personally don't think it's likely to be MS, because MS would not typically present bilaterally in 'all' peripheral limbs [both arms and hands, both feet, shins and legs], to me it sounds more like it's effecting your peripheral nervous system (MS is the central nervous system).
It could possibly be something like a structural spinal issue eg degenerative disc etc if your blood tests haven't picked up anything like diabetes etc, i'd speak to your doctor about what else could it be.
Cheers...........JJ
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