Surviving Neurological LimboLand

[sllowe]

Just a reminder to those in limboland, this forum is also available, and originated from our smart and loving MS forum members. Your never alone :)

http://www.medhelp.org/forums/SURVIVING-NEUROLOGICAL-LIMBO-LAND---NO-DX/show/553

[vamanos]

Agreed. I do not think I would go there if I were in limbo, AFTER experiencing this forum, which is frequented by a majority who were in limbo, or are in limbo---plus, everyone here is very kind and helpful. :)

[wiggles94]

hi Shell - I haven' t been around much - but check in once in a while - still in limboland -  - I have a good neuro at U of Rochester at the MS center who has taken me on as a patient - as well as a great internist who sees me every 4 months - or as needed - so I feel in good hands these days - and no progression - just stuck with fatigue and having to work very hard to balance energy - so as not to exacerbate numbness, tingling etc.
I had looked at the limboland site early in this journey - and it didn't seem nearly as active as this one - AND I was interested in hearing from those actually dx with MS to learn about their journey sx, etc.
Still think this site is such a valuable resource for those with MS and those who are in the midst of finding a dx.
Thanks for all you do and have a great thanksgiving!

[PastorDan]

Yeah, Shell, my few visits over there, where I technically belong, have left me confused.  But then, I seem to confuse easily these days.  One thing I think I can say is that the technical savvy is fabulous here, and that's among the best attractions for me.  If I have a question about a test or a drug, somebody here is likely to have an answer, even if it isn't the answer I wanted.to hear.

[vamanos]

I just popped over--it seems it is not quite as active as this forum. Those in limbo (where I spent most of the summer) probably feel more connected here...both are great forums, I am sure. Thanks for posting sllowe. You always share good links.

[SarahL2491]

Sorry, powerjen, for the long exile in limbo land, I think some of us probably hold a record for having  been there, I was 30 yrs getting a diagnosis, at least its gotten easier to get them now....I remember hearing horror stories of how they submurged you in a tub of hot water to see what happened to you.........honest, was told that by an MS patient who passed away a couple years ago.

Hoping you find your Dx soon, regardless of what it is.

sillowe..........good idea.....wish I had known about the limboland forum when I first encountered this...........maybe we should bring this up every so often, like a billboard!

[powerjen13666]

I shall be heading on over there shorty x Limboland is drving me nuts it is so hard and frustrating having all these symptoms and not having a proper diagnoses

[sllowe]

Is there anyone on our forum in Limbo who has stopped by the Limboland forum? I'm quite surprised, considering the new members who have joined us with no diagnosis that there are no responses to this post.
-Shell