Thank you so much for your responses.
I do not have the butterfly rash on my face as in Lupus but I did read about that and it fits otherwise. The problem is there are so many weird things happening that it seems like my symptoms fit so many different things.
The neurologist didn't specify that's it's not MS he just said he is 99% sure it's not neurological. He also told me not to go out of my way to prove him wrong. He was a bit strange.
Thanks again for replying.
I had depression and they ignored me until I was diagnosed with MS and late stage Cancer. You could have several different things going on many of us do.
If they did a Neurological exam: reflexes, following the finger with your eyes, standing with your eyes closed, etc. it would show Neurological deficitrs better than a MRI. Do you by chance have what they call a butterfly Shape of a butterfly) rash on your face? That could be Lupus which can effect many parts of the body.
MS is usually one sided like left or right. Both legs may not be MS. Something is going on for sure.
I had to keep saying "Something is terribly wrong I do not know what it is but it is serious" I had to go to many kinds of Specialists until they found what was going on. I went to Neurologists because I failed the neurologic exam my GP gave me. I had no signal to the left side of my body classic MS. I went to a neuro opthalmologist, a heart specialist, a gynecologist, a gastroentrologist, a opthalmologist, a ENT, and a general surgeon.
Did the Neurologist say it absolutely is not MS or that he did not find MS at this time. The rule with neurologist is it is not MS until it is. They told me I did not have MS for years but followed me until all the tests showed MS and all the blood work for other conditions came out negative.
Alex
Hi, Jodie. Ongoing symptoms and no diagnosis is hard. Many here are or have been in the same situation, so you have lots of company.
I have to say that nothing you describe screams MS to me, including your MRI results. Some of your issues are almost certainly not from MS, including joint pain, gyno stuff, skin break-outs, heart arrythmia and most muscle aches. It's conceivable that some of these could ultimately be offshoots of MS. For example, spastic muscles cause pain. But that sort of thing nearly always happens after MS has worsened, and not as an initial issue.
I'm trying to come up with other potential problems that could cause all this, and not being successful. And of course I'm just a patient, not a doctor. Maybe others here will have some ideas for you. Meanwhile, hang in there.
Good wishes for getting to the bottom of your symptoms.
ess