MRI results and symptoms - neurological?

[JodieC96]

Hi there,
I apologize in advance if there is too much detail.  This is my first time posting and I didn't know how much to include!
I am a 33 year old female  who until the last 6 months or so was very healthy, only health problem is a history of depression which I have been managing mostly successfully for about 15 years.
I recently had an MRI ordered after an ER visit for tingling and weakness in the left side of my body and the doctor suspected MS.  These symptoms have continued and I now have weakness in both legs.  A couple of stairs make my legs very tired.  I get frequent muscle aches and joint pain in my legs (more often the left) and when I stand up sometimes my legs feel like cement  and like there is no flexibility in my ankles.  If I walk or just stand up for a couple of minutes  my body starts to shake a bit and my heart beats extremely fast and sometimes skips a beat.  I have sat on the floor in the middle of home depot because I couldn't stand any longer.
Not too long ago I was running 5K and now I can't even fold laundry without getting extremely exhausted.  I've also had digestive,  urinary and gynecological issues.  My skin has been breaking out (even as a teen I had pretty clear skin), scratches don't heal very well and I can see marks months later.  Even my tongue looks abnormal.
I have had a colonoscopy, gastroscopy, CT scan of my head, a multitude of blood tests and all were normal.
My brain MRI said "Linear symmetric foci T2/Flair hyperintensity involving the posterior pons bilaterally, involving the region of the medial lemniscus.
I have seen a neurologist who told me my MRI was fine, it was my GP who gave me the results.  The neurologist said he is 99% sure it is not neurological but is doing an EMG in a couple of weeks anyways
I have found that because I have a history of depression most doctors don't take me seriously and assume my symptoms are due to anxiety or depression.  I am doing well mentally right now and my psychiatrist and GP, who know me well do NOT believe that the symptoms stem from psychological reasons.
It seems as though every system in my body is falling apart and most of the doctors don't seem concerned but right now there is little I can do  and it is very frustrating.
There have been even more symptoms but these are the ones that I think are most relevant.
Does anyone have any suggestions on what else I can do or tests I can ask for?
Thank you so much

[essdipity]

Hi, Jodie. Ongoing symptoms and no diagnosis is hard. Many here are or have been in the same situation, so you have lots of company.

I have to say that nothing you describe screams MS to me, including your MRI results. Some of your issues are almost certainly not from MS, including joint pain, gyno stuff, skin break-outs, heart arrythmia and most muscle aches. It's conceivable that some of these could ultimately be offshoots of MS. For example, spastic muscles cause pain. But that sort of thing nearly always happens after MS has worsened, and not as an initial issue.

I'm trying to come up with other potential problems that could cause all this, and not being successful. And of course I'm just a patient, not a doctor. Maybe others here will have some ideas for you. Meanwhile, hang in there.

Good wishes for getting to the bottom of your symptoms.

ess

[HVAC]

I had depression and they ignored me until I was diagnosed with MS and late stage Cancer. You could have several different things going on many of us do.

If they did a Neurological exam: reflexes, following the finger with your eyes, standing with your eyes closed, etc. it would show Neurological deficitrs better than a MRI. Do you by chance have what they call a butterfly Shape of a butterfly) rash on your face? That could be Lupus which can effect many parts of the body.

MS is usually one sided like left or right. Both legs may not be MS. Something is going on for sure.

I had to keep saying "Something is terribly wrong I do not know what it is but it is serious" I had to go to many kinds of Specialists until they found what was going on. I went to Neurologists because I failed the neurologic exam my GP gave me. I had no signal to the left side of my body classic MS. I went to a neuro opthalmologist, a heart specialist, a gynecologist, a gastroentrologist, a opthalmologist, a ENT, and a general surgeon.

Did the Neurologist say it absolutely is not MS or that he did not find MS at this time. The rule with neurologist is it is not MS until it is. They told me I did not have MS for years but followed me until all the tests showed MS and all the blood work for other conditions came out negative.

Alex

[JodieC96]

Thank you so much for your responses.
I do not have the butterfly rash on my face as in Lupus but I did read about that and it fits otherwise.  The problem is there are so many weird things happening that it seems like my symptoms fit so many different things.
The neurologist didn't specify that's it's not MS he just said he is 99% sure it's not neurological.  He also told me not to go out of my way to prove him wrong.  He was a bit strange.
Thanks again for replying.