Aa
vibrations in the nether regions lol
Ok so over the past few days I have been having vibrations almost non stop in the nether regions. Women you know what I am talking about lol. It is very annoying and driving me nuts. I don't know how to mention this to my neuro lol it is a bit embarrassing to think to walk in and tell him my private areas are vibrating lol maybe I will just let this one go and not say anything. Not sure anything can help this anyway.
Any of you ever experience htis and if so is there anything to do for it?
Paula
Any of you ever experience htis and if so is there anything to do for it?
Paula
You all have me wondering. I've been getting the groin vibration since mid to late October. At first it was very strong. So strong in fact that it felt as if my skin in the entire groin area was literally shaking from the vibration. When it was that strong my skin in that area would begin to itch. It's not as strong now. I can tell it's still there though because my skin in that area gets itchy. And it's not an irritation sort of itch it's more of a tickling kind of itch. Hard to explain.
I had a cervical MRI done in late December that showed two bulging discs and one is abutting my spinal cord, so I've been thinking perhaps those could be causing it. I meet with my neuro Monday to go over the results and I'm curious to find out if the discs could be causing my symptoms. If not, and since there are no lesions reported in the MRI results, I'll know there has to be something else other than the bulges causing the vibration. If it's not the bulges or MS there must be something else going on.
I had a cervical MRI done in late December that showed two bulging discs and one is abutting my spinal cord, so I've been thinking perhaps those could be causing it. I meet with my neuro Monday to go over the results and I'm curious to find out if the discs could be causing my symptoms. If not, and since there are no lesions reported in the MRI results, I'll know there has to be something else other than the bulges causing the vibration. If it's not the bulges or MS there must be something else going on.
Mary, i am glad that you took my response the way I intended it to be said. I didn't take your post necessarily as critical. It just seemed to make something click in me. And, yeah, like opened my eyes to a little glimps of self-centerness (is that a word??) or being observed.
My mind is boggling so I am going to end this with a heartfelt thank you for helping me realize some tihngs. There is so much trapped in a bubble in my head that I want to say, I just can't seem to express it. It is frustrating me.
Addi-centered....I like that. :)
My mind is boggling so I am going to end this with a heartfelt thank you for helping me realize some tihngs. There is so much trapped in a bubble in my head that I want to say, I just can't seem to express it. It is frustrating me.
Addi-centered....I like that. :)
I see where you are both coming from. I don't have a problem with talking about any of my body parts it is just jaying that it is vibrating that makes me uncomfortable. Last time I saw him I was having this pain in my left buttocks and I told him I had a pain in the butt lol he laughed and said I think we all have one of those lol.
I will be sure to mention it to him when I go see him again or call him if it gets worse I will contact him sooner. I go see him again the end of March so hopefully it can wait until then.
Sometimes making jokes of things is the only way to deal with them. I know that this is serious but we either have to laugh about it or cry about it and I choose to laugh beause it is more fun to do :)
Thanks Ladies for all your comments,
Paula
I will be sure to mention it to him when I go see him again or call him if it gets worse I will contact him sooner. I go see him again the end of March so hopefully it can wait until then.
Sometimes making jokes of things is the only way to deal with them. I know that this is serious but we either have to laugh about it or cry about it and I choose to laugh beause it is more fun to do :)
Thanks Ladies for all your comments,
Paula
I'm sorry if I sounded critical Addi. I didn't mean to. That's my own impatience showing.
All of us must come from the perspective of our own experience. We can't imagine what things are like for others if we haven't experienced it ourselves or heard a good explanation.
Actually, I think that's what makes the discussions here and sharing our experiences so valuable. We learn so much, including ways we can communicate effectively with our doctors about what is happening to our bodies and minds. Better communication often can mean better care.
I share your fear about becoming a person I don't recognize or like. I have referred to that as my world shrinking or becoming too MS focused. I'm sure cognitive changes don't help. MS doesn't usually rob us of intelligence but it does often make it hard to focus our attention and slows mental processes.
It is common for anyone who is forced to manage a disease or fight pain on a daily basis to become increasingly self-centered or absorbed. It's one of the more subtle ways disease likes to rob us of our joy, of our very lives. I'm sorry if you caught a glimpse of this in yourself but (as always) awareness is the best tool in prevention.
On the other hand, as we age we also realize there is real value in being self focused from time to time. Right now, as you fight to be heard and treated, is an excellent time for you to be Addi-centered.
It doesn't sound to me like you have forsaken your concern for others. It sounds like you listened and discovered a new perspective today. It sounds like you have been an excellent guide for your daughter while holding onto the reality that there are always new things for all of us to learn. Too bad it comes so slow these days, eh?
Thanks for sharing your thoughts. It's helped me see things differently too.
Mary
All of us must come from the perspective of our own experience. We can't imagine what things are like for others if we haven't experienced it ourselves or heard a good explanation.
Actually, I think that's what makes the discussions here and sharing our experiences so valuable. We learn so much, including ways we can communicate effectively with our doctors about what is happening to our bodies and minds. Better communication often can mean better care.
I share your fear about becoming a person I don't recognize or like. I have referred to that as my world shrinking or becoming too MS focused. I'm sure cognitive changes don't help. MS doesn't usually rob us of intelligence but it does often make it hard to focus our attention and slows mental processes.
It is common for anyone who is forced to manage a disease or fight pain on a daily basis to become increasingly self-centered or absorbed. It's one of the more subtle ways disease likes to rob us of our joy, of our very lives. I'm sorry if you caught a glimpse of this in yourself but (as always) awareness is the best tool in prevention.
On the other hand, as we age we also realize there is real value in being self focused from time to time. Right now, as you fight to be heard and treated, is an excellent time for you to be Addi-centered.
It doesn't sound to me like you have forsaken your concern for others. It sounds like you listened and discovered a new perspective today. It sounds like you have been an excellent guide for your daughter while holding onto the reality that there are always new things for all of us to learn. Too bad it comes so slow these days, eh?
Thanks for sharing your thoughts. It's helped me see things differently too.
Mary
Mary- I get what you are saying here and even though I got a kick out of this post I happen to agree with you completely. I don't think I looked at the situation as a whole and how others may feel about it, maybe just the way I would. If that makes any sense.
I am completely comfortable with body parts...all of them. My mother is not. I grew up keeping the private parts private. I was taught that my vagina was a chi chi and it was never talked a out. You get the picture.
Well, when I had kids, I did the complete opposite. I used the body parts names openly and taught my kids the same. My youngest is 15 now and she has no problem with the word vagina.
I'm not sure that anyone here will find this amusing or not, but I can honestly say it was interesting to observe. When my daughter and I had to move in with my mom, my daughter quickly realized that my mom thought the word vagina was vulgar and should not be said out loud, not even in the home. My daughter found this profoundly wrong and set out to change her grandmas way of thinking.
She began by just saying VAGINA. Out of the blue, just saying it. And she did it a lot. It was actually funny sometimes. We would be watching a movie all together and my daughter would say, "grandma?" When my mom said what, my daughter would say vagina.
At first my mom would cringe and say ewwww. Within a month or two the reaction changed. My mom didn't cringe anymore. Then one day she actually said the word. I couldn't believe it.
My daughter changed her grandmas way of thinking about a word that should have just been natural to say. There is nothing wrong about it at all. My daughter would say these things to my mom. "it is a part of your body, just like your elbow is". Things like that.
I was proud that my daughter grew up thinking of all of her body parts as being just that...a body part.
As far as the parathesais (yup, that was then word I was trying to remember!!), I once again was going by my own feelings about it. I have the sensation in my torso. For me, it is not one of my irritating symptoms. I didn't think about how others may find it a very irritating symptom. The reference you made about the tickling registered it to me in a way I hadn't thought of.
Usually I am the type of person that thinks of everyone else before myself. I have always been the giver type person. So after I read your post something clicked inside my head. And it made me realize that for some reason this seems to be changing. It registered alarming to me. So I have to wonder why.
I have been having some cognitive issues as of late. I can't follow conversation well. I am constantly searching for words that I know I know but seem to not be able to find them. I start talking about something and then during the convo, my mind goes blank. I am not real familiar with cognitive issues as i never really investigated that because it didn't pertain to me. Could what I explained above be part ofnwhat is going on with me, cognitive-wise?
I sure don't want to be one who doesn't think of others feelings before my own...
Addi
I am completely comfortable with body parts...all of them. My mother is not. I grew up keeping the private parts private. I was taught that my vagina was a chi chi and it was never talked a out. You get the picture.
Well, when I had kids, I did the complete opposite. I used the body parts names openly and taught my kids the same. My youngest is 15 now and she has no problem with the word vagina.
I'm not sure that anyone here will find this amusing or not, but I can honestly say it was interesting to observe. When my daughter and I had to move in with my mom, my daughter quickly realized that my mom thought the word vagina was vulgar and should not be said out loud, not even in the home. My daughter found this profoundly wrong and set out to change her grandmas way of thinking.
She began by just saying VAGINA. Out of the blue, just saying it. And she did it a lot. It was actually funny sometimes. We would be watching a movie all together and my daughter would say, "grandma?" When my mom said what, my daughter would say vagina.
At first my mom would cringe and say ewwww. Within a month or two the reaction changed. My mom didn't cringe anymore. Then one day she actually said the word. I couldn't believe it.
My daughter changed her grandmas way of thinking about a word that should have just been natural to say. There is nothing wrong about it at all. My daughter would say these things to my mom. "it is a part of your body, just like your elbow is". Things like that.
I was proud that my daughter grew up thinking of all of her body parts as being just that...a body part.
As far as the parathesais (yup, that was then word I was trying to remember!!), I once again was going by my own feelings about it. I have the sensation in my torso. For me, it is not one of my irritating symptoms. I didn't think about how others may find it a very irritating symptom. The reference you made about the tickling registered it to me in a way I hadn't thought of.
Usually I am the type of person that thinks of everyone else before myself. I have always been the giver type person. So after I read your post something clicked inside my head. And it made me realize that for some reason this seems to be changing. It registered alarming to me. So I have to wonder why.
I have been having some cognitive issues as of late. I can't follow conversation well. I am constantly searching for words that I know I know but seem to not be able to find them. I start talking about something and then during the convo, my mind goes blank. I am not real familiar with cognitive issues as i never really investigated that because it didn't pertain to me. Could what I explained above be part ofnwhat is going on with me, cognitive-wise?
I sure don't want to be one who doesn't think of others feelings before my own...
Addi
Honestly, it's not that I don't appreciate the humor to be found here but it's no wonder there's a hesitation to mention such things to our docs. Somehow it must be easier to announce this type of symptoms to the world wide web than it is to a health care provider? I guess that's the part I never quite understand.
I've experienced what you describe Paula but only in short, less intense episodes. I have experienced sustained parasthesias in other body parts and they can indeed be difficult to tolerate psychologically even when they are not painful.
I think you could fairly compare this type of symptom to a child screaming STOP! in a laughing voice when being tickled (without compassion) by someone who tickles for their own enjoyment rather than the child's. That's recognized as a form of abuse these days.
I'd mention this to your nuero in the same way you mention any other area that develops symptoms of a parasthesia. The "netherlands" have an abundant supply of nerve fibers so it seems likely they would be a target for scrambled signals.
Any sustained sensation beyond your control needs to be addressed. That's a simple conclussion if you mention pain. It's not always as easy to explain to others if it's a different sensation. But really, even if this feels wonderful initially, who wants to deal with a build up that fails to climax for days on end? I'll bet it wouldn't take long for welcome to become hated.
So then, if it's the eye contact when introducing this kind of topic that makes talking to the doc so difficult, pass the nurse a note before you see the doc and let him/her begin the dialog. And by all means, practice the conversation at home with yourself.
No matter what your mother taught you, there is nothing about your body you need to be embarrassed about. If you can be comfortable asking for help, there's a good chance your doctor can be comfortable helping you. Besides, if we are going to live well with MS, it's essential we become fluent in all our pieces and functions.
Mary
I've experienced what you describe Paula but only in short, less intense episodes. I have experienced sustained parasthesias in other body parts and they can indeed be difficult to tolerate psychologically even when they are not painful.
I think you could fairly compare this type of symptom to a child screaming STOP! in a laughing voice when being tickled (without compassion) by someone who tickles for their own enjoyment rather than the child's. That's recognized as a form of abuse these days.
I'd mention this to your nuero in the same way you mention any other area that develops symptoms of a parasthesia. The "netherlands" have an abundant supply of nerve fibers so it seems likely they would be a target for scrambled signals.
Any sustained sensation beyond your control needs to be addressed. That's a simple conclussion if you mention pain. It's not always as easy to explain to others if it's a different sensation. But really, even if this feels wonderful initially, who wants to deal with a build up that fails to climax for days on end? I'll bet it wouldn't take long for welcome to become hated.
So then, if it's the eye contact when introducing this kind of topic that makes talking to the doc so difficult, pass the nurse a note before you see the doc and let him/her begin the dialog. And by all means, practice the conversation at home with yourself.
No matter what your mother taught you, there is nothing about your body you need to be embarrassed about. If you can be comfortable asking for help, there's a good chance your doctor can be comfortable helping you. Besides, if we are going to live well with MS, it's essential we become fluent in all our pieces and functions.
Mary
Thanks guys,
LOL I told my daughter that the vibration isn't in the right place or I may be enoying it lol, I will see what happens with this. I am not going to call my neuro but I will mention it at my next visit if I don't forget. I get the vibrations in other places too but in the nether regions bothers me to no end. It wouldn't be bad it were to move a little to one side lmao. Sorry had to say it.
Anyway glad to know I am not alone on this and others have felt it too makes me feel better knowing I am not losing my mind.
Paula
LOL I told my daughter that the vibration isn't in the right place or I may be enoying it lol, I will see what happens with this. I am not going to call my neuro but I will mention it at my next visit if I don't forget. I get the vibrations in other places too but in the nether regions bothers me to no end. It wouldn't be bad it were to move a little to one side lmao. Sorry had to say it.
Anyway glad to know I am not alone on this and others have felt it too makes me feel better knowing I am not losing my mind.
Paula
I have this vibrating all over.....sometimes it will be stronger at different parts of my body..but most of the time it is all over!!
it is the symptom that kept me going to the doctors to find out what the vibrating was.... After 2 years I switched family doctors and he sent me to a ms specialist...who Finally helped me...it is not gone completely...but most of the time it is at a low hum and I'm not always noticing it.
He put me on gabapentin... B12 and vitamin D started me on copaxone....Every 3 months we raise the gabapentin and it really seems to help with the vibrating. Right now him on 300 mg 4X a day....everyone is different but this really helped me...
I have heard all the vibrating jokes .... but believe me its not the same...not even close... when this is happening to you everyday nonstop it drives you crazy!!! Tell your doctor he can help you....
hopefully the vibrating will just stop on its own but if it doesn't maybe the gabapentin can help you.... hope you feel better soon.. Linda
it is the symptom that kept me going to the doctors to find out what the vibrating was.... After 2 years I switched family doctors and he sent me to a ms specialist...who Finally helped me...it is not gone completely...but most of the time it is at a low hum and I'm not always noticing it.
He put me on gabapentin... B12 and vitamin D started me on copaxone....Every 3 months we raise the gabapentin and it really seems to help with the vibrating. Right now him on 300 mg 4X a day....everyone is different but this really helped me...
I have heard all the vibrating jokes .... but believe me its not the same...not even close... when this is happening to you everyday nonstop it drives you crazy!!! Tell your doctor he can help you....
hopefully the vibrating will just stop on its own but if it doesn't maybe the gabapentin can help you.... hope you feel better soon.. Linda
Hey Paula,
I've had that, too - it's kinda weird, isn't it?? I first had it a while back when I was still working - started in my hip area, and like Alex, I kept thinking my cell phone was vibrating. Then it moved into the "nether lands", lol. I used to say it was a buzzing/vibrating feeling, just not enough to make me smile, lol! Hadn't had it in a long time, but we just recently got a new puppy, and I was really stressed out the first week or so, and a bunch of old symptoms started up .... and that was one of them. Lasted about a week or so, and now it's gone again. Just another one of the freaky MS things I get .... :-)
Rita
I've had that, too - it's kinda weird, isn't it?? I first had it a while back when I was still working - started in my hip area, and like Alex, I kept thinking my cell phone was vibrating. Then it moved into the "nether lands", lol. I used to say it was a buzzing/vibrating feeling, just not enough to make me smile, lol! Hadn't had it in a long time, but we just recently got a new puppy, and I was really stressed out the first week or so, and a bunch of old symptoms started up .... and that was one of them. Lasted about a week or so, and now it's gone again. Just another one of the freaky MS things I get .... :-)
Rita
I get a numbing / tingling / buzzing off and on along my left side in that area. I just try to ignore it, and I agree, that it is kind of annoying.
What Alex describes kind of matches what I get on my left thigh a lot. It feels like a cell phone is on my leg and it's on vibrate.
What Alex describes kind of matches what I get on my left thigh a lot. It feels like a cell phone is on my leg and it's on vibrate.
I think I get something like that over my eye and I got it in my left butt cheek the other day. When my eye does it I say "my eye is farting" but the other day when it happened in my butt I couldn't say that because people would take me seriously and make a sudden emergency exit.
Cattle prod!! Oh my gosh, that one made me choke on my drink! Lol
And the vibrating panties....umm, could I get one of those books? Jk
Sumana? You there? Now where did she wonder off to? :)
With this symptom there would be no more waiting for the spin cycle.
Addi
And the vibrating panties....umm, could I get one of those books? Jk
Sumana? You there? Now where did she wonder off to? :)
With this symptom there would be no more waiting for the spin cycle.
Addi
I am 60 years young and haven't felt that in a bit of time. If I did feel it, I would find a nice quiet place and.........
You get the picture.
You get the picture.
http://www.medhelp.org/health_pages/Multiple-Sclerosis/Sexuality-and-Multiple-Sclerosis-/show/609?cid=36
Here is a good health page. It touches on this a bit.
Here is a good health page. It touches on this a bit.
oh my gosh Paula, thanks for bringing this up. I have had the same thing. Seems to come and stay for a few days and then goes away. I haven't told anyone either and haven't told a doctor.
It is annoying.
Yes, there certainly is something you can do about it. Do you have a boyfriend (or girlfriend)? This would be a good time to hang out with them:-)
Red
It is annoying.
Yes, there certainly is something you can do about it. Do you have a boyfriend (or girlfriend)? This would be a good time to hang out with them:-)
Red
I thought my cell phone which I keep on vibrate was in my lap. It beats the cattle prod any day.
Alex
Alex
I had this happen right around the time I was being diagnosed. I wasn't sure what it was, but it happened off and on for a few days, then it just stopped. Looking back, I see now that it was MS related. It was annoying and I'm glad that it is gone. If it happens again and doesn't stop, I'd suck up my pride and ask about it.
Katie
p.s. Funny thing is that I went to one of those "Slumber Parties" where they sell adult products like a Tupperware Party recently. They were selling remote controlled vibrating panties. Who would buy that?
Katie
p.s. Funny thing is that I went to one of those "Slumber Parties" where they sell adult products like a Tupperware Party recently. They were selling remote controlled vibrating panties. Who would buy that?
I can see how that would be awkward and embarrassing to have to explain to your doc. You know, there are probably some women who would kill to be able to have that going on...auto vibrator, batteries not required! *grin*
I am currently having the vibrations in my torso area. It is called a para-- dang it! I can't think of the complete word. There are a few meds that can help with that symptom. I know others here will reply to you and tell you what I am completely failing at doing. :(
Well, at least I can tell you that it is a common symptom. There are health pages here that touch on that symptom.
Hang in there,
Addi
I am currently having the vibrations in my torso area. It is called a para-- dang it! I can't think of the complete word. There are a few meds that can help with that symptom. I know others here will reply to you and tell you what I am completely failing at doing. :(
Well, at least I can tell you that it is a common symptom. There are health pages here that touch on that symptom.
Hang in there,
Addi
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