There's always something....(sigh...)

[mary_kay]

Woke up this morning with a "headache" unlike any I've ever had before.  I put that in quotation marks because it was so unusual.  I have decided to name it "Pain Snake"  Kind of a cold, wiggly, stingy thing.  It was all across my forehead, but soon left there and showed up on the back of my head.  Then it went away and I thought it was gone, but I felt nauseated so I gave up on going to work.  Soon it was back in my right eyebrow.  Wierd. Overall, I feel quite foggy...almost dissociated.(sp?)  Does anybody know what the heck I am talking about?!  Even though I have no dx, I am beginning to get the fact that there's always something.  My legs are still better than they were, but not completely, and I could just sleep all day.  Zzzzzzzzz
Mary Kay

[Quixotic1]

I am sorry I saw this post so late.  This is an urgent thing to have evaluated!  Any time you have a severe "headache - unlike any you have ever had before" it should be seen urgently.  Of course, it is almost always something understandable, but occasionally it represents something like a bleed inside the head.  These must be attended to right away.

So that is my advice.  If the headachw is still present or recurrs or is associated with naty symptoms like vomiting, increased weakness, altered consciousness, etc then it is "911" time!

"kay???

I have spoken my piece and I stand behind it!

Q

[Wobbly]

i just wanted to say that I'm sorry your feeling so bad, I know that it's been along time and alot of pain for you.  Did you call you Dr about this head pain?  Don't forget to write this stuff down for the next appt you have OK...

rest up...we are here for you and want you to feel better.  take some time for yourself and do something good for yourself.

Hugs Hugs...
wobbly
undx

[wonko]

LuLu and All,
One of my most persistent and annoying issues is a creepy-crawly tingling IN my head.  It is on my scalp in certain places, and though I know I can't "fee my brain," I somehow perceive it that way.  For me it is a total concentration buster.
For me, the weird feelings that seem to penetrate into my head are also why I stopped drinking alcohol.  It didn't mix in a relaxing way.  Everyone's different, just a word of caution to others with these cranial sensations.

[mary_kay]

The closest thing I have ever felt to this kind of pain is the Cluster Headaches I used to get.  Those are much, much more painful though.  This isn't nearly as bad.  It is nerve pain...in the case of CHs the nerve endings hurt when arteries in the head expand.  Usually one-sided.  Also the eyeball, eyebrow, cheekbone, bony area behind the ear is screaming in pain. Thank goodness I stopped having them several years ago. Have you tried caffeine?  
Hope you feel better,
Mary Kay

[Lulu54]

All,
I would sure like to understand where this isolated head pain comes from.  I know we have no feeling in our brain so its not from there.  I have had an almost constant pain/pressure on my upper skull, right side, for a month or so. Never quite bad enough to take more meds for, but always  present.  I'm beginning to get accustomed to this constant pain/pressure, it seems to always be something.
My best, Lulu

[mary_kay]

I'm basking in the love...I like the idea of that memory box.  I am going to cook something today. I'm fairly certain I remember how to do that.  LOL
Hugs,
Mary Kay

[mary_kay]

Wow..how cool is that?!?!   I am fortunate as far as my artwork is concerned. I teach art twice per week in our after-school program.  I enjoy it so much.
Yes, it is more of a challenge lately to stay positive.  I guess I just worry sometimes about how fast the changes keep on coming on.  This forum helps so much because others are suffering and sharing and it brings me back from my pity party and think of others, which is how things should be, even when people are healthy.  
Love ya,
Mary Kay

[Fluffysmom]

I'm not dx'd either, but I totally know what you mean by "its always something".  I have not met the Pain Snake, thank heavens, but I had a nasty hot pain at the back of my head when I woke up with tremors in February and started on this strange trip though LimboLand.

I hope your fog lifts and pain moves away.  Lets hope that the next "something" is more fun, like opening a memory bank of all the fun and funny things that have happened in your life.  Can you remember any of them through the fog?

I'm sending you some warm hugs, as well as wishes and prayers that you'll be feeling much better soon.

Kathy

[doni54]

Yes, I'm undx too, and it gets totally frustrating when something new pops up.  Like you, I have the random "snakey" pain.  Most of the pain in my head is in the top/back on the right side.  The MRI found nothing, so I guess it's all in my head, or NOT!!!

My pain changes from sharp, to burning, to prickly, never know where or what kind will come next.  I guess we will never have the chance to get bored, huh?

I hope this new stuff goes away soon and you are also able to get the dx you need.  I pray every night for everyone here in limboland to find the dr that will bring them a dx, so that we can all move forward.

Hugs,
doni

[wonko]

Did you check out LuLu' picture?
http://www.medhelp.org/user_photos/show/43949
I think it is a wonderful artistic representation of that dissociated feeling.  If I recall, you are another artist, with watercolors?  Have you had the time to use your creativity lately?  I feel a lot more sadness in your posts than I did last summer.  I understand how stressed out you feel about your health, and hope you lean on us a lot to get through this.
I am far from any dx, still hanging out here for the people but lately doubt my condition is neurological.  But I can relate to coming to terms with there always being something.  I often feel that once I get used to my situation, it changes.  I am also battling the f-word: fatigue.  I hate to even say/write it.  
Just hang in there, sooner or later you'll catch and tame that snake!
~W