Hey Jens,
Get back to us with status when you can!
-shell
Best of luck! That sounds very painful so I hope you get some answers and some relief.
Oooooh, Jen, BTDT! Not fun! I hope your ultrasound turns up nothing!
Thinking good thoughts for you tomorrow!
Hear you on the blood clotting complications, girl. Are you by chance on an aspirin regimine?
Hope the doc's goes well.
Sadie
Bugger Jen!
I've been trying to work out vein issues for far too long, always come up with veins issues causing muscle spasms but can't seem to find the other way around so its the muscle spasms causing the vein issues. If the nerves are incorrectly firing and making the muscles spasm, and the circulatary system needs muscles to contract to push the blood through out your body, then........ ahhh chicken or the egg senario!
In resent studies autonomatic dysfunction has been noted to be significantly high in MSers, I think vein probs are a compounding issues with circulation probs, circulation being an autonomatic function, so all possibly connected to MS. lol i'm still in that fish bowl trying to make sense of it. Anyway i did find an article that had the AD questionaire which might help nut out if there is the AD component to your MS.
Appendix: questionnaire on clinical autonomic dysfunction
1. Manifestations occurring after changing position (yes/no): In the past year, have you frequently (at least once a week) experienced one or more symptoms, such as palpitations, dizziness, blurred vision or feeling of weakness, after standing up from a sitting or lying down position?
2. Skin manifestations (at least one abnormal finding) (yes/no): In the past year, have you noticed frequent (at least once a week) changes in skin color, such as red, white or purple? Cutaneous abnormalities at examination?
3. Thermic dysfunctions (at least one abnormal finding) (yes/no): In the past year have you frequently (at least once a week) experienced hot or cold limbs? Thermic modifications found by the examiner? Thermic perception abnormalities comparing hot and cold stimulations?
4. Sphincter dysfunction (at least one abnormal finding) (yes/no): In the past year, have you frequently (at least once a month) lost control of your bladder function? In the past year, have you experienced difficulty in completely emptying your bladder? In the past year, have you frequently (at least once a month) been constipated?
5. Sexual dysfunction (at least one abnormal finding) (yes/no): In the past year, have you frequently (at least once a month) had problems with ejaculation? In the past year, have you experienced difficulty in ejaculation?
6. Gastroparesis (at least one abnormal finding) (yes/no): In the past year, have you frequently (at least once a month) experienced nausea and vomiting after a meal? In the past year, have you experienced feeling full early when eating? In the past year, have you frequently (at least once a month) had abdominal bloating and/or discomfort after a meal?
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1,2 and 3 I think are the ones relivant to blood flow, I noted 5 out of the 6 that i can tick easily, not sure about no.6 because i'm a small eater, for my entire life i've experienced feeling full early when eating, none of the other things connected to no 6, so i'm counting it as a no.
Anyway, I do hope you get something sorted with your veins, and if it is the veins causing the muscle spasms or what ever, hopefully sorting one also fixes the other. if that makes sense lol
Cheers........JJ
Jen, that sounds painful. I'm sorry you are going through this.
Trying to sort out MS from non-ms problems continues to trip up all of us. I'll hope for you that this is not another clot. Keep us posted.
feel better, Lulu
Good luck with your ultrasound tomorrow, and I hope that it is not DVT.
It's very difficult when one has multiple conditions that can mask each other, making it hard to know when to see a doctor. Leg spasms are relatively new to me (within the past two years) and I have a history of clots due to a genetic defect. I went in this summer for an ultrasound which came back clean and now know that leg spasms can mimic the pain of a blood clot.
I recently made a journal entry "Is Patience a Virtue?" which addresses just the kind of thing that you are going through right now. When dealing with chronic symptoms, whether diagnosed or not, how and why do we decide when to see a doctor?
Sorry to hear that you are in such pain and if it does turn out to be phlebitis, I hope that it is thrombophlebitis, not deep vein phlebitis.
Good luck tomorrow and please let us know how it turns out.
Audrey