WHAT IS WRONG WITH ME

[tess533]

Hi everyone im new here so please bear whit me . Ok where do i start about two years ago i had vision disturbances neck  right shoulder and lower back stiffness back so bad could not turn at night bladder problems dizzy spells sick stumock (  spelling is bad sorry ) toes feel numb to touch floor or the sheets but not when to tuch whit my hands can hardly pull my clothes up at times its hard to explane but its like a weekness or i cease up at time i cant carry my dinner plate to sink its like carring a bag of coaI . I see an optamolagist every three months and he said i had ms he sent me for mri of brain but was clear so he sent me to a nurolagist horrid little man he said i suffer mygrains and my eye might never get better had i been younger he would be more concerned . I dont get head aches im 52 and when i was 26 i had lumber puncture and came back clear so my eye was never norm after that but i told him im not worried about my eye getting better it the dissturbances now i will see my optamolagist agin next month and see what he will say . Im truely fed up my doc thinks i have rumathisom he sent me for x ray s on neck shoulder and lower back and said it was wear n tear sent me back for another x ray on shoulder because i was breathless at times and the radiolagist whent mad and ask ed why he sent me back because she told him it was all cervical from neck an i have rib bone on shoulder ? dont know what thats about  but she was surprised i hadent had a spinal im on no medication and am waiting now tree months to see a rumatolagist no appointment  as yet . Anybody got any ideas im begining to feel like a fraud im soooo tier ed i have now lost my job i have become slower and weeker at times i feel like im 80 and not 50 and depressed can anyone advise please . Thanks for listening xxx

[stella213]

Hi Teresa

I'm so sorry to hear about what has happened to you. It's just terrible.

I saw your first post but didn't comment because I don't know what it could be. My list of symptoms is just as long if not longer and they can't tell me what's wrong with me either.I am sorry that I didn't comment though and at least tell you that you are not alone.

I'm praying for you and hoping that you will find a good dr that will be able to tell you if it's MS  so you can begin treatment.

One more thing - I haven't been to the dr in two years because they all made me feel like they thought I was lying or like they just didn't care. Don't let them make you feel that way. Now I know that they're not all that way and I deserve better- YOU DESERVE BETTER!!!!!! I hope you find it, I know it's hard but don't stop looking until you do.

GOODLUCK TERESA please take care and let us know if you need anything

Stella

[Ferrie]

Hi Tess as I am very new to this group I am not sure what to say but as you seem tobe suffering similar problems as i have been for five years until found Doctor who trully listens and respects that we are not crazy he has found a multitude of problems majority correctable. the b12 and folic are prbably come bak bad but bith are easilty corrected and both could be causing problems with vision this is a problem i also have and my MRI'S so far have not explained them, now another possibility tha i have now been diagnosed is Insulin Resistance 4yr's and three diabetic doctors but i had ti figure it out on my own and with testin done at my request by new doctor I proved it no treatment as of yet has helped but still positive the test are simple , FASTING INSULIN & GLUCOSE AS WELLAS INSULIN TOLERANCE AND GLUCOSE CHALLENGE other options to look at that i have also been found to have is a sensitivty to ZINC AND HEAVY METAL TOXICITY  I do no how it feels to be treated as though you are imagining your problems do not allow this it is their reposnsiblity to acknowledge thes problems that are very real and very fustrating as like you I have also been fired and on top of trying to figure out what is wrong with me I am also in a five year laegal battle with my employer keep reading and learning and the answers will come and by all means do not let them (the dr's) that is make you feel bad because you do really need their help it is their job good luck and remember i am only giving you alternative options are problems could very well not be the same i just want to allow you to have other options that are quite commonly ignored as they are complicated and doctors do not want this Dave

[tess533]

hi lulu i am so mad i have been waiting to see rumatlogist since 26/11/09  only to find out today that my referral from GP has got lost between the two of them i could have cry ed after waiting so long . I thought this app was takeing a long time comeing to me so i rang and they never heard of me so my GP has faxed it to them my god i am so fed up now . seen a diff optomolgist two wks ago and want s bloods done b12 folic and i will go back to him in two weeks time i am so tier ed and my body thermastat ha gone froze to bone one week and roasting the next . seen dentist last week about the gum pain he put me on antibiotics in case i have infection so could ent even get an answer there but no trouble whit teeth or gums since the 3 days that i had it . i swear im gonna go mad if some one dont do something soon . i would just love a good nights sleep .    teresa

[tess533]

Thank 's girls for replys seen optomoligist today and agin none the wiser started talking about migrains and all that and that its good news that mri was clear 6 months ago so i said then why have i all these symptoms very much like ms ? then he started to check eyes (Now this was' nt my norm optomoalgist he was off today ) had a good luck and then done all the drops agin i hate em big yellow eyes took another look at optic nerve and kinda changed his mind i said so if its not ms what is it and he said we have to do test to rule out other stuff so he will do bloods in 4 weeks or B12 and stuff i said my Gp has done them he said he dose his own .Realy stupid i think my gp has had x rays done and bloods and they dont comunicate ?? daft . just  wanted your oppinion if mri was clear ( of the brain ) is that a deffo no to ms  witch at first he was telling me so i said people say it could be from spine could ent it ? or dose ms come from the brain only x

[steph74]

Hi Tess,

I have similar tooth/jaw pains.  I have trigeminal neuralgia (like Rendean), sometimes abbreviated "TN," and sometimes it feels like a horrible toothache, but it can show up in multiple teeth!  The dentist confirmed that my teeth and jaw are fine.  I also get pain that is like a "shock" and sometimes feels like someone hit me.

If you look up TN you'll be able to see a graphic of the trigeminal nerve distribution.  You can see if that's where your pain follows.  It's more common in people over 50 (women in particular), but if it started when you were younger, that would be another indication that it's more likely to be an MS symptom.  Also, if you have pain on both sides (not at the same time, usually) then that's also more likely to be MS.

Good luck.

Stephanie

[rendean]

Hi, I have had face pain from trigeminal neuralgia which is sometimes caused by MS. On my left side it follows the jaw bone and feels sometimes as though I have a toothache. I was checked out by dentist just to make sure it wasn't an infected tooth it was not. Now I have right sided face pain as well. It, too, is trigeminal neuralgia except they labeld my pain as "atypical face pain". This diagnosis came from my neurologist.

I also have trouble getting warm but I suffer from Raynaud's  phenomenon as well.

I wish you well at your ophthalmologist appointment.

Ren

[Lulu54]

Hi again Tess,

Please don't get discouraged - this is a great group.  If you pose a particular question I am sure others will  jump in.  Unfortunately we're not doctors and sometimes the trail of symptoms is much too complex for us to even attempt to make a guess.

I have to say the pain the in gums doesn't sound like MS to me.  Being cold is quite possibly and MS symptom.  Lots of MS patients have numbness in digits like you write about in your index finger.  

good luck with the opthamologist.  Let us know if you have more questions or just need someone to listen, ok?
Lulu

[tess533]

hi every i guess no one wants to help me out i just have two more questions to dose anyone get numb index finger and pain in gum s like tooth ache only it moves from tooth to tooth ? i use to get pain in jaw bone like some one had hit it but not had that for a long time i was just wondering would that be another symptom of ms and cold for months no warming up role on summer . i will see my optomoligist tomorrow thank god ..

[tess533]

Hi Lulu thankyou for listening to me i am  from ireland and yes the eye doc is the only one doing anything for me and i will have a good chat whit him soon and will let you know the outcome ok thaks agin .

[Lulu54]

Hi TEss, I'm glad you came forward and shared some of the details of what you are going through.  I'm in my fifties and feel older than that on some days, too, so I know what you mean.  

I sure hope that the opthamologist can come up with a plan of treatment for you. It sounds like this is  the only doctor taking your symptoms seriously.

It is inexcusable for the horrid little man to dismiss your complaint because of your age - its hard to hear that he would take your problem more seriously if you were younger.  I have the impression that you are in the UK - am I correct?  If so, filing a protest against this horrid little man will do you little good from what I understand.

My apologies that I don't have a concrete solution for you - you are obviously suffering and I hope that you will find someone medical who can help you.

stay in touch, ok?
Lulu