Wait and See!

[ccorina]

Hi all,

Went to the neurologist for follow up on my mri yesterday.  For background (don't remember what I put in my intro) I had a severe hemiplegic migraine with complete right sided numbness in Oct 2010.  Since then I've had continued right side numbness, tingling, electrical shocks, etc.  Eye pain, double vision unless I concentrate real hard.  Myoclonus type muscle spasms in hip flexor and mid-spine sometimes arms.  And unreal fatigue - can't even imagine working.

Anyhow, the MRI was fine.  I asked what now because I'm not crazy these symptoms are real.  He agreed, but said we need to keep testing and if that doesn't show anything we "wait and see"

I asked him if it could be a herniated disk or something and he said no.  He said with both arm and leg involved and sometimes face it had to be in the brain.  So he's ordered an EEG to check for seizure activity.

Then he tested my reflexes quickly in the chair and everything was fine (well he didn't say otherwise).

My husband is happy with his attitude because at least he's testing and doesn't think I'm crazy.

Corina

[SarahL2491]

corina

I took inderal for 20 yrs and like you, it made "mush" out of me!  Finally stopped it
I have a pacemaker now as years later couldn't keep heart rate up (sick sinus syndrome)
so now it stays at 60 unless am in kidney stone pain and then it tops 106  ha ha

I knew there were studies done with epstein-barr levels and MS but had not heard the one about hemaplegics?

may I ask how they diagnosed your HM's ??  

My only fear at this point is that I could use the DMD now not another 20 yrs from now when nothing has been done to help slow down episodes!

[HVAC]

Neurologist typically follow people over time until they reach a diagnosis. I found this confusing. I had an abnormal MRI consistent with MS but was followed every six months and had lots of tests to rule MS  and other things in or out. I ended up with 5 abnormal MRIs, an abnormal VEP, BAER, and EMG.All abnormal Neurological exams.Lots of blood work that was normal and finally two years later a very abnormal LP. No test rules MS in or out. It is an exclusion of all other possibilities and two attacks in two areas of the body over space and time.

I thought I was being dismissed until I found out this is just the way it works. Some get diagnosed quickly, some take years, and others find it is something different than MS.

It is good the Doctor thinks it is something.

Alex

[ccorina]

gooddaysbaddays....What's with doctor's and God complexes?  They must take an Ego course in medical school!


Sarah2491....When I was researching my hemaplegic migraines I came across a study (which of course I can't find now) that showed a greater likelihood of developing MS if you had hemaplegic migraines vs. the general public

Do you take anything for your migraines?  The neuro tried me on a beta blocker, but it lowered my heart rate down to 43!  I just couldn't move at that speed :)

Corina

[SarahL2491]

gooddaysbaddays......your first neuro must be cousins to my first two.......my 2nd refused to duplicate anything the other one had done and when dictating notes in front of you, can't keep his facts straight!


ccorina.....I also have hemaplegic migraines and often wonder if its MS s/s instead......
they are unreal, are they not!  When going to ER, all they hear is the word "migraine" and start running idiotic cardiac stuff with me screaming "you don't understand, I DO NOT have a headache........or cardiac issues"......ha ha

[gooddaysbaddays]

I think your husband is right...he is testing...my first neurologist had a severe god complex and said to me that he would test me only to waive a piece of paper in front of my face to show me it was negative.  I left him!  anyway keep track of all of your symptoms and listen to your doc and huby and also always always always trust your gut!!