I have a return visit in six weeks. I'll be going in armed with a new list of questions. Despite his saying it was CM he was much better than my first neuro who said it was all mechanical and needed only a surgeon to treat. This doc admits it's a white matter disease. He said that he was willing to bet that no neuro tests were done once the discs were found and that something had been missed. Now that I know CM is a symptom, I will be able to spend this time learning what specefic questions to ask him.
Funny thing, while in the waiting room I was looking at some neuro magazines that were there. Stuff geared towards patients, and there was an article in one stating that CM, with no obvious cause is being accepted as a diagnosis now and treated with meds such as bacolfen instead of valium and narcotics as the muscle spasams and tremors are arising from problems with the nerves and not from the muscles themselves.
moeck
Guys, I totally missed the "diagnosis" of supossed cervical myelopathy. Myelopathy means the disease (pathy) of the myelo (white matter). The disc protrusion is not causing a myelopathy. CAROL IS RIGHT ON TARGET!!!!!
'my bad!
Moeck, you are still missing a diagnosis. And, I'm sick of hearing the prediction. "I'll probably never be able to figure out what it is." 2nd, 3rd opinion time??
Q
Interesting google tidbit. Some breeds of dogs, predominatly German Shephards, have a degenerative spinal myelopathy that is auto-immune in nature and has been compared to MS in people. I always could be a b*i*t*c*h when i want to be. food for thought
moeck
The neuro said that we may never learn the cause. He wants all my pre-surgical films to see if it was possibly mechanical or if a spinal lesion was missed. He also said that even with the CTS I will probably not regain the full use of my right hand to instrumental playing standard and with it affecting my balance riding is out as well. (along with treadmills and bikes-stationary or otherwise)
moeck
YES, YES, and YES again to your comment on MS being mis-understood!!!!!
Moeck, good luck and I hope the Baclofen works..
Craig
My first diagnosis was cervical myelopathy and the MS neuro spec. said that you can't have just CM it has to be caused by something. Something like MS or Lyme Disease. He said that CM was not a disease in itself. So who do you believe?
I think that MS is the most misunderstood and craziest disease there is. How about it? Ya'll agree?
Carol
Ours. We already love you and you have a "little sister mimic" of MS. So you will have a lot to talk to those who come (and we have some new ones now) with suggestive symptoms and back problems. Besides, all those back people over there do is complain.
Settled? I'm glad it's not MS. My Mom has what you have. Her cervical cord was compressed into a thin crescent when they caught it in 1997. She can't feel her legs but trudges around just fine at 84.
Quix