Have you been tested for Lupus??? I am praying for you Stephanie!!! So many of the things you describe sound like me. I had endo for years and had a total hysterectomy at 28 years old. I am 32 now. It surely helped the pain below the waist, but all the other things, vertigo, numbness, stiffness, tingling, weakness, buzzing, zaps, fatigue, etc. have stayed and many have worsened.
Have you thought about a MS specialist. I am seeing one now and even if you do not have MS, I know mine is trying to rule out mimics and figure out what it is. Don't give up. I too have been looked at over and over as I'm crazy and have somehow manifested this stuff due to stress or childhood issues. I know my body...you know your body...don't give up.
love and prayers
My oh my. Did a electrophysiologist dx your neurocardiogenetic syncope? If so, and if you are still unable to manage it, you may need to speak to this doctor in regards to treatment, or meds. Did you receive your concussions from falling from the syncope?
Concussions can cause so many residual issues. From what I understand, symptoms from concussions can last for a very long time. A lot of what you describe. This should seriously looked into.
In my opinion, you really do need to get the syncope under control, you can get hurt even worse than you already have. I'm only familiar with it, because my daughter has it.
Wishing you well with your doctor, and sorry for all you are going through.
Forgot to mention, I was hospitalized in November of last year. My WBC was at 20,000. I was given iv antibiotics 3 times and went to normal again.
From my chest up I turned red (like sunburn) it felt like sunburn and sand -gritty. It was November 30th and i had not been exposed to sun. It went away in two weeks.
My pain from the waist down keeps me from getting comfortable when I sleep. I can't ever just lay on my back without my knees bent and its still not that comfortable. it keeps me from sleeping when it gets bad.
But I didn't have an infection, that anyone could find. I have had every blood test known to man atleast twice and still there aren't any answers as to why.
It was actually right before I started mt period (2 days before) and my joints felt like they hurt so bad from my waste down.