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What's up? - week of Nov. 4th
Forgive me if I've missed our usual thread of this type. For newbies' info: we usually share what's facing us, medically or otherwise, towards the start of the week. It's not terribly unusual that we forget to do so until Tuesday morning, though!
I'll start. Will leave home in an hour for Cleveland Clinic's MS center; appointment with the MS neuro's nurse for a "follow-up assessment." Dr. Doogie himself might make an appearance toward the end of our time together.
Other than that, I continue the Odyssey that is plumbing in an old house. I think the glue fumes are helping some symptoms, but nothing being square, plumb, flat, level, straight, or true has a way of messing with my equilibrium!
Work continues at the two main jobs. Church finally got its' shed finished; new mower is to be delivered there while I'm in Cleveland.
Stepson continues dating the daughter of the pastor of the church across the street and a half block down from ours. This one is starting to look serious, so we're praying. We've collaborated with them on VBS and assorted other special events; any hurt feelings could make life complicated!
And what's up with you?
I'll start. Will leave home in an hour for Cleveland Clinic's MS center; appointment with the MS neuro's nurse for a "follow-up assessment." Dr. Doogie himself might make an appearance toward the end of our time together.
Other than that, I continue the Odyssey that is plumbing in an old house. I think the glue fumes are helping some symptoms, but nothing being square, plumb, flat, level, straight, or true has a way of messing with my equilibrium!
Work continues at the two main jobs. Church finally got its' shed finished; new mower is to be delivered there while I'm in Cleveland.
Stepson continues dating the daughter of the pastor of the church across the street and a half block down from ours. This one is starting to look serious, so we're praying. We've collaborated with them on VBS and assorted other special events; any hurt feelings could make life complicated!
And what's up with you?
I continue to be impressed by the spirit of all of you - keeping on with life while facing MS is a crazy combination for so many. I had my tysabri on Monday so I'm good for thenext 28 days, but have to head to MS clinic for a check in on a trial I am doing for extended release baclofen. It is so nice to take just one pill a day instead of 4x daily,even though it is the biggest pill I have ever swallowed.
Keep up the spirits, everyone. I continue to think of all of you and know you make the best of what is handed your way. hugs, Laura
Keep up the spirits, everyone. I continue to think of all of you and know you make the best of what is handed your way. hugs, Laura
As you might guess my week has been busy so far and is continuing to be that way. Had appointment today ay Murryfreesburo VA and tomorrow have to take my truck in for service. Each trip up to Maine and back requires an oil change and tire rotation afterwards.
I'll post more under separate posts.
Dennis
I'll post more under separate posts.
Dennis
As for me, I'm still stuck at home. I'm mostly recovered from my surgery, and have lost a little over 50lbs. The weight is coming off more quickly than I thought it would, and now I have to have my leg brace altered- it's too big now. I'll have to get a new one eventually, but this will help me put that off for a while.
Whoever said that to you wasn't worth listening to. What a ridiculous thing to say! It must have been difficult not to give them "what for".
Tammy
Tammy
Howdy
I'm feeling incredibly grateful for my week when I read the stories so far. Oh Alex how incredibly insensitive and ignorant that person was who spoke at your meeting. I'd offer to make them a coffee and slip them a couple of extra sugars - they say it's white death!
I'm playing Mr Mum at the moment looking after the house while wife is at work and kids at school. I'm about to hang out one load of washing and put another on then need to fire up the vacuum.
I'm feeling really well and darn it I'm going to apply for the manager's job! Previously to having my tumour removed and MS I didn't think I could cope but my mind is clear again and I'm not fatigued at all. So got to give it a go!
Action packed day yesterday. I rode my bike with my youngest to cricket training then home for tea which I cooked and then watched the fabulous new Superman movie just out on DVD. It was the best version of Superman I have ever seen.
Tonight is kids concert at school. I'm actually too busy to work. bahaha
Keep dreaming, keep believing, and don't give up.
Blessings
Alex
I'm feeling incredibly grateful for my week when I read the stories so far. Oh Alex how incredibly insensitive and ignorant that person was who spoke at your meeting. I'd offer to make them a coffee and slip them a couple of extra sugars - they say it's white death!
I'm playing Mr Mum at the moment looking after the house while wife is at work and kids at school. I'm about to hang out one load of washing and put another on then need to fire up the vacuum.
I'm feeling really well and darn it I'm going to apply for the manager's job! Previously to having my tumour removed and MS I didn't think I could cope but my mind is clear again and I'm not fatigued at all. So got to give it a go!
Action packed day yesterday. I rode my bike with my youngest to cricket training then home for tea which I cooked and then watched the fabulous new Superman movie just out on DVD. It was the best version of Superman I have ever seen.
Tonight is kids concert at school. I'm actually too busy to work. bahaha
Keep dreaming, keep believing, and don't give up.
Blessings
Alex
I'm spending most of my week praying that my Aunt pulls through. She has spent a couple of weeks in ICU after her stomach ruptured from diverticulitis & had surgery. Then she became very septic. She already has tons of autoimmune problems that have made her life difficult. So she strong emotionally but not that strong in her poor broken body.
She has been in an induced coma & has a tracky for the respirator now. I was told her kidneys were shutting down the day before yesterday so they were thinking dialysis. I was quite honestly thinking that she would not make it once organs start failing. Yesterday she suddenly flicked her eyes open.....she doesn't recognise people....but her fever is going down.
It's been a roller coaster of thinking she won't make it one day to there's hope the next. I will continue to pray she recovers soon.
Other than that my week is quiet & with all the stress I need quiet.
I hope everyone else's week is good. Hugs to all. Karry.
She has been in an induced coma & has a tracky for the respirator now. I was told her kidneys were shutting down the day before yesterday so they were thinking dialysis. I was quite honestly thinking that she would not make it once organs start failing. Yesterday she suddenly flicked her eyes open.....she doesn't recognise people....but her fever is going down.
It's been a roller coaster of thinking she won't make it one day to there's hope the next. I will continue to pray she recovers soon.
Other than that my week is quiet & with all the stress I need quiet.
I hope everyone else's week is good. Hugs to all. Karry.
Still waiting for approval from insurance for Tysabri. Neuro not prescribing anything for spasticity because he doesn't think it will help...
FMLA ran out 10/31 supposed to start working from home on accommodation middle of this month, hopefully it doesn't wear me out :)
FMLA ran out 10/31 supposed to start working from home on accommodation middle of this month, hopefully it doesn't wear me out :)
I got my neuropsych evaluation report yesterday so will spend free time in the next few days trying to understand what it means for me at work.
Once I feel comfortable it will be time to meet with my boss to discuss accommodations.
Since I am only 42 and hoping to progress a bit further in my career I am dreading this conversation because I think it will end my chances of promotion.
Only 7 months post-dx and it seems like I am being pushed to deal with this disease whether I am ready to or not.
PD, I wish the young couple well, hurt feelings in a family you have ties with can be worrisome.
Alex, that horrible person at the meeting you attended obviously does not have your strength or courage. Congratulatiins on your well -deserved award.
Extra hugs to Polly!
Corrie
Once I feel comfortable it will be time to meet with my boss to discuss accommodations.
Since I am only 42 and hoping to progress a bit further in my career I am dreading this conversation because I think it will end my chances of promotion.
Only 7 months post-dx and it seems like I am being pushed to deal with this disease whether I am ready to or not.
PD, I wish the young couple well, hurt feelings in a family you have ties with can be worrisome.
Alex, that horrible person at the meeting you attended obviously does not have your strength or courage. Congratulatiins on your well -deserved award.
Extra hugs to Polly!
Corrie
I have chemo scheduled for Thursday if my white blood cells are high enough. They usually are not at week 4 so it will probably be next week. Polly and I will spend all day Thursday at the Cancer Center. Polly is a hit there. Sick people and the staff love seeing the Dalmatian.
I went to a MS meeting this week end. Someone with MS made the blanket statement that if you get Cancer with MS you will die and there is nothing they can do for you. I do not intend to live up to that. Like all MS is individual and there is always hope so is Cancer.
Alex
I went to a MS meeting this week end. Someone with MS made the blanket statement that if you get Cancer with MS you will die and there is nothing they can do for you. I do not intend to live up to that. Like all MS is individual and there is always hope so is Cancer.
Alex
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