Double Vision as a permanent deficiency?

[patf]

I've had bouts of double vision and nystagmus which resulted in terrible vertigo, but these episodes have cleared up for the most part. This episode did not include vertigo, but overall seems more resistent to the steriod treatments (2 within as many weeks) and I'm not recovering as quickly as I remember. I'm worried that this will be a permanent thing.
Keeping a patch over the effected eye helps.  Does anyone deal with permanent double vision in one eye?  And how do you do it?  I'm going crazy.  Thanks for any input.

[michael1028]

Pat,
   I do not like the steroid treatments they seem to really screw me up. I too have had steroid treatments for neuro issues as well. This particular treatment has made me very happy. It has made the images one in my eyes but, I am finding that seeing one and lasting longer than about 12 hours has gone. I guess in order to see one I will trade the side effects and other rotten feelings. There has been a big change since the first day I got my eyes back. Some not so good.
  My neuro problems began about 3 and half years ago. They have escalated in the last one and a half. You touch on persistence and patience. If a person who is in search of answers to such a puzzling diesease as MS or MG or for that matter any neuro issue, I think you better have a lot of patience and persistence. Doctors now days are just not the same. Asssumptions they make like you experienced seem to be the way they explain your problems when they do not know an answer.
  You hang in there I hope things continue to improve for you. I too will keep you posted on how things go with me. Sending good thoughts and blessings your way. Take care of yourself.
Mike      

[patf]

Hi Michael,

Thanks for your response.  Today, the images have started to get closer so I guess I'm on the mend. I was just looking at my treatment history and I have had 6 steroid treatments and 1 hospitalization since 2003.  I think about 4 of those episodes involved vision and I have been able to come back each time.  The other treatments were for other various neuro issues.  Problems started in 1997 but I didn't get a definite diagnosis until 2001.  During that time some assumed it was "all in my head" - even one of the neurologists I saw.  Takes a lot of persistence and patience to get answers.  I think that was one of the most frustrating things of all.  I guess as long as I can maintain a level of independence and ability to care for myself I consider myself lucky.  I too will see the doc in about a week.  Hope all works out well for you.  I'll let you know when the images become one again.
Thanks
and take care
Pat

[michael1028]

Hello, my name is Mike. I have suffered from double vision since January. Last thursday, I was given prednisone and it took care of it. I do notice when the dose time comes around I better not be late. It returns with a vengence. I would be very interested in how long you have had this re-occuring problem. Has anything worked for you in the long term, besides the patch. I have many more then I want. I have not had a dx of MS however all the sx. I too am scared that this will be permanent. I have been told it was Myasthenia Gravis. That is what my Neuro-opthomologist is calling this. the nystagmus has also been mentioned as well. I will agree it makes one crazy that is for sure. please keep me posted. I will do the same. I have an appointment a week from today.
Hope to you for a good week,
  Mike