Going through a lot

[BanditTus]

I've been sick for over a year with a slew of symptoms. I have tremors, my speech has slowed down, it's hard to think sometimes, I have muscle spasms (not painful onesin my legs, extremely painful in my left flank), burning pain in my legs, numbness in my face that comes and goes, some loss of sensation on my left leg and left arm, nausea that leads to vomiting multiple times a week, shaking vision, pins and needles in my hands and feet, feeling of something caught in my throat, inflamed tongue (it looks gnarly), dizzy spells , if I turn my head or look up I get dizzy and nauseated, and extreme fatigue that'll hit me out of no where. Same with body aches. I'll describe it like suddenly catching the flu for a few hours in the afternoon without the congestion. And all my tests (and I've had countless tests, my gosh) keep coming back normal. My CRP is high and my Vitamin D is low, that's all we've gotten. And my bladder doesn't empty correctly, but my bladder is otherwise completely healthy.

All the specialists I've seen though keep talking about MS, and "have you been tested?" and I've been saying yes, because I thought my neuro ruled it out. Well, come to find, my Neuro DIDN'T do all the tests for it, I've just been in the dark. I thought an MRI of my head was all you needed. I finally saw a pain management doctor and he was shocked my neurologist hasn't done a lumbar puncture on me yet. Also come to find, my MRI of my brain says I have white matter lesions. My Neuro passed them off as caused by migraines because of my history (He also blames many if not all of my symptoms on my migraines) but I'm not so sure now. He misread an MRI of my thoracic spine before (said I had herniated discs when I did not).

I have an appointment with a new neurologist for a second opinion, but I'm honestly getting so fed up with doctors. I'm in so much pain and I cannot function. I can't drive. I can't work. I've been in so much pain I've wondered if I was going to die. Or hoped I was, so it would stop. It's horrible. And I want an answer, so, so bad. MS looming over me though is kind of terrifying.

[BanditTus]

Sorry bout that, my question was if it sounds to those who have been diagnosed, if it might be possible I have MS. My pain doctor told me I'm not text book presentation, but at this point, I don't seem to be text book presentation for anything unless we've just missed something. Rheumy told me Fibro isn't in the cards right now, mainly because I'm technically being treated for it, and nothing helps. Thank you though, for responding.

Intendedtobeoff02 - yes, and we've worked out side effects, what's me and what's medication. I actually got a genetic swab from a doctor the other day, so we can see if I have any immunities or other issues with medication, because I do react strangely to medication (Gabapentin for example made me high and wide awake for example, instead of making me fall asleep like it's supposed to. We called it my energy drink pills. I was so jittery when I took them, no longer on it because my pain didn't help.) Right now I'm on a beta blocker for my blood pressure to keep it from going too high and topamax for migraines (which stops them completely, I no longer have migraines so that's a plus in all this!) and I take Tramadol for pain, and a vitamin D supplement. and Zofran for my nausea when I need it.

I'm getting steroid shots in my spine as a "Shot gun" approach as my pain doctor called it, to try and combat the pain in my legs. Since we can't figure out what's causing it. Hoping that actually works.

[supermum_ms]

Hi and welcome to our little MS community,

You didn't actually ask a question but I just wanted you to know that i've read your post and I can understand your frustration. Your list of sx's is quite a lot for someone in their early 20's, if MS was a possible cause. A lot for a year of sx's, that are quite wide spread and there are some sx that are unconnected to MS. I dont think MS is going to be the answer, I dont see migraine explains everything either so getting a second opinion is a very good idea.

Cheers.........JJ  

[intendtobeoff02]

Are you by chance on any medications?